SUDC Foundation

SUDC Foundation We are the only organization worldwide whose purpose is to promote awareness, advocate for research and support those affected by SUDC. www.sudc.org

If you are bereaved and would like to learn more about our free support services such as online support groups and peer contacts please go to www.sudc.org and register your family. Someone will contact you. One of our missions is to support and connect families all over the world who have experienced the tragedy of losing a child to SUDC.

If you are bereaved and would like to learn more about our free support services such as online support groups and peer contacts please go to www.sudc.org and register your family. Someone will contact you. One of our missions is to support and connect families all over the world who have experienced the tragedy of losing a child to SUDC.

Operating as usual

Today is a day to celebrate grandparents and all the incredible love they hold for their grandchildren – both the grandc...
09/12/2021

Today is a day to celebrate grandparents and all the incredible love they hold for their grandchildren – both the grandchildren who are living and those who were gone too soon. So, to all the amazing grandparents out there, please know: We appreciate you, we love you, and we are so grateful to have you in our lives.

Today is a day to celebrate grandparents and all the incredible love they hold for their grandchildren – both the grandchildren who are living and those who were gone too soon. So, to all the amazing grandparents out there, please know: We appreciate you, we love you, and we are so grateful to have you in our lives.

20 years ago this month, Chelsea Hilbert, LCSW, helped found the SUDC Program – the precursor to the SUDC Foundation – a...
09/09/2021

20 years ago this month, Chelsea Hilbert, LCSW, helped found the SUDC Program – the precursor to the SUDC Foundation – alongside current president Laura Gould. We recently sat down with Chelsea to gather her reflections on the last 20 years, and to find out what she hopes is in store for the SUDC Foundation going forward. sudc.org/catching-up-with-chelsea-hilbert-lcsw

20 years ago this month, Chelsea Hilbert, LCSW, helped found the SUDC Program – the precursor to the SUDC Foundation – alongside current president Laura Gould. We recently sat down with Chelsea to gather her reflections on the last 20 years, and to find out what she hopes is in store for the SUDC Foundation going forward. sudc.org/catching-up-with-chelsea-hilbert-lcsw

Have medical or research questions on sudden unexplained death in childhood? Please join SUDC Board Members Laura Gould ...
09/08/2021

Have medical or research questions on sudden unexplained death in childhood? Please join SUDC Board Members Laura Gould and Dr. Erin Bowen for our first Health & Science Q&A Session next Wednesday, September 15, at 8 p.m. EST. Feel free to send any questions in advance to [email protected] so Laura and Erin are prepared with the most current information to answer your questions!

Contact [email protected] if you would like to attend.

Have medical or research questions on sudden unexplained death in childhood? Please join SUDC Board Members Laura Gould and Dr. Erin Bowen for our first Health & Science Q&A Session next Wednesday, September 15, at 8 p.m. EST. Feel free to send any questions in advance to [email protected] so Laura and Erin are prepared with the most current information to answer your questions!

Contact [email protected] if you would like to attend.

Meet Maggie, Mike and Travis – three of the 12 individuals running the 2021 TCS New York City Marathon in support of the...
09/07/2021

Meet Maggie, Mike and Travis – three of the 12 individuals running the 2021 TCS New York City Marathon in support of the SUDC Foundation. Swipe to learn more about what is driving each of them to run 26.2 miles this November in support of our mission to create a world free of sudden unexplained death in childhood.

Feeling inspired? Donate to their efforts: https://fundraisers.hakuapp.com/teams/sudc-foundation?partner=37ef1495369205e68474&fbclid=IwAR0Mo1RJFRiCpb3pjvlg-2iNfOrp2DbiaNqSxtObpFfeNXjv-N-tTTgnjPI

Want to stay active AND make a difference? By participating in these events, you will help support our mission to promot...
09/03/2021

Want to stay active AND make a difference? By participating in these events, you will help support our mission to promote awareness of Sudden Unexplained Death in Childhood; to fund research; and to provide support to families affected by the sudden loss of a child. Visit sudc.org/events for more information and to learn to how to participate.

09/01/2021

When you join our virtual support hours, you get an opportunity to share with, and hear from, others who have lost a child suddenly and unexpectedly. This month, we’re inviting newly bereaved parents to join us on Monday, September 13 and Monday, September 27; bereaved dads on Tuesday, September 14; and bereaved grandparents on Monday, September 20 – all via Zoom from 8-9 p.m. EST. For more information and to register, please contact [email protected].

“Patrick went to watch football, and never came home. The youngest of our three children, on 14th January 2020, full of ...
08/31/2021

“Patrick went to watch football, and never came home. The youngest of our three children, on 14th January 2020, full of dreams, full of smiles, full of being 15 years old, he had collapsed and died on Gloucester Place in central London. His death is a sudden and unexplained arrhythmogenic incident. We chose to believe that the angels had chosen him, and his final whistle was blown.

Patrick was an extraordinary, inspirational, kind and fun-loving person to be around. We remember him for his loving ways and the ability to laugh and have fun. Niamh and Euan said his comedy impressions and accents were hilarious and always made them laugh. His smile could light up a room.

At home, Patrick loved his weekly trips to coffee shops with his Mum. Saturdays were all about football, and being a Swindon Town Football Club season ticket holder meant he was off to watch them wherever they played. He had enough football shirts to clothe a small country, and every so often, we’d bag them up, and send them off to clothe a small country. It makes the family smile to think that somewhere in the world there are kids running around in an eclectic mix of Patrick’s old Celtic, Liverpool, Lille, Waterford and of course Swindon shirts.

His absolute love for his family, his football, his endless cornflakes and his real sense of adventure is what will always be remembered. In a Drama class, shortly before he died, Patrick had to write about who influenced him and how he would like to be remembered, and he wrote: ‘My influential people are my mum, dad, brother and sister,’ and he said he would like to be remembered for being funny and kind and changing people for the better.

My, how he is.

Our journey has been – and continues to be – incredibly tough, but we are able to take inspiration from the positive choices we’ve made, and we’re taking Patrick with us. I’m getting closer and closer to being ready for the London Marathon, and on 3rd October, I’ll be there raising money for Helen and Douglas, a local hospice who have provided us with incredible and long-standing bereavement support. I’ll be emotional, reflective, exhausted. I’ll draw on the resilience and perspective that the past 18 months has given me, and with hope in my heart, I’ll be doing this for Patrick.” –Kate W., mom of Patrick

Now live on eBay! Authentic game-worn and autographed jersey by Clayton Kershaw. This one-of-a-kind jersey with the SUDC...
08/30/2021

Now live on eBay! Authentic game-worn and autographed jersey by Clayton Kershaw. This one-of-a-kind jersey with the SUDC Awareness patch is from the Los Angeles Dodgers' Spring Training game against the San Francisco Giants on March 21, 2021.

Place your bid now! https://1l.ink/8MNM6MP Auction ends Wednesday, Sept. 8, at 11 p.m. EST.

#SUDC #SUDCAwareness #bid #auction #Dodgers #LADodgers #ClaytonKershaw #eBay

Now live on eBay! Authentic game-worn and autographed jersey by Clayton Kershaw. This one-of-a-kind jersey with the SUDC Awareness patch is from the Los Angeles Dodgers' Spring Training game against the San Francisco Giants on March 21, 2021.

Place your bid now! https://1l.ink/8MNM6MP Auction ends Wednesday, Sept. 8, at 11 p.m. EST.

#SUDC #SUDCAwareness #bid #auction #Dodgers #LADodgers #ClaytonKershaw #eBay

On behalf of the SUDC Foundation, we wish you peace and loving memories on this Bereaved Father’s Day and always.
08/26/2021

On behalf of the SUDC Foundation, we wish you peace and loving memories on this Bereaved Father’s Day and always.

On behalf of the SUDC Foundation, we wish you peace and loving memories on this Bereaved Father’s Day and always.

08/24/2021

The SUDC Foundation performs research to better understand and advocate for the needs of families affected by sudden unexpected and unexplained deaths in childhood – and those efforts wouldn't be possible without the inspiration and enthusiasm of the SUDC community. Thank you.

Support us: sudc.org/donate

Questions concerning SUDC and its association with febrile seizures are common, as recent research reports a higher inci...
08/19/2021

Questions concerning SUDC and its association with febrile seizures are common, as recent research reports a higher incidence of febrile seizures (28.8%) among children who died of SUDC than what we would expect in the general population (~3%). Read more: sudc.org/what-is-a-febrile-seizure/

Questions concerning SUDC and its association with febrile seizures are common, as recent research reports a higher incidence of febrile seizures (28.8%) among children who died of SUDC than what we would expect in the general population (~3%). Read more: sudc.org/what-is-a-febrile-seizure/

Teachers – Would you know how to support a student after the sudden loss of a sibling? Following such a traumatic event,...
08/18/2021

Teachers – Would you know how to support a student after the sudden loss of a sibling? Following such a traumatic event, children need the right support, understanding and interventions from parents and other influential adults – including their teachers. We’ve put together a toolkit for schools with resources on how to support surviving siblings and general grief information for coping with any loss a student may experience. Download it here:https://sudc.org/wp-content/uploads/2021/08/Sibling-Toolkit-8.12-.pdf

Teachers – Would you know how to support a student after the sudden loss of a sibling? Following such a traumatic event, children need the right support, understanding and interventions from parents and other influential adults – including their teachers. We’ve put together a toolkit for schools with resources on how to support surviving siblings and general grief information for coping with any loss a student may experience. Download it here:https://sudc.org/wp-content/uploads/2021/08/Sibling-Toolkit-8.12-.pdf

Facebook users have raised more than $5B for various charitable organizations over the last five years – and we are one ...
08/16/2021

Facebook users have raised more than $5B for various charitable organizations over the last five years – and we are one of the many grateful recipients. How much more do you think we can raise for the SUDC Foundation before the summer is over? Create your own fundraiser by following these steps, and let’s find out: www.facebook.com/help/990087377765844

Facebook users have raised more than $5B for various charitable organizations over the last five years – and we are one of the many grateful recipients. How much more do you think we can raise for the SUDC Foundation before the summer is over? Create your own fundraiser by following these steps, and let’s find out: www.facebook.com/help/990087377765844

Twelve incredible individuals will be running the TCS New York City Marathon 2021 in November in support of the SUDC Fou...
08/13/2021

Twelve incredible individuals will be running the TCS New York City Marathon 2021 in November in support of the SUDC Foundation. As they train to run 26.2 miles, they are also raising funds to help us achieve a world free of SUDC.

Learn more about each of the runners, and show your gratitude for their hard work and dedication, by making a donation to the team or to an individual runner: https://fundraisers.hakuapp.com/teams/sudc-foundation?partner=37ef1495369205e68474

Twelve incredible individuals will be running the TCS New York City Marathon 2021 in November in support of the SUDC Foundation. As they train to run 26.2 miles, they are also raising funds to help us achieve a world free of SUDC.

Learn more about each of the runners, and show your gratitude for their hard work and dedication, by making a donation to the team or to an individual runner: https://fundraisers.hakuapp.com/teams/sudc-foundation?partner=37ef1495369205e68474

The SUDC Foundation represents a community with many stories, but one shared voice, all working toward a future free of ...
08/11/2021

The SUDC Foundation represents a community with many stories, but one shared voice, all working toward a future free of SUDC. Donate now: sudc.org/donate

The SUDC Foundation represents a community with many stories, but one shared voice, all working toward a future free of SUDC. Donate now: sudc.org/donate

The SUDC Foundation Ambassador Program is our formal volunteer program, with over 100 Ambassadors from 32 U.S. states, C...
08/10/2021

The SUDC Foundation Ambassador Program is our formal volunteer program, with over 100 Ambassadors from 32 U.S. states, Canada, Australia, and the United Kingdom. All are welcome to apply! To learn more about the SUDC Foundation Ambassador program, visit sudc.org/ambassador-program.

The SUDC Foundation Ambassador Program is our formal volunteer program, with over 100 Ambassadors from 32 U.S. states, Canada, Australia, and the United Kingdom. All are welcome to apply! To learn more about the SUDC Foundation Ambassador program, visit sudc.org/ambassador-program.

Looking for a meaningful way to round out your summer? By participating in these events, you will help support our missi...
08/05/2021

Looking for a meaningful way to round out your summer? By participating in these events, you will help support our mission to promote awareness of Sudden Unexplained Death in Childhood; to fund research; and to provide support to families affected by the sudden loss of a child. Visit sudc.org/events for more information and to learn to how to participate.

Congratulations to SUDC Foundation Instagram follower @holli_eilzabeth_siler! You are the winner of our swag giveaway. T...
08/02/2021

Congratulations to SUDC Foundation Instagram follower @holli_eilzabeth_siler! You are the winner of our swag giveaway. Thank you for your support of the SUDC Foundation! #SUDC #giveaway #winner

Congratulations to SUDC Foundation Instagram follower @holli_eilzabeth_siler! You are the winner of our swag giveaway. Thank you for your support of the SUDC Foundation! #SUDC #giveaway #winner

08/01/2021

Our virtual support hours give grieving parents and other family members an opportunity to share with, and hear from, others who have lost a child suddenly and unexpectedly. This month, we’re inviting newly bereaved parents to join us on Monday, August 2 and Monday, August 16; and bereaved dads on Tuesday, August 10 – all via Zoom from 8-9 p.m. EST. For more information and to register, please contact [email protected].

The SUDC Foundation strives to provide support and resources after the loss of a child to sudden unexpected death. To re...
07/31/2021

The SUDC Foundation strives to provide support and resources after the loss of a child to sudden unexpected death. To refer us to a family who may be able to benefit from our services, please contact us using the form on our website, and a staff member will reach out promptly: sudc.org/services-for-bereaved-families

The SUDC Foundation strives to provide support and resources after the loss of a child to sudden unexpected death. To refer us to a family who may be able to benefit from our services, please contact us using the form on our website, and a staff member will reach out promptly: sudc.org/services-for-bereaved-families

07/29/2021

We created the annual SUDC Foundation Family Retreat as a way to bring the #SUDC community together and help us all connect in a way that we can’t in any other place in the world. Join us this year in San Antonio, Texas, scheduled for Sept. 24-26, 2021. sudc.org/family-retreat-2021

Join other registered families in the SUDC Community for this special event in collaboration with Allison Daily, M.A., t...
07/27/2021

Join other registered families in the SUDC Community for this special event in collaboration with Allison Daily, M.A., the Director of Pathfinders, a psychosocial support organization in Aspen, Colorado.

Utilizing a unique set of exercises, we will explore various elements of grief in which participants will have the opportunity to share personal experiences and emotions in an intimate and supportive environment. Regardless of where each person is at in their own grief process, these exercises will serve as excellent tools for recognizing what activities, relationships and life situations serve you in your grief and which don’t; processing and coping with anger and other grief-related emotions; and how to unravel an emotion and regain your perspective and balance. We will conclude the session with a special honoring/remembering exercise called Memory Tree.

Contact [email protected] for links and registration information. Space is limited.

Join other registered families in the SUDC Community for this special event in collaboration with Allison Daily, M.A., the Director of Pathfinders, a psychosocial support organization in Aspen, Colorado.

Utilizing a unique set of exercises, we will explore various elements of grief in which participants will have the opportunity to share personal experiences and emotions in an intimate and supportive environment. Regardless of where each person is at in their own grief process, these exercises will serve as excellent tools for recognizing what activities, relationships and life situations serve you in your grief and which don’t; processing and coping with anger and other grief-related emotions; and how to unravel an emotion and regain your perspective and balance. We will conclude the session with a special honoring/remembering exercise called Memory Tree.

Contact [email protected] for links and registration information. Space is limited.

We entered 2021 full of hope that we could put all the challenges of 2020 behind us and move forward with unrelenting de...
07/26/2021

We entered 2021 full of hope that we could put all the challenges of 2020 behind us and move forward with unrelenting determination to advocate for the needs of the SUDC community. We are delighted to be able to share some of the high points of the recent months in our annual newsletter. Read it at sudc.org/sudc-newsletter-2021/.

We entered 2021 full of hope that we could put all the challenges of 2020 behind us and move forward with unrelenting determination to advocate for the needs of the SUDC community. We are delighted to be able to share some of the high points of the recent months in our annual newsletter. Read it at sudc.org/sudc-newsletter-2021/.

Yesterday, SUDC Foundation President, Laura Gould, presented to an audience of more than 500 medicolegal death investiga...
07/23/2021

Yesterday, SUDC Foundation President, Laura Gould, presented to an audience of more than 500 medicolegal death investigation professionals (some virtual, some in-person) at the International Association of Coroners and Medical Examiners - IACME Annual Training Symposium in Las Vegas, where she spoke about the importance of adopting the national consensus guidelines for investigating unexpected pediatric deaths and supporting high quality care of bereaved families.

The SUDC Foundation's Board of Directors is proud to have approved distribution of 250 complimentary copies of Unexplained Pediatric Deaths: Investigations, Certification and Family Needs, for attendees of the training – a significant step in promoting our #SUDC awareness efforts among professionals at the front lines of death investigation and facilitating implementation of the consensus guidelines. To learn more, visit sudpeds.com.

(Pictured with Laura: Jennifer Snippen, IACME Executive Board Member; and Kelly Keyes, IACME President Elect.)

#IACME

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General information

Sudden Unexplained Death in Childhood (SUDC) occurs when an apparently healthy child beyond the age of 12 months dies without warning and without a known cause.

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The SUDC Foundation

The SUDC Foundation is the only organization worldwide whose purpose is to promote awareness, advocate for research, and support those affected by SUDC. SUDC is the fifth leading category of death in children ages one to four, yet SUDC receives no public funding. The SUDC Foundation provides all services at no cost to families.

Sudden Unexplained Death in Childhood (SUDC) is a category of death in children between the ages of 1 and 18 that remains unexplained after a thorough investigation, including an autopsy. Most often, a seemingly healthy child goes to sleep and never wakes up. At this time, we do not know what causes SUDC, how to predict it or how to prevent it.

This page provides a way for us to share the most current and accurate information on SUDC to date and highlight important topics for the SUDC community as a whole. It provides a way to share and exchange thoughts, ideas, images, and other content in a respectful way that fosters constructive dialogue. We expect our community to agree to disagree when necessary, but always communicate with respect and compassion. The SUDC Foundation expects our Facebook community to maintain a high level of sensitivity, especially as it relates to promoting high-quality, peer-reviewed scientific information and/or anyone’s race/ethnicity, appearance, gender, sexual orientation, religion, political beliefs, education and socioeconomic status.

Please observe the following guidelines for commenting on the SUDC Foundation’s page. Those who do not follow these guidelines will risk the deletion of their comments and/or access to the SUDC Foundation’s page.

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Comments

Trying to do yoga with a 90 pound lab 😁 Thank you....it was refreshing!
I have a question, out of all the children that succumb to SUDC in a year, how many are Unvaccinated, and how many are fully vaccinated? Has a study, even an informal one, been done to see the result?
I am wanting to put together a 5K run in memory of my daughter that passed away. I am just so unsure where to begin.
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This is the last picture I have of my 22 month old son, we were moving and while I was packing he climbed in to take a nap. He was a happy and healthy beautiful boy. He went to his father's for the weekend with his sister, his father put him to bed Saturday night and Sunday morning he found him in his crib... My heart is truly broken.. It's something you never think will happen to you and something that not many people even know about... I would love to speak to other parents who have fell victim to this 💔
Lee Mrowicki Lee is planning to play my/Ray Andersen's song: "I Think About You (Song for Vienna)" at the beginning of his radio show at 6pm EST on the link below, to honor Vienna and raise awareness for SUDC (Sudden Unexplained Death in Childhood)! Thank you Lee!!! This makes my (birth) day!
How long did it take to get a manner of death? We lost our daughter (2) on 9/11 and believe it’s from SUDC
I just lost my 2 year 8 month old perfectly healthy little girl to this. I didn't even know it existed. I am devastated. I hope to hear from other parents who have gone through this surreal nightmare. My daughter, Betsy, passed in her crib, in the middle of the night. She had nothing wrong with her. Nothing. Her little heart just stopped. My heart is so broken. My other three kids are also so devastated. My mother had a heart attack from Broken Heart Syndrome and nearly died a few weeks after the baby. Another condition I didn't know existed.
This is Week 4 of SUDC awareness month so here goes.
TEAM VIENNA/SUDC AWARENESS supports the RUN FOR HENRY 5K in Doylestown, PA on SATURDAY, APRIL 15, 2018. Our daughter Vienna and Colleen/Matt's son Henry are friends up in heaven. Now us parents are friends here on earth, and together we are trying to cope with the loss of our precious healthy children. Please join us on April 15 in PA to support Henry's family and SUDC children gone too soon. https://l.facebook.com/l.php?u=https%3A%2F%2Frunsignup.com%2FRace%2FPA%2FDoylestown%2FOrangetheoryFitness5K%3Fr%3DY&h=ATOwrVvmEVtjXFzpym4PzFDa1ErUu80DHjNSin1z2-lr1JhUeFhne1dRK5NCoFboK1G4786ua_RxVcPJYhxPihHTcVeoFY8Uwq5vhhpg-9TNWMc-tk5SuWZgyOxV5Ra9-Q&s=1
For Week 3 (spreading the message one person at a time) we took our Claire and dog, Fluffy (in spirit) to see the Peter Rabbit movie. While there I shared SUDC's mission with the lady sitting next to me.