MDA Greater Washington, DC

MDA Greater Washington, DC MDA Greater Washington: the nonprofit dedicated to curing muscular dystrophy, ALS & related diseases. MDA also provides healthcare, advocacy and education.
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This is for friends and fans of the Greater Washington area Muscular Dystrophy Association. Please let us know what's happening with you and we will keep you posted on events for MDA!

Operating as usual

Join us at the MDA Engage Inclusion Body Myositis (IBM) Virtual Symposium being held on 4/20-4/22.  4/20/20: Inclusion B...
04/19/2020

Join us at the MDA Engage Inclusion Body Myositis (IBM) Virtual Symposium being held on 4/20-4/22.

4/20/20: Inclusion Body Myositis: What is New presented by Dr. Tahseen Mozaffar of University of California.
4/21/20: Trial Outcome Measures in IBM presented by Dr. Lindsay Alfano of Nationwide Children’s Hospital.
4/22/20: Swallowing issues in IBM presented by Dr. Jens Schmidt of the University Medical Center Göttingen, Germany
Register by April 17, 2020 at https://www.mda.org/engage/ibm20

Join us at the MDA Engage Inclusion Body Myositis (IBM) Virtual Symposium being held on 4/20-4/22.  4/20/20: Inclusion B...
04/18/2020
2020 IBM Engage Virtual Symposium | Muscular Dystrophy Association

Join us at the MDA Engage Inclusion Body Myositis (IBM) Virtual Symposium being held on 4/20-4/22.

4/20/20: Inclusion Body Myositis: What is New presented by Dr. Tahseen Mozaffar of University of California.
4/21/20: Trial Outcome Measures in IBM presented by Dr. Lindsay Alfano of Nationwide Children’s Hospital.
4/22/20: Swallowing issues in IBM presented by Dr. Jens Schmidt of the University Medical Center Göttingen, Germany
Register by April 17, 2020 at https://www.mda.org/engage/ibm20

Virtual Online EventMonday, April 20, 2020 2:00-3:00pm PST / 5:00-6:00pm ESTTuesday, April 21, 2020 2:00-3:00pm PST/ 5:00-6:00pm ESTWednesday, April 22, 2020 10:00-11:00am PST/ 1:00-2:00pm EST

Join us at the MDA Engage Inclusion Body Myositis (IBM) Virtual Symposium being held on 4/20-4/22.  4/20/20: Inclusion B...
04/14/2020

Join us at the MDA Engage Inclusion Body Myositis (IBM) Virtual Symposium being held on 4/20-4/22.

4/20/20: Inclusion Body Myositis: What is New presented by Dr. Tahseen Mozaffar of University of California.
4/21/20: Trial Outcome Measures in IBM presented by Dr. Lindsay Alfano of Nationwide Children’s Hospital.
4/22/20: Swallowing issues in IBM presented by Dr. Jens Schmidt of the University Medical Center Göttingen, Germany
Register by April 17, 2020 at https://www.mda.org/engage/ibm20

Join us at the MDA Engage Inclusion Body Myositis (IBM) Virtual Symposium being held on 4/20-4/22.  4/20/20: Inclusion B...
04/11/2020

Join us at the MDA Engage Inclusion Body Myositis (IBM) Virtual Symposium being held on 4/20-4/22.

4/20/20: Inclusion Body Myositis: What is New presented by Dr. Tahseen Mozaffar of University of California.
4/21/20: Trial Outcome Measures in IBM presented by Dr. Lindsay Alfano of Nationwide Children’s Hospital.
4/22/20: Swallowing issues in IBM presented by Dr. Jens Schmidt of the University Medical Center Göttingen, Germany
Register by April 17, 2020 at https://www.mda.org/engage/ibm20

Join us at the MDA Engage Inclusion Body Myositis (IBM) Virtual Symposium being held on 4/20-4/22.  4/20/20: Inclusion B...
04/09/2020

Join us at the MDA Engage Inclusion Body Myositis (IBM) Virtual Symposium being held on 4/20-4/22.

4/20/20: Inclusion Body Myositis: What is New presented by Dr. Tahseen Mozaffar of University of California.
4/21/20: Trial Outcome Measures in IBM presented by Dr. Lindsay Alfano of Nationwide Children’s Hospital.
4/22/20: Swallowing issues in IBM presented by Dr. Jens Schmidt of the University Medical Center Göttingen, Germany
Register by April 17, 2020 at https://www.mda.org/engage/ibm20

Join us at the MDA Engage Inclusion Body Myositis (IBM) Virtual Symposium being held on 4/20-4/22.  4/20/20: Inclusion B...
04/05/2020
2020 IBM Engage Virtual Symposium | Muscular Dystrophy Association

Join us at the MDA Engage Inclusion Body Myositis (IBM) Virtual Symposium being held on 4/20-4/22.

4/20/20: Inclusion Body Myositis: What is New presented by Dr. Tahseen Mozaffar of University of California.
4/21/20: Trial Outcome Measures in IBM presented by Dr. Lindsay Alfano of Nationwide Children’s Hospital.
4/22/20: Swallowing issues in IBM presented by Dr. Jens Schmidt of the University Medical Center Göttingen, Germany
Register by April 17, 2020 at https://www.mda.org/engage/ibm20

Virtual Online EventMonday, April 20, 2020 2:00-3:00pm PST / 5:00-6:00pm ESTTuesday, April 21, 2020 2:00-3:00pm PST/ 5:00-6:00pm ESTWednesday, April 22, 2020 10:00-11:00am PST/ 1:00-2:00pm EST

Join us at the MDA Engage Inclusion Body Myositis (IBM) Virtual Symposium being held on 4/20-4/22.  4/20/20: Inclusion B...
04/03/2020
2020 IBM Engage Virtual Symposium | Muscular Dystrophy Association

Join us at the MDA Engage Inclusion Body Myositis (IBM) Virtual Symposium being held on 4/20-4/22.

4/20/20: Inclusion Body Myositis: What is New presented by Dr. Tahseen Mozaffar of University of California.
4/21/20: Trial Outcome Measures in IBM presented by Dr. Lindsay Alfano of Nationwide Children’s Hospital.
4/22/20: Swallowing issues in IBM presented by Dr. Jens Schmidt of the University Medical Center Göttingen, Germany
Register by April 17, 2020 at https://www.mda.org/engage/ibm20

Virtual Online EventMonday, April 20, 2020 2:00-3:00pm PST / 5:00-6:00pm ESTTuesday, April 21, 2020 2:00-3:00pm PST/ 5:00-6:00pm ESTWednesday, April 22, 2020 10:00-11:00am PST/ 1:00-2:00pm EST

Join us at the MDA Engage Inclusion Body Myositis (IBM) Virtual Symposium being held on 4/20-4/22.  4/20/20: Inclusion B...
03/30/2020
2020 IBM Engage Virtual Symposium | Muscular Dystrophy Association

Join us at the MDA Engage Inclusion Body Myositis (IBM) Virtual Symposium being held on 4/20-4/22.

4/20/20: Inclusion Body Myositis: What is New presented by Dr. Tahseen Mozaffar of University of California.
4/21/20: Trial Outcome Measures in IBM presented by Dr. Lindsay Alfano of Nationwide Children’s Hospital.
4/22/20: Swallowing issues in IBM presented by Dr. Jens Schmidt of the University Medical Center Göttingen, Germany
Register by April 17, 2020 at https://www.mda.org/engage/ibm20

Virtual Online EventMonday, April 20, 2020 2:00-3:00pm PST / 5:00-6:00pm ESTTuesday, April 21, 2020 2:00-3:00pm PST/ 5:00-6:00pm ESTWednesday, April 22, 2020 10:00-11:00am PST/ 1:00-2:00pm EST

Join us at the MDA Engage Inclusion Body Myositis (IBM) Virtual Symposium being held on 4/20-4/22.4/20/20: Inclusion Bod...
03/29/2020

Join us at the MDA Engage Inclusion Body Myositis (IBM) Virtual Symposium being held on 4/20-4/22.

4/20/20: Inclusion Body Myositis: What is New presented by Dr. Tahseen Mozaffar of University of California.
4/21/20: Trial Outcome Measures in IBM presented by Dr. Lindsay Alfano of Nationwide Children’s Hospital.
4/22/20: Swallowing issues in IBM presented by Dr. Jens Schmidt of the University Medical Center Göttingen, Germany
Register by April 17, 2020 at https://www.mda.org/engage/ibm20
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Join us at the MDA Engage Inclusion Body Myositis (IBM) Virtual Symposium being held on 4/20-4/22.  4/20/20: Inclusion B...
03/28/2020

Join us at the MDA Engage Inclusion Body Myositis (IBM) Virtual Symposium being held on 4/20-4/22.

4/20/20: Inclusion Body Myositis: What is New presented by Dr. Tahseen Mozaffar of University of California.
4/21/20: Trial Outcome Measures in IBM presented by Dr. Lindsay Alfano of Nationwide Children’s Hospital.
4/22/20: Swallowing issues in IBM presented by Dr. Jens Schmidt of the University Medical Center Göttingen, Germany
Register by April 17, 2020 at https://www.mda.org/engage/ibm20

03/27/2020
Muscular Dystrophy Association

Muscular Dystrophy Association

Help us continue to provide essential resources and care for those living with neuromuscular disease during this time of the COVID-19 crisis. By donating today you are supporting our MDA community and kids like our national ambassador, Ethan LyBrand. Bit.ly/SupportMDA

MDA Greater Washington, DC's cover photo
03/27/2020

MDA Greater Washington, DC's cover photo

MDA Greater Washington, DC
03/27/2020

MDA Greater Washington, DC

Thank you Prince William Professional Firefighters for being on the front lines -Just in case you know someone that “Jus...
03/26/2020

Thank you Prince William Professional Firefighters for being on the front lines -
Just in case you know someone that “Just doesn’t quite get it yet” #Local2598

Happy Friday eve DMV family! We hope that you are all doing well in this time of quaruntine. We've had the pleasure of s...
03/26/2020

Happy Friday eve DMV family! We hope that you are all doing well in this time of quaruntine. We've had the pleasure of speaking with so many of you this week and have been enjoying the homeschooling, family and pet bonding stories. Let's continue to catch up as we get through this thing together! We're looking to brighter days as we conitue to plan and prepare for muscl walk 2020 in October and are so excited to welcome it's five newest teams this week:
Spicey's Team
Team FFMD
Team Problem Solved
James Muscle Warriors
& Logan's Fan Club
Thank you for making your move this week as we continue raising much needed research for a cure!
Look ahead with us at our muscle walk 2020 website:
https://mda.donordrive.com/event/DMV2020

Hear from alumni MDA Ambassador Justin Moy about what your support means for our community and MDA Care Centers nationwi...
03/26/2020
I'm supporting Muscular Dystrophy Association

Hear from alumni MDA Ambassador Justin Moy about what your support means for our community and MDA Care Centers nationwide during these unprecedented times. bit.ly/SupportMDA

Join #MDA and help me fund research for cures for #MuscularDystrophy, #ALS and related #neuromuscular diseases.

Join us at the MDA Engage Inclusion Body Myositis (IBM) Virtual Symposium being held on 4/20-4/22.  4/20/20: Inclusion B...
03/26/2020

Join us at the MDA Engage Inclusion Body Myositis (IBM) Virtual Symposium being held on 4/20-4/22.

4/20/20: Inclusion Body Myositis: What is New presented by Dr. Tahseen Mozaffar of University of California.
4/21/20: Trial Outcome Measures in IBM presented by Dr. Lindsay Alfano of Nationwide Children’s Hospital.
4/22/20: Swallowing issues in IBM presented by Dr. Jens Schmidt of the University Medical Center Göttingen, Germany
Register by April 17, 2020 at https://www.mda.org/engage/ibm20

03/26/2020
Fairfax County’s Health Department has produced a “Coronavirus 101” presentation that features some useful information a...
03/25/2020
Video: Coronavirus 101 Health Department Presentation - English and Spanish - Fairfax County Emergency Information

Fairfax County’s Health Department has produced a “Coronavirus 101” presentation that features some useful information about COVID-19.

Currently, the webinar-style video is available in English and Spanish and can be viewed below. This presentation also is being produced in additional languages and will be posted as soon as they are available.

After watching the video if you have any specific coronavirus questions, call our Health Department Call Center at 703-267-3511; open 9:30 a.m. to 9 p.m. weekdays and 9:30 a.m. to 5 p.m. on weekends. You can also text FFXCOVID to 888777 to receive updates from Fairfax County about COVID-19 and email questions or concerns to [email protected]. This email account is staffed Monday through Friday, 8 a.m. through 6 p.m.
https://fairfaxcountyemergency.wpcomstaging.com/2020/03/24/video-coronavirus-101-health-department-presentation-english-and-spanish/?fbclid=IwAR3PKbioB1AXBtst2WtInYliExIBAetGcjHRtxpId8q9uTnkG-YTNx0Ul0I

Posted at 11:15 a.m. Fairfax County’s Health Department has produced a “Coronavirus 101” presentation that features some useful information about COVID-19. Currently, the webinar-style video is available in English and Spanish and can be viewed below. This presentation also is being produced i...

MDA Resource CenterYou don't have to navigate your neuromuscular disease journey alone – we’re here to help. The MDA Res...
03/25/2020
MDA Resource Center | Muscular Dystrophy Association

MDA Resource Center
You don't have to navigate your neuromuscular disease journey alone – we’re here to help. The MDA Resource Center is available to provide one-on-one support via phone or email for individuals and families looking for information about the diseases in our program, services, activities and more. https://www.mda.org/care/mda-resource-center

You don't have to navigate your neuromuscular disease journey alone – we’re here to help. The MDA Resource Center is available to provide one-on-one support via phone or email for individuals and families looking for information about the diseases in our program, services, activities and more.

03/24/2020

MDA Advocacy in These Uncertain Times
MARK FISHER 03/19/2020
We know families across the country, especially those in the neuromuscular disease (NMD) community, are concerned about the spread of coronavirus and its associated disease, COVID-19, and the impact on their loved ones. In these uncertain times, MDA’s advocacy team will not stop serving and amplifying the voices of those in the NMD community, especially when lawmakers and regulators are making critical decisions that affect the NMD community. MDA Advocacy in These Uncertain Times
MARK FISHER 03/19/2020
We know families across the country, especially those in the neuromuscular disease (NMD) community, are concerned about the spread of coronavirus and its associated disease, COVID-19, and the impact on their loved ones. In these uncertain times, MDA’s advocacy team will not stop serving and amplifying the voices of those in the NMD community, especially when lawmakers and regulators are making critical decisions that affect the NMD community.

The National #ALSRegistry is helping those with this disease learn about new research – research that may lead to a futu...
03/24/2020
CDC - Amyotrophic Lateral Sclerosis: Clinical Trials and Studies

The National #ALSRegistry is helping those with this disease learn about new research – research that may lead to a future without #ALS. Learn more about updates to the National ALS Registry today: cdc.gov/als/ALSResearchNotificationClinicalTrialsStudies.html

ALS Meta description needed.

We would like to show support to first reponders and our other sponsors and I hope you are able to help.  We are sending...
03/23/2020

We would like to show support to first reponders and our other sponsors and I hope you are able to help. We are sending short videos of support to our sponsors and I hope you can assist us by making a short video.
Tell us a little about yourself and what MDA means to you.
You can print out and color one of these coloring pages and hold it up or take a picture of it and send it to Charles
Please send to Charles Shreiner ([email protected])

Let's support our first responders and keep them safe.
03/23/2020

Let's support our first responders and keep them safe.

*** IMPORTANT NOTICE TO OUR COMMUNITIES ***

Please help us help you! Unless it is a case of severe difficulty breathing or illness: there is very little, if anything we can do as far as treatment for flu symptoms. We also have NO way to determine what kind of virus someone might have.

If you are feeling sick, please do not visit a fire station for evaluation. Please utilize the 911 system only in the event of severe difficulty breathing or illness if it is flu related.

Emergency rooms will not see you faster just because you are brought in by an ambulance.

There are numerous first responders across the nation who have been quarantined due to exposures to COVID-19. As we try to maintain our current levels of staffing for fire and EMS responses we cannot afford to have firefighters unable to work.

If our citizens utilize the 911 system in an informed and responsible manner, our members can remain on fire engines and ambulances where they can do the most good and continue to protect our communities.

Game Night 🎮 is launching on Saturday, March 21st at 7pm ET and will happen every Saturday from 7-10pm ET (4-7pm PT). Ev...
03/21/2020

Game Night 🎮 is launching on Saturday, March 21st at 7pm ET and will happen every Saturday from 7-10pm ET (4-7pm PT). Everyone, including game players of every skill level and watchers, are invited for all three hours or they may pop in and out anytime during the three hours of game night.
Sign up for MDA’s gaming message board at Discord https://discordapp.com/invite/VracthK
Follow MDA on Twitch https://www.twitch.tv/mda_letsplay
It’s FREE!

Do you know someone with #ALS? Encourage them to help find the causes of ALS by joining the Nat’l ALS Registry. cdc.gov/...
03/21/2020
Join the National ALS Registry

Do you know someone with #ALS? Encourage them to help find the causes of ALS by joining the Nat’l ALS Registry. cdc.gov/als/ALSJoinALSRegistry.html

Address

11800 Sunrise Valley Dr, Ste 1210
Reston, VA
20191

Opening Hours

Monday 08:00 - 16:00
Tuesday 09:00 - 17:00
Wednesday 09:00 - 17:00
Thursday 09:00 - 17:00
Friday 09:00 - 17:00

Telephone

(703) 476-5780

Website

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The Virginia Victory Games is gearing up for our 2020 event! We hope to see you come participate with us on March 7, 2020. The Virginia Victory Games is a free one-day sporting event for individuals with physical visual and hearing disabilities throughout the state of Virginia. Please comment below if you would like more information.
Hello. I have just moved to Washington, DC from London and my brother battled Duchenne. I am interested in becoming involved and would like to be a part of this community. Thank you. Please private message me with any additional information on ways to do so and upcoming events. Thank you!
Canteen 402 out supporting Fairfax County Firefighters on the first day of MDA Fill the Boot
Rest In Peace, Jerry Lewis
I upcycled our shirt from the walk into a super cute dress!!! Just wanted to share with you all!!
Looking to sell this wheelchair van. Great buy low mileage for transporting passenger in a wheelchair. Fold down motorized side door. Another family may be in need of this van.