Avery's Angels Gastroschisis Foundation

Avery's Angels Gastroschisis Foundation AAGF is a foundation dedicated to research, awareness, and support for patients and families affected by Gastroschisis. We are an all-volunteer 501(c)3 non-profit and depend on donations and volunteers to accomplish our vital mission.
Gastroschisis, a disease that affects 1 out of every 2229 babies in the US according to the CDC 2004-2006 statistics @ http://www.cdc.gov/ncbddd/features/birthdefects-keyfindings.html We are an International organization dedicated to all things gastroschsis: support, awareness and research. Currently we provide support to families and survivors from diagnosis to adulthood as well as angel (loss) families, promote research and awareness. We have strong connections with the NBDPN, CDC, several major Children's hospitals and to our best to help facilitate access and information to those who are seeking and needing it. Some of our programs include financial assistance or promotion for our families having difficulties accessing specialized care, carepackages for expecting parents, comfort gifts for patients with long term issues or readmissions, comfort gifts and financial assistance to families who have lost gastroschisis warriors, awareness day outreach programs and events, RMH dinners, local outreach and support via our Hub (regional leaders) presence and speaking engagements at medical and research conferences among many others. Rates of gastroschisis have been increasing for some time. Statitics published by the CDC in 2009 reported 1 in 2500 births; the 2010 figures are 1 in 2229. Most commonly, infants with gastroschisis are born with their intestines outside of their abdomen, but other organs may be exposed as well, and surgical intervention is always required. While 90% of the affected infants survive, 10% are unable to due to gastroschisis complications or related defects and infections. The medical community still does not know what causes gastroschisis but we are on a mission to change that. Be an Avery's Angel (TM): spread the word and get involved in any capacity you can, big or small. We are always in need of volunteers and monetary donations of any size. Please contact [email protected] for more information. Other ways to support gastroschisis efforts: -donate blood, plasma or platelets -support your local Ronald McDonald House Follow us on twitter at Averysangels, our Cause page and our other Avery's Angels support pages. We also have international community pages for Canada, the UK and Australia. We encourage all to post their questions and support. To register for support or become a volunteer please follow the links listed on the page. The information provided by Avery's Angels® is not provided as a professional service or medical advice, diagnosis or treatment for specific patients. It is not a substitute for professional medical care, and if you have, or you suspect you may have, a health problem you should consult your health care provider. You should not disregard professional medical advice, or delay in seeking it, because of something you have read on this page, and never rely on information on this page in place of seeking professional medical advice.
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Operating as usual

Oscar Ellis was born on the 29th of July 2020 with gastroschisis. He was 3 weeks early and they successfully got all of ...
09/18/2020

Oscar Ellis was born on the 29th of July 2020 with gastroschisis. He was 3 weeks early and they successfully got all of his bowel back into his stomach straight away. He was 4 pound 6 and is now 7 pound 9. He spent 2 weeks in NICU and is now 6 weeks old. He is one chunky monkey! 💚

Elijah was born at 36 weeks and 6 days. On Nov 1st. He was born via emergency c-section at Forsyth Hospital then was tak...
09/18/2020

Elijah was born at 36 weeks and 6 days. On Nov 1st. He was born via emergency c-section at Forsyth Hospital then was taken immediately to Brenners Hospital by the outstanding NICU team to undergo his surgery. The team was able to get everything in with that one procedure and close his incision that same day. While in the NICU, we watched him tolerate failed PICC line attempts, get pricked on his heel everyday to find out what his body needed so they could make his IV food, he received a blood transfusion to perk up is weak body and handled everything with minimal pain relief. He spent a total of 48 days in the NICU. This is our handsome Gastroschisis Warrior. He will be 2 in November. He is extremely smart, and polite. He is so full of life.

Neveah-Mae was born on the 11th of June 2020 weighing just 4lb5 She had her closure surgery a couple of hours after birt...
09/16/2020

Neveah-Mae was born on the 11th of June 2020 weighing just 4lb5 She had her closure surgery a couple of hours after birth and spent 25 days in hospital. She is now 3 months old and is one happy cheeky little girl. 💚

Julian is our little gastro warrior. He has shown us true strength. He was born at 36 weeks due to me having high blood ...
09/07/2020

Julian is our little gastro warrior. He has shown us true strength. He was born at 36 weeks due to me having high blood pressure issues via emergency c - section. He was immediately taken to the NICU and had a silo placed. He had his full closure surgery 5 days later but he had a 4 month long stay in the NICU due to having a narrow passage way and feeding issues. He was eventually able to come home with no more air way issues and a g- tube placed. He only needed to use the g- tube for 3 months and he started regularly eating on his own. He has been happy and healthy little man ever since. I can't thank the doctors and nurses at Rush University Medical Center in Chicago enough.

Grayson was born at 36 weeks gestation at 4lbs 7oz and we had already known about her condition before she was born. The...
09/07/2020

Grayson was born at 36 weeks gestation at 4lbs 7oz and we had already known about her condition before she was born. The surgeons originally planned to use a silo bag to slowly incorporate her bowels back into her tiny body, however they decided to go ahead and put everything back in the day of her birth. This caused her belly to become severely distended and they had to preform another surgery to undo what they had done, and go with the original plan. A few days later they tried again and succeeded.
Eventually the surgeons let me try to feed her, I was using my stored breast milk but since I have Schögrens Syndrome (causes the immune system to attack the glands that secrete liquids like tears, saliva and apparently breast milk), I wasn't producing like I should have been and I was ultimately torturing myself to try to produce more than 10ml, so I decided to stop and just bottle feed her what I had stored. It completely broke my heart; I felt like I had failed her already. I know it wasn't my fault but it felt like I could have tried harder than I already was.
The surgeons were so excited that she could handle the tiny 5ml they gave her, that they decided to once agin cut corners and rush on in and up her feeds by 5ml a day. This sent her digestive system over the edge and she started throwing up, having constipation, and all other sorts of issues. So, they stopped feeding her. They said they would wait until Monday (it was Wednesday) to try to feed her again and that way her digestive system would have a break. They only waited until Friday. Gracie was given 5ml for two days, and then upoed to 10, and the nurses jumped up to 20, then back down to 15, and then back up to 20. This messed poor Gracie's feeding schedule up terribly and she would stop eating after 15ml, and clamp her jaw shut to prevent any more from being fed to her.
The surgeons said she needed to be at 25ml by the end of the week and if she didnt reach that, they would shove a feeding tube up her nose and force her to have it. I absolutely hated this idea and I fought them off for as long as I could, trying to explain to them that she wasnt ready to drink that much, she was on her schedule and not theirs. They eventually put it in anyways. She keeps throwing up because of it, even if its a constant flow of small amounts over 24hrs. Her poor stomach is just so upset because the tube is causing mucus to build up in her tummy. This is where we are at now. It has been 6 weeks and 4 days and still no sign of when she gets to come home. I just want her home.

This is Aubree Jane! She was born on August 21, 2020 at 35 weeks and 3 days weighing 4lbs 15oz! She was born via emergen...
09/04/2020

This is Aubree Jane! She was born on August 21, 2020 at 35 weeks and 3 days weighing 4lbs 15oz! She was born via emergency csection due to distress and decreased fetal movement. She was taken immediately to the NICU and the surgeons were able to tuck all of her bowels back in! She didn’t need any surgery or a silo. She’s so close to being able to come home! Shes our little miracle. 💚

William (Strong willed warrior) was born 5 weeks early due to spontaneous labor. He has closure surgery an hour after bi...
09/04/2020

William (Strong willed warrior) was born 5 weeks early due to spontaneous labor. He has closure surgery an hour after birth. He stayed in the NICU 38 days and has had no further complications. At 3 years old he is running, climbing and wrestling with his big brother. I am so grateful that our story is happy now, it was scary for a long time.

Mihael was born in the 32nd week with Gastroshisis, in Zagreb,Croatia.With just 2.46kg and 47cm height he was transporte...
09/04/2020

Mihael was born in the 32nd week with Gastroshisis, in Zagreb,Croatia.

With just 2.46kg and 47cm height he was transported to the NICU in Childrens hospital, and had his operation within 2 weeks.

Now he is 7 months, healthy, playful and as cute as he can be!

On May 16th 2013 we welcomed this sweet little girl to the world with quick kisses before she was whisked away to the OR...
09/04/2020

On May 16th 2013 we welcomed this sweet little girl to the world with quick kisses before she was whisked away to the OR. She was born 4 weeks early with the majority of her large & small intestine outside of her body. She has been through so much, from developing harlequin syndrome, reverse peristalsis, and a life threatening disease called necrotizing enterocolitis, to undergoing three surgeries, the last of which she was cut from side to side and it took doctors 6 days to stabilize her after losing twice the total amount of blood from her body throughout the week. She has been intubated, extubated and intubated again, experienced severe withdrawal from morphine, and had more bloodwork, spinal taps, x-rays & ultrasounds than most people have in a lifetime. She has been on so many different medications that at one point they almost sent her to Boston because her liver could not keep up. As her parents we had to make arrangements to stay 3 hours away should she end up needing a liver transplant. We watched as over 20 of her nursey neighbors came & went. We watched as a few never got to go home. Balancing work, the NICU, the kids at home, a house, bills and relationships was hard, but not NEARLY as hard as watching helplessly as our daughter fought to get better. 89 days later we finally got to take her home with us. Today she is a happy & healthy 7 year old who keeps us laughing every day!

Carryna was born at 34 weeks and spent 60 days in the NICU. She is now a very active 16 year old that doesn't let her ro...
09/04/2020

Carryna was born at 34 weeks and spent 60 days in the NICU. She is now a very active 16 year old that doesn't let her rough start to life slow her down.

This is my little warrior Evelyn Mae, we found about about her gastro at my 20 week anatomy ultrasound, there was so muc...
09/04/2020

This is my little warrior Evelyn Mae, we found about about her gastro at my 20 week anatomy ultrasound, there was so much panic and worry in my mind until she was born at 36 weeks and 1 day. She spent 28 short days in the NICU and had been flourishing ever since! She now 1 years old and as happy and healthy as she could be! We’re so proud of our Gastro Warrior!

Our sweet Grace was born at 36 weeks, 4 days. She was born via c-section and was taken immediately by the outstanding NI...
09/04/2020

Our sweet Grace was born at 36 weeks, 4 days. She was born via c-section and was taken immediately by the outstanding NICU team to undergo her procedure. With the help of a silo bag, her intestines were put back into her tiny abdomen within 48 hours. While in the NICU, we watched her tolerate failed PICC line attempts, she received a blood transfusion to perk up her weak body and handled everything with minimal pain relief. She spent 32 days in the NICU and since having her home, we’ve been so incredibly lucky to have such few complications. We are so in love with our gastroschisis warrior. These past two years have been full of blessings.

Harper was born August 11th and immediately had her first procedure to repair most of her defect. The remaining bowel we...
09/04/2020

Harper was born August 11th and immediately had her first procedure to repair most of her defect. The remaining bowel went into a silo for a few days and by Friday, August 14th she had full closure surgery. We are currently on day 24. Harper was moved to a step down room on August 29th. We are off TPN and lipids, and just reached our goal feeds of 70 ml feedings every 3 hours. Today, September 4th is Harper’s official due date. Keep us in your thoughts as we hope to go home this week!!!

We are pleased to announce the 2020 Roman Jax Nguyen Scholarship recipient, Mikayla Boyd.Avery’s Angels® Gastroschisis F...
09/04/2020

We are pleased to announce the 2020 Roman Jax Nguyen Scholarship recipient, Mikayla Boyd.
Avery’s Angels® Gastroschisis Foundation is pleased to award Mikayla Boyd with the 2020 Roman Jax Nguyen Scholarship in the amount of $500 for her college studies at Grand Valley State University in Communications.

We carefully review applications annually for someone who is an exemplary candidate, someone who not only is academically excellent, but also actively and authentically engaged in their community in a positive way. And, we are excited to announce that Mikayla is the fourth Gastroschisis survivor to be awarded this scholarship.

To read more about Mikayla’s story and Avery’s Angels® Gastroschisis Foundation’s Roman Jax Nguyen Scholarship, please visit our website at: https://averysangels.org/2020-scholarship-recipient

This little guy Zarar (Means Warrior) was born at 33 weeks with gastroschisis & IUGR, weighing 2.8lbs. It was an emergen...
09/04/2020

This little guy Zarar (Means Warrior) was born at 33 weeks with gastroschisis & IUGR, weighing 2.8lbs. It was an emergency c section due to dilated bowels.He had a 113 days of NICU+Paediatric ward stay & had two surgeries at one & two days old. First surgery was to try to close him up with ended up making the hole bigger & silo placed. Second surgery was to fix a perforated bowel. We are looking at two more surgeries down the road.
Zarar is now 15mo adjusted, he’s still so tiny at 16.5lbs but so might & fierce. We are battling with feeding & weight issues. Hes constantly gagging & vomiting & He’s only able to eat fine purées in very small quantities But I’m sure it will come too with time. He started walking at 1yo and now keeps us on toes. He’s trying to talk as well. He’s really smart & intelligent. I have never seen a baby so strong & resilient like zarar. He’s the brightest & friendly baby that we are so proud of.

This Nicu journey is extremely hard but it’s all worth it, seeing your baby defying the odds and pulling through. I was given the suggestion of having him aborted as he might not have any quality of life seeing how little he was growing inside the womb; but our little warrior proved Himself and his strength.

Cora Mae Stahlman was born April 15th 2019 at 34 weeks with gastroschisis. She had a long 7 month stay at the Akron Chil...
09/04/2020

Cora Mae Stahlman was born April 15th 2019 at 34 weeks with gastroschisis. She had a long 7 month stay at the Akron Children’s Nicu. Cora had her first surgery at 80 days old. She had a total of 6 surgeries over her stay and we went home with a broviac & a gtube. We have our amazing home nurse come every Monday to do dressing & cap changings,blood draws and check her weight. She is now almost 16 months and we are still on tpn every night for 12 hrs and gtube feeds for 13 hrs a day. We are so thankful for the care we got at Akron Children’s Nicu and the care she is still receiving! Cora Mae is such a strong little girl and we are so proud at how far she has came!💚

This is my beautiful warrior Victoria. I found out at my 20 week ultrasound she has gastroschisis. I got induced and del...
09/03/2020

This is my beautiful warrior Victoria. I found out at my 20 week ultrasound she has gastroschisis. I got induced and delivered vaginally at 37+3. Victoria was born with her small and large intestines, stomach and, appendix outside her body. On July 5 she had her surgery to close her stomach. On July 8 they took her off the breathing tube and I got to hold her for the first time. Victoria sure took her sweet time to start feeds exactly 28 days. But when she started she didn’t stop and after 56 days in the hospital we went home. She is 2 months old and shows us everyday how strong she is we are so glad she’s home.

Sweet Paityn just joined the world on the night of August 31st, 2020. As we are only just joining this Gastroschisis fam...
09/03/2020

Sweet Paityn just joined the world on the night of August 31st, 2020. As we are only just joining this Gastroschisis family and NICU journey we are overwhelmed by her strength and the support from those around us. Paityn had a successful surgery an hour after birth and they are hopeful for a smooth process going forward. Bless all NICU babies during this special month, especially those with Gastroschisis.

Haylee was born at 36 weeks via c section after our doctor admitted us due to her acting “sluggish”. She made her appear...
09/03/2020

Haylee was born at 36 weeks via c section after our doctor admitted us due to her acting “sluggish”. She made her appearance at 11:14am on June 5th, 2019 and weighed only 4lbs 12.5oz. After 8 days, she finally had surgery to get sewn up. And after 47 days in the NICU, we finally got to come home. She’s about to be 15 months old, and as sassy as the day she was born.

This is our Gastro Warrior, his name is Chase. Chase was born with Gastroschisis, a diaphragmatic hernia and a accessory...
09/03/2020

This is our Gastro Warrior, his name is Chase. Chase was born with Gastroschisis, a diaphragmatic hernia and a accessory spleen. The doctors predicted that he would be in the NICU for 3-6mo as this was something they had never seen before and were unsure how well he was going to recover. He only spent 31 days in the NICU and went home on his 1 month “birthday”. He is now almost 6 months old and he is doing wonderfully. He is so happy and so full of life, we are so blessed to have such a miracle. According to our doctors he is the only reported case in the entire world to have both defects and they are blown away with his recovery and his recovery time. This experience has been hard at times, but I wouldn’t trade our warrior for anything. Sending all of our love and positive vibes to all other survivors and families of those that have lost a Gastroschisis warrior. You are all warriors! 💚💚💚

This was Sage when she was first born and this is Sage now. It’s hard for me to even look back at these pictures now, bu...
09/03/2020

This was Sage when she was first born and this is Sage now. It’s hard for me to even look back at these pictures now, but she is so unbelievably strong. She was born 7 weeks early and had a 26 day nicu stay. Her closure was right after delivery. Since then she’s had no issues and she’s doing amazing. Our little warrior 💚

Born a tiny little princess staying 69 nights in her tiny little room in NICU. NICU babies are true miracles from God. T...
09/03/2020

Born a tiny little princess staying 69 nights in her tiny little room in NICU. NICU babies are true miracles from God. They are true survivors against some of the harshest diseases. Please say a prayer for all the NICU babies tonight’s as it is the toughest times for families. Spread awareness about NICU 💚

Serenity Rose Garza was born 12/18/2014 with Gastroschisis and amontic band syndrome. She stayed in the NICU for 4 and a...
09/03/2020

Serenity Rose Garza was born 12/18/2014 with Gastroschisis and amontic band syndrome. She stayed in the NICU for 4 and a half months. She is now five years old and is such a blessing to us all. She is smart, funny, and doesn't let anything stop her from doing anything she wants. Her dad, brother, and mom love her so much!

Your support means everything to us!  💚
09/03/2020

Your support means everything to us! 💚

Alannah was born with Gastroschisis at 36 weeks only weighing 4 lbs 11 oz. She had full closure at birth and an ileostom...
09/02/2020

Alannah was born with Gastroschisis at 36 weeks only weighing 4 lbs 11 oz. She had full closure at birth and an ileostomy reversed during her 103 day NICU stay. Throughout her first year of life, she was admitted 4 times for bowel obstructions. She is now 14 months old and is thriving! We are praying for no more surgeries or any further bowel obstructions. She is full of life and the strongest little girl I have ever known! #gastroschisisstrong #NICUwarrior

Alexis was born on Christmas Eve 2019 at 36w 5d. She had her closure on 1/3. Thankfully she had a short 41 day NICU stay...
09/02/2020

Alexis was born on Christmas Eve 2019 at 36w 5d. She had her closure on 1/3. Thankfully she had a short 41 day NICU stay. She is such a fierce warrior and amazes us everyday. 💚

Matteo was born at 38 weeks 3 days. He was born via emergency c-section after Mommy went in shock because of induction m...
09/02/2020

Matteo was born at 38 weeks 3 days. He was born via emergency c-section after Mommy went in shock because of induction medications. He was born with all intestines and left testicle outside of his body. To make him an extra special strong warrior, he was also born with a butterfly vertebrae. Matteo has a really strong personality that went against all doctors predictions and was discharged after 21 days. Even after came home, he was still showing off how he doesn’t follow rules and that he’s got it this! He keeps growing and thriving 💚💚

It means so much to all of us!  💚
09/02/2020

It means so much to all of us! 💚

Avery's Angels Gastroschisis Foundation's cover photo
09/02/2020

Avery's Angels Gastroschisis Foundation's cover photo

My little man was born on the 29th of the 4th 2020. When I was 12 weeks pregnant I found out my beautiful little boy had...
09/01/2020

My little man was born on the 29th of the 4th 2020.
When I was 12 weeks pregnant I found out my beautiful little boy had gastroschisis of course like anyone else I was panicked and didn't know what to think. But after a while and joining alot of the gastro baby pages I finally got my head around it only to find out at 20 weeks that my little man also had Spina bifida I was told he was brain dead and would have no movement from the waist down I got a second opinion and made the best choice of my life and went ahead with my pregnancy my little boy was born!! Defying all odds he is definitely not brain dead and also movies and kicks his little legs this is brayson he is now 4 months old and each and every day he is still defying all odds!

Josephina was born at 36 weeks and 0 days after a failed NST. She was born at 7:48pm on 11/5/2018, via emergency c-secti...
09/01/2020

Josephina was born at 36 weeks and 0 days after a failed NST. She was born at 7:48pm on 11/5/2018, via emergency c-section and was in the NICU for 78 long days. Her first year was a lot of staying at the hospital, but as of now she is doing well at home. Our next goal is working on her tube feeds.

We are honoring and celebrating all of our NICU families this month!  We would love to share your stories and memories a...
09/01/2020

We are honoring and celebrating all of our NICU families this month! We would love to share your stories and memories as we go. To kick things off, would you like to introduce your NICU warrior?

Please send your story to: https://averysangels.org/social-media-posts-3/#more-4772

Address

PO Box 58312
Raleigh, NC
27658-8312

General information

Providing Support, Raising Awareness and Promoting Research for Gastroschisis patients, past current and present globally. The information provided by Avery's Angels® is not provided as a professional service or medical advice, diagnosis or treatment for specific patients. It is not a substitute for professional medical care, and if you have, or you suspect you may have, a health problem you should consult your health care provider. You should not disregard professional medical advice, or delay in seeking it, because of something you have read on this page, and never rely on information on this page in place of seeking professional medical advice. For the liability and protection of the organization and because Avery's Angels ® is a registered trademark, any project, volunteer work and/or efforts to raise funds using, pertaining to or linked to the name Avery's Angels or Avery's Angels ® Gastroschisis Foundation must be prior reviewed by the governing board and leadership team. Action may not be taken by means of reporting indented events, volunteer work/efforts, fundraising or any affiliated action/work linked to or pertaining to Avery's Angels ® to mass media, media, social networking and or otherwise without confirmed approval. Any work done under or affiliated with the organization in any capacity found to be used outside of the approval shall warrant further action of or including legal recourse, dis-membership, dropping from efforts of the organization and/or blocking from affiliated social networking sites. Further, any use of trademarked or protected images by Avery's Angels ® Gastroschisis foundation or Megan Turcotte without expressed written approval for personal, professional or on behalf of Avery's Angels ® Gastroschisis Foundation will warrant legal recourse, dis-membership and/or blocking from affiliated social networking sites. Any funds raised by illegally obtained and used images shall require full reimbursement for all raised funds under the affiliated and owned images. Should there be any legal, personal and/or otherwise damage done during the course of fundraising, volunteer, or affiliated work pertaining to Avery's Angels ® or Avery's Angels ® Gastroschisis Foundation and said event was not prior approved by the governing board and leadership of AAGF, the organization will not and cannot be held accountable for any legal recourse or assistance. The organization cannot be held responsible for any damages, personal or financial of actions affiliated with Avery's Angels ® or Avery's Angels ® Gastroschisis Foundation during actions, events or assumed volunteer work that has not been prior approved by the governing board. Further, the organization reserves the right to seek legal and financial recourse and reimbursement for the public use of its name without prior approval and any damages assumed or the compromise of integrity and good standing of Avery's Angels ® or Avery’s Angels ® Gastroschisis Foundation from such issue. If there are any confusions, questions or concerns about using, working on behalf of, in or affiliated with Avery's Angels ® Gastroschisis Foundation should contact [email protected] or 1855MYAVERY

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Avery’s Angels (R) Gastroschisis Foundation was created to support gastroschisis research, awareness and support for patients and families affected by gastroschisis, world wide.

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Comments

My oldest sister was born in April of 1985 with a life-threatening defect with her intestines outside of her body, wrapped around her neck. She spent the first year of her life in the hospital fighting and surviving Gastroschisis. You can find her story in Healing Children 💛 One of the coolest things about my sister is that she doesn't have a belly button 😊 Here's to all the children born with #Gastroschisis! You all are some of the STRONGEST humans 💛 Singer/front woman #HeidiShepherd was also born with Gastroschisis/part of the #NoBellyButtonClub. She proudly shows off her scar on stage across the world regardless of the millions of judgmental people out there.
This is my little gastro warrior prince Alexander he was born at 37+4 via a planned induction he was born vaginally with his large&small bowel out as well as his stomach he had a full reduction (closure) within the first 30 minutes of birth we are now on day 22 and have just moved up to 8 ml an hour we have jumped back and forth in the last week going from 5 to 6 back to 5 and now we are at 8 and my poor little dude is just not handling it well at all we have alot of vommits but the doctors just want to push through and get his feeds up he's in alot of discomfort most of the day and it is so heart breaking to watch and not be able to do anything to help him. I am so proud of this little miracle he is so strong and resilient and has come so far we expected a minimum of 30 day stay but it's looking like it's going to be much longer I am just great full that's he's here he's strong and I get to hold him each day and remind how loved he truly is
Our little gastro hero Hunter,turns 7 today
Hey , I have a question my daughter is sick but she doesn’t have a fever her temp was 99.1 & she’s teething really bad that her top teeth are all coming in at the same time. everytime I put like a receiving blanket over her she starts burning up & I take it off she’s starts shivering. I gave her 1.25ml of Tylenol & put orajel on her gums. I don’t drive right now & nobody else in my house does either so taking her to the hospital would be out of the question Bc lyft is unavailable right now. What else should I do in the mean time ? Anybody please help I could really use the help
I am hosting a Cards for a Cause fundraiser to support the Avery’s Angels Gastroschisis Foundation. This cause is dear to our hearts as our son Pearse was born with this rare birth defect. For his birthday this month we’d like to make a donation to Avery’s Angels in his name. Your purchase sends $13 to Avery’s Angel Gastroschisis Foundation 💚 💚 Here's the scoop: 💚 You buy a box of cards for $30 💚 You get 30+ cards 🙌 💚 You help save the post office AND support an amazing cause! Offering contact free pick up or delivery in Douglas County, CO! Can also be shipped anywhere in the US 🥳👇😉 ✨ Think: Birthdays, Christmas, Just Because, Box for yourself to have cards on hand and avoid a trip to the store.... All of the above! There are 5 different boxes available! Comment below if you want the link to check them out💌 THANK YOU! Check out this video to see which cards come in each box: https://youtu.be/yBRJi1bhnu8
Hello Family, just a quick question. Has anyone had a situation where 2 cousins had babies and both has Gastrochsis?
Thank you Avery's Angels for the unexpected goodie bag!!!! Bridger was so excited to receive this in the mail the other day 💚
New to the group not sure if this is allowed delete if not.. just had a question my daughter was born w. Gastroschisis & is now 7 and thriving..but she from day one after starting solids has gotten pretty constipated and we have tried and done so many different things it is unreal and now we have finally got referred to someone but still won't be talking w. A dr. Until September.. so my question is does anyone elses child or themselves that were born w. This have any constipation issues and what have you done to help and keep them or you regular?
This group has helped me for over six years. They send me a package and gas card and helped me through so much. Thank you! Here is my now 6 year old girl. I kiss her belly button and tell her it’s my favorite in the world literally everyday! These kids are warriors. She still deals with a lot of pain but she is a trooper. My fierce one. My wild one.
💚 💚💚💚💚HAPPY NATIONAL GASTROSCHISIS DAY 💚💚💚💚💚 Dino Nikolas Ramirez Dumont was born on November 29th 2017 6 weeks early. I’ll never forget the day we found out Dino had something going on with him. My very first ultrasound appointment And what should have been sheer joy and excitement quickly turned into fear and the unknown. I was told he could possibly have Gastroschisis. An abdomen development disorder that left his intestines growing on the outside of his body. I had never heard of this rare disease before. Apparently it’s not as rare as some may think. 1 in 2,000 babies get it. And Dino was one of them. We spend 90 long days in the Nicu. Every single day this little boy opened his eyes and made sure we knew he was strong and ok. We had many ups and downs but we were some of the lucky cases. He never had to lose any of his intestines and he has been healthy and strong since. Today We celebrate all the Gastroschisis babies that have been born and that will be born with this. I pray for the strength of all the babies and their parents that have a bumpy unpredictable road! May they be as lucky as we were. Cheers to all the parents with gastroschisis babies. We are survivors.
We Thank God each and every day from baby jay. From 2lb to 77lb he is almost ten years old very smart and an amazing honor student even though he get on my last nerve. He was the best Christmas gift ever 💚💚💚💚 proud grandma 👵
For all the worried pregnant moms. Stay positive. Twins!!! The left handsome boy is my #gastrobaby. Happy awareness day!