North Carolina Down Syndrome Alliance

North Carolina Down Syndrome Alliance The North Carolina Down Syndrome Alliance empowers, connects, and supports individuals with Down syndrome, their families, and communities in North Carolina through outreach, advocacy, and education.
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Operating as usual

Sully is a volunteer host for Teen & Adult BINGO Night.  He is a high school freshman and the youngest of 3 boys. Sully ...
12/03/2020

Sully is a volunteer host for Teen & Adult BINGO Night. He is a high school freshman and the youngest of 3 boys. Sully decided to get involved with NCDSA after hearing about BINGO Night from his good friend Melanie. Sully's favorite part of BINGO is creating a social environment. Each week Sully encourages everyone to share, celebrate, dance, and have fun! #ThankfulThursday #thankyou #NCDSA #volunteer
If you are interested in volunteer opportunities visit us here: https://ncdsa.dm.networkforgood.com/forms/volunteer-information-forum

2020 CIDD “VIRTUAL” COMMUNITY TALK SERIES presents:Crystal M. Grant, JD/MSW “Advocating for Students with Disabilities”W...
12/02/2020

2020 CIDD “VIRTUAL” COMMUNITY TALK SERIES presents:
Crystal M. Grant, JD/MSW “Advocating for Students with Disabilities”
WEDNESDAY, DECEMBER 9, 2020 6:30PM – 8:00PM
Register here: https://tinyurl.com/y586e2lw
At the time of registration, you will receive a Zoom link to join the Community Talk Series. Please direct any questions to Debbie Reinhartsen, Ph.D., CCC-SLP at [email protected]
#WhatsHappeningWednesday

The Arc of the Triangle, Inc.
12/01/2020

The Arc of the Triangle, Inc.

KID'S HOLIDAY SING-A-LONG is now FREE! It starts today at 4:00 and runs for 4 weeks. We don't want to cancel it. Please join us for some good cheer from the safety of your home.
Email [email protected] for the link.

Good Afternoon,    It is with deep sadness and heavy hearts that we announce the cancellation of this year’s Triangle Ho...
12/01/2020

Good Afternoon,
It is with deep sadness and heavy hearts that we announce the cancellation of this year’s Triangle Holiday Drive thru event on December 5, 2020.
We know that this will come as an enormous disappointment, not only to the Board of Directors, Staff and Volunteers who were due to attend the event, but also all of our wonderful families.
This is not a decision we have taken lightly. The overriding concern that has caused us to make this decision at this time is that we have received news of several positive cases of Covid-19 and a suspected case among our Staff Members and Key Volunteers. They are separate cases but for our community’s safety we will proceed with caution.
Sincerely,
Christina Reaves, Executive Director

NCDSA is thankful for our families! #StrongerTogether #thankful #NCDSA #NoLimits
11/26/2020

NCDSA is thankful for our families!
#StrongerTogether #thankful #NCDSA #NoLimits

Today is the NC Down Syndrome Conference.  What sessions are you looking forward to?  See you soon! #NCDSA
11/21/2020

Today is the NC Down Syndrome Conference. What sessions are you looking forward to? See you soon!
#NCDSA

North Carolina Down Syndrome Alliance
11/19/2020

North Carolina Down Syndrome Alliance

North Carolina Down Syndrome Alliance's cover photo
11/19/2020

North Carolina Down Syndrome Alliance's cover photo

Timeline Photos
11/19/2020

Timeline Photos

Attention families in Western North Carolina!  You can post questions for your LME/MCO in the live chat during the webin...
11/16/2020

Attention families in Western North Carolina!
You can post questions for your LME/MCO in the live chat during the webinar, record a video message beforehand or email questions to [email protected].
Learn more here: https://conta.cc/3nxGfz9

Timeline Photos
11/16/2020

Timeline Photos

Come bring your Holiday cheer and volunteer with us for our 2020 Holiday Drive Thur event on 12/5. We are looking for vo...
11/16/2020
2020 NCDSA Holiday Drive Thru Party

Come bring your Holiday cheer and volunteer with us for our 2020 Holiday Drive Thur event on 12/5. We are looking for volunteers for assembling goodie bags, setting up the event and to join us for the celebration. Please email Dawn with any questions. [email protected]

NCDSA will be hosting a Holiday drive thru event for our families. Families will drive thru Santa's Workshop and have stops for picking up craft supplies, visiting characters, and stopping for pictures with Santa. Please review the available slots below and click on the button to sign up. Thank yo...

🤩NCDSA has a great line up of presenters for the NC Down Syndrome Conference being held virtually on Saturday, November ...
11/09/2020

🤩NCDSA has a great line up of presenters for the NC Down Syndrome Conference being held virtually on Saturday, November 21st

🥳Only $35 for a full day of sessions – register by Friday (11/13) to receive your Registration Packet prior to the conference.

🤩Your packet includes:
✴️Conference compendium on USB flash drive
✴️Resource materials
✴️And some swag!

💗Limited scholarships available thanks to our amazing sponsors!

🖱Register today by visiting https://www.ncdsalliance.org/conference/

The much anticipated GLOBAL Medical Care Guidelines for Adults with Down Syndrome are now published and available! Learn...
11/08/2020

The much anticipated GLOBAL Medical Care Guidelines for Adults with Down Syndrome are now published and available! Learn about the first set of evidence based, updated recommendations for families and self advocates to share with their medical providers across the US. @GDSFoundation
Register today at https://www.ncdsalliance.org/conference/

We are celebrating Chris Nikic this morning! 🏃‍♂️🚴‍♂️🏊‍♂️Yesterday he made history by becoming the first person with Dow...
11/08/2020

We are celebrating Chris Nikic this morning! 🏃‍♂️🚴‍♂️🏊‍♂️
Yesterday he made history by becoming the first person with Down syndrome to become an Ironman!
#OnePercentBetter #Inclusion #NoLimits
You can see his journey here 👉 https://conta.cc/3mXvc1I

This presentation will share information about strategies that can be used to promote health and mental wellness. Strate...
11/06/2020

This presentation will share information about strategies that can be used to promote health and mental wellness.
Strategies include:
✅Sensory techniques
✅Visual supports
✅Development of socially appropriate behaviors
Resources will be shared!
👉Register for the conference today at https://conta.cc/3mTzl6I

Families often experience anxiety when their son or daughter with intellectual disabilities begins to exhibit changes th...
11/05/2020

Families often experience anxiety when their son or daughter with intellectual disabilities begins to exhibit changes that occur during puberty. In this session, parents will learn about the most frequently identified issues and concerns of parents of tweens with I/DD and practical ways to address them. Visual tools, fun learning activities, and useful resources specifically designed for individuals with intellectual disabilities will be shared by Terri Couwenhoven.
🔷Register today at https://www.ncdsalliance.org/conference/

Behavior issues in individuals with Down syndrome can quickly become engrained, which means short-term problems often de...
11/04/2020

Behavior issues in individuals with Down syndrome can quickly become engrained, which means short-term problems often develop into bad habits that are difficult to change. In this presentation, pediatric psychologist Dr. David Stein looks at how the brain of a person with Down syndrome works, why those differences impact behavior, and how to address these problems using his positive behavior approach designed specifically for people with Down syndrome.
🔷Register today! https://www.ncdsalliance.org/conference/

David Stein is a pediatric psychologist specializing in neuropsychological testing, assessment of neurodevelopmental dis...
11/03/2020

David Stein is a pediatric psychologist specializing in neuropsychological testing, assessment of neurodevelopmental disorders, and behavioral and cognitive behavioral therapy. He has spoken nationally and internationally regarding neurodevelopment and related disorders. He is the author of several scholarly articles, chapters, and the best selling book, "Supporting Positive Behavior in Children and Teens with Down Syndrome".

REGISTER for the 2020 NC Down Syndrome Conference today by visiting https://www.ncdsalliance.org/conference/

People with Down syndrome have the right to vote. They also have the right to have someone assist them in the process if...
11/03/2020

People with Down syndrome have the right to vote. They also have the right to have someone assist them in the process if it is necessary. You can set your voter up for success by preparing and practicing before you head to the polls. #dsvotes #VotingMatters #IVoteBecause #NoLimits #NCDSA
• Find general information as well as your polling location and sample ballots at the NC State Board of Elections https://conta.cc/386DDUh
• Use visual aids such as campaign flyers and online candidate websites to choose your candidate
• Prepare to state first and last names, address, and sign your signature
• Practice filling in the ovals on the ballot with a pen
• Bring your marked up sample ballot with you to make completing the process easier

#DownSyndromeAwarenessMonth - Day 31 🌈It's your turn today!  🌟Share your #JustLikeYou picture and message in the comment...
10/31/2020

#DownSyndromeAwarenessMonth - Day 31 🌈
It's your turn today!
🌟Share your #JustLikeYou picture and message in the comments!
AND/OR
🌟Share your costume in the comments!
#DSAM #NCDSA #NoLimits #MoreAlikeThanDifferent

#DownSyndromeAwarenessMonth - Day 30 🌠🏘🎸Sam lives independently, has several jobs, volunteers, plays the guitar, and ser...
10/30/2020

#DownSyndromeAwarenessMonth - Day 30 🌠🏘🎸
Sam lives independently, has several jobs, volunteers, plays the guitar, and serves on the board of directors for #NCDSA. He is a busy guy!
#JustLikeYou #DSAM #NoLimits

#DownSyndromeAwarenessMonth - Day 29 👩👱‍♀️Emmaleigh and her best friend Emma have fun together. Their friendship began i...
10/29/2020

#DownSyndromeAwarenessMonth - Day 29 👩👱‍♀️
Emmaleigh and her best friend Emma have fun together. Their friendship began in their 2nd grade general education classroom and now they have playdates and enjoy other hobbies together outside of school.
#DSAM #NCDSA #JustLikeYou #NoLimits

10/29/2020
2020 Triangle Buddy Walk Virtual Celebration

FOR IMMEDIATE RELEASE

North Carolina Down Syndrome Alliance’s Buddy Walk Shifts to Virtual Celebration and has Record Breaking Year Despite Covid-19 Pandemic.

RALEIGH, NC (October 28, 2020): Christina Reaves, Executive Director of the North Carolina Down Syndrome Alliance (NCDSA), has announced that the NCDSA had a record-breaking Triangle Buddy Walk this year. In midst of a pandemic, the statewide non-profit raised $173,000 in 3 short months. Read more at https://www.ncdsalliance.org/news-events/twentyone-blog/tbw2020/

Watch the Video of the Epic Celebration below:
https://youtu.be/dEBlS_X-Sf0

#DownSyndromeAwarenessMonth - Day 28 💄💃👏Danni is 12 years old and is in middle school. She loves to do make up tutorials...
10/28/2020

#DownSyndromeAwarenessMonth - Day 28 💄💃👏
Danni is 12 years old and is in middle school. She loves to do make up tutorials and wishes to become a Zumba instructor when she grows up. Danni is a big sister, and she is by far the most caring, loving, wonderful sister somebody could wish for. She has her first student for dancing lessons in her little sister. She also loves to play video games with her brother. Danni is also taking a class at the school to become a babysitter.
#DSAM #NCDSA #NoLimits #JustLikeYou

#DownSyndromeAwarenessMonth - Day 27 🌞🌴🌊Penny loves to run on the beach #JustLikeYou #NoLimits #NCDSA #DSAM
10/27/2020

#DownSyndromeAwarenessMonth - Day 27 🌞🌴🌊
Penny loves to run on the beach #JustLikeYou
#NoLimits #NCDSA #DSAM

Address

PO Box 99562
Raleigh, NC
27624

General information

Website: https://www.ncdsalliance.org/ Buddy Walk: http://www.ds-stride.org/tdsnbuddywalk Twitter: http://www.twitter.com/triangledsn

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Empower, Connect & Support

Our mission is to empower, connect and support the lifespan of individuals with Down syndrome, their families and the community through outreach, advocacy, and education in North Carolina. We strive to be an effective, compassionate, and comprehensive resource throughout North Carolina. NCDSA envisions a culture in which all people with Down syndrome are empowered to achieve their full potential and live healthy, productive lives as valued citizens within the fabric of society.

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RTPSPED.com in collaboration with Duke University Law School, Children's law clinic invite you to this free webinar! www.eventbrite.com/e/legal-rights-in-special-education-registration-127556513967
Mollie is looking for a female roommate to live in an independent setting. Age between 22 and 40. Mollie, before COVID, worked a part time job. She is participating with GiGis, NCDSA, Chapel Hill PR, is part of a bookclub that meets (zoom) every week. Mollie is an officer and founding member of Best Buddies program at NC State. She loves to attend dances (pre-COVID). Pre-COVID she entered the baking contest and jewelry contest at the NC State fair and won many Blue Ribbons. As we all know, as we get older we need to think about the "what-ifs" and the wheres and hows. Mollie has always been fairly independent, even going to college out of state. Mollie has taken to the independence quite well. Due to a health problem, she has an aid come in to check on her, but other than that travels around Raleigh in the accessible Raleigh Transportation taxi. Mollie has a small puppy, Bella, that LOVES attention - very friendly. Please PM me if you have a daughter and would like to consider this option.
checking in for Triangle Buddy Walk. Go Team Rockin' Rosabelle!
I encourage everyone to do a fundraiser on their page! I created one this afternoon explaining that the triangle Buddy Walk thru the Down Syndrome Alliance would be virtually this year and that I feared it would not get as many proceeds as normal. I have almost $300 in donations within a few hours! Y'all get busy posting .... you know it's for a great cause! Pic of my daughter, just because she is sooooo purdy!!
In 1999 the Special Olympics World Games were held on the Meredith College Campus. The headliner entertainment were Peter, Paul and Mary (I have the program too signed by Peter and Paul). Mid-Poster is a picture of David Crabtree and Pam Saulsby of WRAL who were the announcers for that evening.
Any families in Fayetteville, NC? My daughter, a 2nd Lt. at Fort Bragg and a sibling to our youngest with Down syndrome, is looking to connect with families in the Fayetteville area. She is new to the area, a little homesick, and misses her brother terribly. She is willing to babysit and offer moms some respite time. Private message me if you live in the area and are interested.
VERY IMPORTANT! Parents and caregivers, you will be meeting soon if you haven't already to create your child's "Online Instruction Service and Support Plan for Students with Disabilities". We just did. On this form is a section "Supports for family during online instruction" and we shared that without a 1:1 aide (an "e-helper") that our son cannot complete the goals of his IEP, and thus we requested someone and wanted it documented on this form. They pushed back. We argued (politely). We made it clear that he cannot do his computer work without help. They pushed back on writing this request on this form. We insisted. They refused. It was added to the meeting minutes (not what we agreed), under explanation of actions refused. Please, we all must unite and make our requests public and known. Push for this. They say they don't have the teachers, and I say then we don't have the education nor the IEP. Many of our children MUST have an adult or e-helper to fulfill their IEP goals. And many of us work full time. We have to make our voices heard. I understand that Wake county is in a tough position. And so am I. It is 100% WRONG to ask families to stop working in order to help their child learn, and/or to force us to hire someone to do so because the community supports (YMCA, etc) cannot help our kiddos. I am livid and frustrated and feel like we are being taken advantage of! I'm also hopeful that together we can initiate support and change. Thoughts?
You guys rock! Henry may not look like it, but he is loving his sign! Can’t wait for the pandemic to be over so we can play with our new friends!
Happy Friday! Hope it’s ok to post this here. Lindsay’s March loss of job led to her new venture. She builds & decorates birdhouses with a little help from friends. Donations she receives are in turn donated to non-profit groups at the end of each month. April’s $500 went to Special Olympics NC, May’s $1000 was donated to Miracle League of the Triangle. June’s recipient is North Carolina Down Syndromes Alliance! 💙💛 For more info, www.WingsNC.com or If You Had Wings on FB. (And we’re always looking for guest artists.)
Are there any local Down Syndrome Networks/Groups that I can be a part of?? I am in the Wake Forest Area and would love to get Newletters or know about the local groups...
Thank you! We loved the sign!! Mollie is just beaming! Mollie was one of the original members of the TDSN!