If you are bereaved and would like to learn more about our free support services such as online support groups and peer contacts please go to www.sudc.org and register your family. Someone will contact you. One of our missions is to support and connect families all over the world who have experienced the tragedy of losing a child to SUDC.
http://www.youtube.com/user/TheSUDCProgram
Mission: The Sudden Unexplained Death In Childhood Foundation (SUDC) mission is to promote awareness, advocate for research, and support those affected by sudden unexpected or unexplained death in childhood.
This Mother’s Day, we are sending love and support to mothers everywhere. Let’s show all mothers that our thoughts and appreciation are with them. Leave a 💛 in our comments for all mothers.
#mothersday2020 #mothers #love #grief #familysupport #sudc #inourhearts
“Adeline's pediatrician offered what seemed like a very odd suggestion at the time – to take pictures of us with Adeline in the hospital, despite the fact she was already gone. I didn’t understand how much I’d learn to love those pictures. Adeline just looked asleep, and they give me comfort that she left this world in no pain, peacefully." – Adeline’s mom. Many thanks to Adeline's mom for sharing her story in Unexplained Pediatric Deaths, a groundbreaking new book for medicolegal and medical professionals. Learn more and order at sudpeds.com
#sudc #sudcawareness #advocate #support #research #familysupport #suddenunexplaineddeathinchildhood
#sudpeds
On behalf of our entire staff, we would like to thank everyone who donated to the SUDC Foundation on #GivingTuesdayNow. Our campaign will run through May 15th, each donation gets us closer to our goal. During these times of crisis, your generosity makes a world of difference in creating a positive change in the lives of many families. We greatly appreciate your support. Click the link below to donate: https://charity.gofundme.com/o/en/campaign/sudc-foundations-givingtuesdaynow-campaign
#sudc #sudcsupport #donate #research #advocate #familysupport #parentsupport #childloss #grief
While much of our world has stood still during this global pandemic, the needs of those we support have not. The SUDC Foundation's support has not only continued but expanded to meet the unique needs of this extraordinary time. On this day of giving, people around the world stand together in unity--to use their individual power of generosity to remain connected and heal. Please help us honor our commitment to serving the evolving needs of the SUDC community, and, as always, at no cost to families. Please donate today!
Donate Here:
https://charity.gofundme.com/o/en/campaign/sudc-foundations-givingtuesdaynow-campaign
#givingtuesdaynow #donate #fundraise #actsofkindess
Today's edition of SUDC Insights features reflections by Amanda Brindle, our Family Services Coordinator, on how the families we support are coping with the global pandemic. It also highlights the SUDC Foundation's comprehensive and tailored support in these uncertain times. Please read and on this day of giving, help us honor our commitment to serving the evolving needs of the SUDC community, and, as always, at no cost to families. Please donate today!
Donate here: https://charity.gofundme.com/o/en/campaign/sudc-foundations-givingtuesdaynow-campaign
Read our blog here: https://sudc.org/education-resources/our-blog-sudc-insights/witnessing-grief-and-resilience-through-a-global-pandemic
Tomorrow is Giving Tuesday Now. As we are all experiencing a difficult time right now, generosity brings people of all races, faiths, and views together across the globe. It’s a day for everyone worldwide to stand together and give back in any way they can regardless of who or where they are. We are working harder than ever to meet the needs of families touched by SUDC, and your support is crucial during this time. Please donate to the SUDC Foundation to allow us to give back to our families. Your generosity is greatly appreciated.
Donate here:
https://charity.gofundme.com/o/en/campaign/sudc-foundations-givingtuesdaynow-campaign
#givingtuesdaynow #donate #fundraise #randomactsofkindess #sudc
The first Sunday of each May is International Bereaved Mother’s Day, honoring the mothers who carry their children in their hearts rather than in their arms. The SUDC Foundation joins in honoring bereaved Mothers everywhere.
#bereavedmothersday #grief #mothers #sudc
Shout out to the Team SUDC runners in the Dicks Virtual Marathon this weekend- Ryan, Justin, Jordan, Kacie, Darlene and Diana! Thank you for your dedication to raising funds for the SUDC Foundation.
If you haven’t sponsored a runner yet, it’s not too late! Please use the link below to make your contribution to support the runners and the mission of the SUDC Foundation. Thank you!
https://raceroster.com/events/2020/24250/2020-dicks-sporting-goods-pittsburgh-marathon-weekend/fundraising-organization/19299
#MovePittsburgh #marathon #raceforacause #pittsburgh #virtual #sudc #sudcteam #runner #suddenunexplaineddeathinchildhood
#pittsburghmarathon2020
Volcanoes with Holly! SUDC siblings were recently treated to an educational online homeschool lesson led by SUDC parent and Geologist Holly Racine. Holly and her family live in the Pacific Northwest, where they are surrounded by volcanoes, such as Mount St. Helens where Holly previously worked. Siblings worldwide connected with one another to learn why volcanoes explode, the connection between earthquakes and volcanoes, and why lava is red. Children who have experienced the trauma of sibling loss benefit greatly from the social support of other kids with similar experiences. Thank you so much, Holly, for this entertaining and educational session for SUDC siblings!
To help us continue serving our SUDC families, please consider making a donation using the link below. Your kindness will help make a difference in the lives of so many people.
https://charity.gofundme.com/o/en/campaign/sudc-foundations-givingtuesdaynow-campaign
#givingtuesdaynow #donate #fundraise #actsofkindess #education #sudcsiblings #virtuallearning #strongertogether
The SUDC community includes many essential workers beyond our medical and investigation professionals. We are so proud of our police officers, grocery store employees, those managing deliveries and so many others! They are battling COVID19 to provide us urgent medical care, and also to make our lives safer and a little bit easier for us all. We are so grateful to ALL the essential workers! If you or someone you love is an essential worker, please honor them in our comments!
#sudc #community #essential #essentialworkers #pandemic #support #care #strongertogether #medical #delivery #police #firefighters #grocerystore #paramedics
The SUDC Foundation offers biweekly SUDC community social hours via Zoom. It’s the perfect place for families to chat, discuss coping skills, vent, share stories and talk about their grief in a safe place with others who understand. The SUDC Foundation is committed to meeting the evolving needs of the SUDC community. #givingtuesdaynow
To help us meet the needs of our community, please donate using the link below. Your kindness is greatly appreciated.
https://interland3.donorperfect.net/weblink/WebLink.aspx?name=E230614&id=122
#donate #sudc #randomactsofkindness #fundraise #socialhour #grief #noonegrievesalone
Thank you Kids In Danger for helping us spread the word about this amazing book. Check out the post below to read more.
#thankyou #sudc
The current global pandemic underscores the challenges facing the death investigation system in the U.S. Greater support must be provided for adequate training, staffing, facilities, equipment and supplies to perform autopsies. This is just one of the recommendations highlighted in Unexplained Pediatric Deaths, which establishes the first ever national consensus guidelines in the U.S. to fill crucial needs to determine why unexplained pediatric deaths happen. Read more and order yours at www.sudpeds.com
Did you know that you can support Scarlett’s Sunshine Act (H.R. 2271/ S. 1130) from your mobile device? It only takes a few minutes!
This bill would strengthen existing efforts to better understand SUID and SUDC, facilitate data collection and analysis, improve preventative efforts, and support children and families.
Contact your legislators today with the link below.
https://p2a.co/o7SZR93
#supportsudc #legislation #childrengonetoosoon #scarlettssunshineact #sudc
The SUDC community includes many medical professionals, first responders and death investigation professionals who are battling the current global pandemic. Thank you for all that you do! If you or someone you love is on the frontlines, please honor them in our comments!
#sudc #community #medical #med #pandemic #support #care #medicalprofessionals #strongertogether
Help Team SUDC cross the finish line in the Dick’s Sporting Goods Pittsburgh Marathon! Donate today here: https://raceroster.com/events/2020/24250/2020-dicks-sporting-goods-pittsburgh-marathon-weekend/fundraising-organization/19299
Sponsor Darlene today, as she runs in memory of her daughter, Adeline. Darlene shared how she will enjoy running virtually this year, “I’ve decided my route will include all of the special places that Adeline and I shared – our old house, Mawger’s house, and the park. Each holds a very special place in my heart.”
#MovePittsburgh #marathon #raceforacause #pittsburgh #virtual #sudc #sudcteam #runner #suddenunexplaineddeathinchildhood
#pittsburghmarathon2020
After the tragic loss of a loved one, children experience grief just as much as adults do. A child's reaction to their sibling’s death can vary depending on age, developmental stage, socialization, and the circumstances of death, including how they found out about the death. The SUDC Foundation knows that children hurt too, so we provide many grief resources to help families. To see our list of resources, click here: https://sudc.org/education-resources/grief-resources/sibling-book-list
Share this post if you know a grieving child.
#sudc #siblingloss #loss #siblings #familysupport #noonegrievesalone #lifeafterloss #grief #griefjourney
We are participating in #GivingTuesdayNow, a global day of giving for people around the world to stand together in unity--to use their individual power of generosity to remain connected and heal. Generosity gives everyone the power to make a positive change in the lives of others and is a fundamental value anyone can act on.
#generosity #connect #give #unity #sudc #standtogether
Thank you American Academy of Forensic Sciences for helping us get the word out about the Book: Unexplained Pediatric Deaths: Investigation, Certification and Family Needs. Click down below to read more.
#sudpeds #ordernow #sudc
The Sudden Unexplained Death in Childhood (SUDC) Foundation released a first-of-its-kind book, Unexplained Pediatric Deaths: Investigation, Certification and Family Needs, in collaboration with the...
Thank you Cribs for Kids® National Infant Safe Sleep Initiative for helping us get the word out about this amazing resource.
The SUDC Foundation released a first-of-its-kind book, Unexplained Pediatric Deaths: Investigation, Certification, and Family Needs, in collaboration with the National Association of Medical Examiners and the American Academy of Pediatrics.
The current global pandemic underscores the challenges facing the death investigation system in the U.S. Greater support must be provided for adequate training, staffing, facilities, equipment and supplies to perform autopsies. This is just one of the recommendations highlighted in Unexplained Pediatric Deaths, which establishes the first-ever national consensus guidelines in the U.S. to fill crucial needs to determine why unexplained pediatric deaths happen. Read more and order yours at sudpeds.com.
In this edition of SUDC Insights, we would like to introduce you to one member of our amazing staff, Amanda Brindle, the SUDC Foundation’s Family Services Coordinator. She is based out of the Foundation’s office in New Jersey.
We are thankful for Amanda’s experience to support the needs of our families all the time, but especially in these uncertain times. Through Amanda’s expertise and leadership, the SUDC Foundation has been able to offer comprehensive and tailored support to SUDC families, including virtual social hours, book clubs and tips for coping with the current global pandemic.
Read more at: https://sudc.org/education-resources/our-blog-sudc-insights/staff-spotlight-amanda-brindle
The SUDC Registry and Research Collaborative (SUDCRRC) works hard to understand sudden, unexpected deaths in children and preserve critical information for future discoveries. The SUDCRRC assists families and the medicolegal death investigation community when these tragedies occur. To learn more, visit: https://sudc.org/research-medical-info/sudc-registry-research-collaborative
#sudc #research #donate #sudcawareness #registry #research #noonegrievesalone #help #support #grief
Help fund SUDC research by sponsoring the Pauley Brothers in the Dick’s Sporting Goods Pittsburgh Marathon! Ryan, Jordan and Justin Pauley are brothers all running in memory of Ryan’s daughter, Scarlett. Why are Justin and Jordan running with Ryan? Jordan, “I am honored and grateful to be a member of Team SUDC. Running not only supports Scarlett it supports every child that was unfortunately taken way too soon.” Justin, “After Scarlett passed I wanted a way to focus my grief and support my brother and his family in the same way. I found that through fitness and running with my brother on a regular basis was a healthy way to do this.”
Sponsor these amazing brothers today!
https://raceroster.com/events/2020/24250/2020-dicks-sporting-goods-pittsburgh-marathon-weekend/pledge/participant/8799544
#MovePittsburgh #marathon #raceforacause #pittsburgh #virtual #sudc #sudcteam #runner #suddenunexplaineddeathinchildhood
#pittsburghmarathon2020
The SUDC Foundation is lucky to have giving, compassionate Ambassadors all the time, but especially in these uncertain times. From making and donating masks, to gifting books and spreading kindness during social distancing, our Ambassadors and their families continue to amaze us!
#sudcambassadors #sudc #spreadingkindess #compassionate #donating #crisis #socialdistance
The current global pandemic underscores the challenges facing the death investigation system in the U.S. Greater support must be provided for adequate training, staffing, facilities, equipment and supplies to perform autopsies. This is just one of the recommendations highlighted in Unexplained Pediatric Deaths, which establishes the first ever national consensus guidelines in the U.S. to fill crucial needs to determine why unexplained pediatric deaths happen.
Read more and order yours at sudpeds.com.
Dr. Judy Melinek
Dr Rognum and his group looked at 141 infant/early child deaths and concluded "Death scene investigations illuminate uncertainty about the cause of death, especially in gray‐area cases where accidental suffocation, neglect or abuse is suspected. Knowledge about the course of events and the cause of death enhances both the child’s and the caregiver’s legal protection. DSIs should therefore be mandatory."
While the first hand experiences of death scene investigations run the spectrum in terms of quality and the interactions with families- hopefully such research will promote more training for those professionals involved to carryout such sensitive investigations with high quality and compassionate care.
https://onlinelibrary.wiley.com/doi/abs/10.1111/apa.15284
Aim This study reviewed cases of sudden unexpected child deaths in Norway to determine the significance of death‐scene investigations (DSIs) in establishing cause and manner of death, and thereby it...
At the core of the SUDC Foundation is our mission - to promote awareness, advocate for research, and support those affected by sudden unexpected or unexplained death in childhood. We are dedicated to attaining a future free of SUDC.
#sudc #awareness #mission #advocate
The SUDC Foundation promotes awareness, advocates for research, and supports families affected. We appreciate Darryl, Justin’s dad, for sharing his experience.
#sudc #sudcawareness #testimonial #childrengonetoosoon #suddenunexplaineddeathinchildhood #bereavedparents
TEAM SUDC is training hard to compete in the Dicks Pittsburgh Virtual Marathon while raising vital funds to support the SUDC Foundation. This week we shine a light on Kacie who runs in memory of her son Bryson.
Kacie shared this about running virtually, “My daughter Leila and I will run our 5K virtually, and without all the crowds and busyness of the marathon day, it will give a chance to reflect on the reason we are running and really honor Bryson in the way he deserves. To have this support system while running in honor of Bryson means everything to me." Make a difference, sponsor Kacie today.
https://raceroster.com/events/2020/24250/2020-dicks-sporting-goods-pittsburgh-marathon-weekend/fundraising-organization/19299
#MovePittsburgh #marathon #raceforacause #pittsburgh #virtual #sudc #sudcteam #runner #suddenunexplaineddeathinchildhood
#pittsburghmarathon2020
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Sudden Unexplained Death in Childhood (SUDC) occurs when an apparently healthy child beyond the age of 12 months dies without warning and without a known cause.
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Bobby Jenkins, Board Chair shares his personal commitment and passion for serving on the SUDC Foundation Board of Directors. Listen below as Bobby speaks about raising awareness of SUDC and funds toward groundbreaking medical research. #sudcawareness #sudc #suddenunexplaineddeathinchildhood #noonegrievesalone #childrengonetoosoon #parentafterloss #lifeafterloss #grief #griefjourney #inourhearts #awareness #parentsupport #familysupport #support #childlosssupport
We would like to extend our sincerest gratitude to those who participated in SUDC Awareness Month this year. Despite the challenges of the pandemic, we persevered in raising awareness through education, fundraising and undaunting kindness. We hope you enjoy this video to remind us of some of the positive highlights of March 2020. #sudcawareness #sudc #thankyou #appreciationpost #gratitude #support #noonegrievesalone #grief #parentsupport #familysupport #childrengonetoosoon
A tribute to the children we have lost and the families we serve. We remember and we will not stop until we find answers and create a brighter future for all children. https://youtu.be/WpOT1XvR0WU #sudc #sudcfaces #suddenunexplaineddeathinchildhood #sudcfamilies
Children lost to SUDC do not get the chance to create their own legacy. Please watch as some of our families reflect on their dedication to carry on in their children’s memory. If you or someone you know can relate, comment down below about your experience ⬇️ Click here to see the entire video: https://www.youtube.com/watch?v=db3mBgqQNKk&feature=youtu.be #sudc #sudcawareness #suddenunexplaineddeathinchildhood #childrengonetoosoon #parentafterloss #grief #inourhearts #awareness #parentsupport #familysupport
Earlier this month, SUDC mom and ambassador, Stephanie Zarecky, delivered an impactful testimony to the Health Subcommittee of the House of Representatives Energy and Commerce Committee on Scarlett’s Sunshine Act (H.R. 2271/ S. 1130). This act would strengthen existing efforts to better understand sudden unexpected deaths in infants and children, improve national data collection and analysis to improve prevention efforts, and support families. You can watch her testimony here. #supportsudc #legislation #scarlettssunshineact #sudc
At the SUDC Foundation, we believe no family or parent should grieve alone. Connecting families and creating a community is at the heart of what we do. Please watch as some of our families share how the SUDC Foundation helped them. How has the SUDC Foundation helped your family or someone you know? Comment down below.⬇️ #sudc #sudcawareness #noonegrievesalone #community
What is SUDC? It is the question we face most often. Please watch this short video for a clear and poignant description courtesy of Hero 4 Hire Creative. The SUDC Foundation is dedicated to funding critical research to help us prevent SUDC in the future. Please join our efforts to raise $1 million in 1 year by making a donation today using this link: https://interland3.donorperfect.net/weblink/WebLink.aspx?name=E230614&id=122 #hero4hire #video #sudc #sudcawareness #advocate #childloss #info #support #familysupport #parentsupport #grief #noonegrievesalone
The SUDC Foundation is a place for parents suffering the loss of a child to turn to connect with a community of others going through some of the same emotions. Watch this video to hear some of those parents describe what the SUDC Foundation means to them. #sudcawareness #sudc #support #childlosssupport #grievingparents #grievingsiblings #suddenunexplaineddeathinchildhood
Opening remarks by Executive Director and Co-Founder Laura Gould Crandall at the 2019 SUDC Foundation Family Retreat
Welcome Reception for the 2019 SUDC Foundation Family Retreat
In 2018, the SUDC Foundation Family Retreat brought together families grieving the loss of their precious child. Learn how you can help us empower more bereaved families to restore, reconnect, and renew by supporting the SUDC Foundation 2019 Family Retreat.
Thank you to everyone who supported #SUDCAwareness Month! You helped us raise awareness of SUDC around the world! We hope you continue with us as we strive higher for the good health of all children. Enjoy our highlights video below.
Dr. Michael Ackerman, a genetic cardiologist at the Mayo Clinic and a member of the SUDC Scientific Advisory Board, supports #SUDCAwareness Month sharing a powerful letter written by a mother who lost her 2-year-old son to SUDC. The Foundation’s Scientific Advisory Board is made up of medical professionals from a range of specialties to offer advice and provide expertise to help to serve the needs of the SUDC community. You can learn more: https://sudc.org/about-us/board-of-directors
March is SUDC Awareness Month! Please get involved as we raise awareness of SUDC all month long and honor the children gone far too soon. Please watch Awareness Month 2018 highlights! #SUDCAwareness
The newest Faces of SUDC video is now available to watch. Thank you for taking the time to watch, remember and support the SUDC Foundation. We are grateful to Paul Heywood for helping to create the video.
In 2018, your donations to the SUDC Foundation helped us do some amazing things! On behalf of the SUDC Foundation’s Board of Directors, Staff and Community, thank you for your commitment to support the mission of the SUDC Foundation. The SUDC Foundation provides all services at no cost to those it serves by the generosity of private donations and significant fundraising efforts. For more information and to donate today visit sudc.org
Therapies like EMDR can be an effective therapeutic strategy to help individuals suffering from PTSD. However, research into the mental health effects of SUDC are extremely limited. DONATE now, and help fund crucial research to better understand SUDC and how to best help families in the aftermath. https://bit.ly/2SJ7mrs
Today is #GivingTuesday! Facebook and Paypal are matching a total of up to $7 million in donations made through Facebook. Funds donated to the SUDC Foundation today will directly support our commitment to investing in groundbreaking research to help us further our understanding of the causes and ways to prevent SUDC. Please consider a donation today to the SUDC Foundation, if your donation is matched, the impact will be doubled!
Sunset memorial tribute. #sudcfamilyretreat
Welcome Reception for the first ever SUDC Family Retreat in Naples, FL. Looking forward to a wonderful weekend! #sudcfamilyretreat
Laura Gould Crandall and Heather Maher report from the National Association of Medical Examiners meeting in West Palm Beach, Florida- raising SUDC awareness of the Foundation's services to more than 500 medical examiners. #sudcawareness #NAME2018
Dedicated volunteers, like the Kratzers, enable the SUDC Foundation to promote awareness, advocate for research and support those affected. In grateful thanks to the Kratzers and in memory of Jacob. Get involved: https://sudc.org/advocacy/ambassador-program #SUDCAwareness #SUDCVolunteerAmbassadors
We are proud to share the success of our 2018 SUDC Awareness month. Thank you to everyone who participated. Such amazing efforts by our inspiring community to shine a light on this cause that is so important to us.
It's the last week of SUDC Awareness Month - Speak Your Story Video Week! In 2 minutes or less, record and post a video on social media of yourself about why SUDC Awareness month is so important to you. Please also add your video in the comments section of this post. Thank you Stephanie Zarecky for this video and all your efforts this month to create awareness for SUDC. #SUDCawareness
The newest Faces of SUDC video is now available to watch. Thank you for taking the time to watch, remember and support the SUDC Foundation. We are grateful to Paul Heywood for helping to create the video.
The SUDC Foundation Banner Project was created to raise awareness of sudden unexpected death in childhood. Our Banner traveled to 107 locations. We hope it will improve awareness of this little understood tragedy, engage community advocacy efforts, and help lead to our greater understanding and prevention of SUDC. Thanks to everyone who supported the Banner Project, we would love to hear more about your experience, comment below!
In 2017, your donations to the SUDC Foundation helped us do some amazing things! On behalf of the SUDC Foundation’s Board of Directors, Staff and Community, thank you for your commitment to support the mission of the SUDC Foundation.
The SUDC Foundation is the only organization worldwide whose purpose is to promote awareness, advocate for research, and support those affected by SUDC. SUDC is the fifth leading category of death in children ages one to four, yet SUDC receives no public funding. The SUDC Foundation provides all services at no cost to families.
Sudden Unexplained Death in Childhood (SUDC) is a category of death in children between the ages of 1 and 18 that remains unexplained after a thorough investigation, including an autopsy. Most often, a seemingly healthy child goes to sleep and never wakes up. At this time, we do not know what causes SUDC, how to predict it or how to prevent it.
This page provides a way for us to share the most current and accurate information on SUDC to date and highlight important topics for the SUDC community as a whole. It provides a way to share and exchange thoughts, ideas, images, and other content in a respectful way that fosters constructive dialogue. We expect our community to agree to disagree when necessary, but always communicate with respect and compassion. The SUDC Foundation expects our Facebook community to maintain a high level of sensitivity, especially as it relates to promoting high-quality, peer-reviewed scientific information and/or anyone’s race/ethnicity, appearance, gender, sexual orientation, religion, political beliefs, education and socioeconomic status.
Please observe the following guidelines for commenting on the SUDC Foundation’s page. Those who do not follow these guidelines will risk the deletion of their comments and/or access to the SUDC Foundation’s page.
1. Attacks are disruptive to healthy dialogue. At times, there will be a need to agree to disagree, but we ask that you remain respectful at all times.
2. We encourage intelligent, enlightened conversation and careful articulation of one’s thoughts before posting. Comments that address people using slurs or that negatively reference the sensitivities mentioned above are unacceptable and subject to immediate removal.
3. If comment threads are taken over by trolls (people who post comments specifically to start a fight, defame, divide, distract, or otherwise detract from the overall function of the community), commenting will be disabled. Trolls will be subject to immediate removal from our Facebook community.
4. Avoid minimizing or denying the importance of comments/posts from others. We all have our individual priorities and beliefs; please respect this and act accordingly.
5. Please do not use the comments section to air complaints, whether about the organization, a post, a particular comment, or the moderation of our page. Please address all such concerns to [email protected] or send us a message privately. We are a fact-driven and compassionate community and welcome disagreement, but we want to take every opportunity to expand the conversation.
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