KCCure - Kidney Cancer Research Alliance

KCCure - Kidney Cancer Research Alliance Kidney Cancer Cure is a grassroots organization dedicated to funding research to find a cure for kidney cancer. KCCure is a Virginia registered tax exempt 501c3 organization.

Our EIN number is 81-2067843

Our EIN number is 81-2067843

Operating as usual

To all who celebrate - Enjoy your Day!
09/06/2021

To all who celebrate - Enjoy your Day!

To all who celebrate - Enjoy your Day!

FDA approves the combination of lenvatinib (Lenvima) plus pembrolizumab (Keytruda) for first-line treatment of advanced ...
08/11/2021
FDA approves the combination of lenvatinib (Lenvima) plus pembrolizumab (Keytruda) for first-line treatment of advanced renal cell carcinoma (RCC) - KCCure

FDA approves the combination of lenvatinib (Lenvima) plus pembrolizumab (Keytruda) for first-line treatment of advanced renal cell carcinoma (RCC). This is the fifth combination treatment to be approved for advanced RCC and represents an important step forward in the fight against kidney cancer.

On August 10, 2021, the Food and Drug Administration approved the combination of lenvatinib (Lenvima) plus pembrolizumab (Keytruda) for first-line treatment of adult patients with advanced renal cell carcinoma (RCC). Pembrolizumab is an anti-PD-1 checkpoint inhibitor that helps the immune system det...

Thirty years ago, there were no FDA approved treatments for kidney cancer. Today, there are seventeen approved therapies...
08/09/2021

Thirty years ago, there were no FDA approved treatments for kidney cancer. Today, there are seventeen approved therapies, with more on the way. Learn more at KCCure.

Thirty years ago, there were no FDA approved treatments for kidney cancer. Today, there are seventeen approved therapies, with more on the way. Learn more at KCCure.

Little research is aimed at improving surveillance scans for metastatic kidney cancer - leaving patients feeling anxious...
07/22/2021

Little research is aimed at improving surveillance scans for metastatic kidney cancer - leaving patients feeling anxious about their care. KCCure research grants are focused on changing this!

Little research is aimed at improving surveillance scans for metastatic kidney cancer - leaving patients feeling anxious about their care. KCCure research grants are focused on changing this!

Our grants are evidence based and patient driven. KCCure surveys help reveal gaps in care that are missed by providers. ...
07/20/2021

Our grants are evidence based and patient driven. KCCure surveys help reveal gaps in care that are missed by providers. Help fund research support all stages of kidney cancer.

Our grants are evidence based and patient driven. KCCure surveys help reveal gaps in care that are missed by providers. Help fund research support all stages of kidney cancer.

The majority of patients are diagnosed with localized disease. But their fear and distress is often minimized. Improving...
07/19/2021

The majority of patients are diagnosed with localized disease. But their fear and distress is often minimized. Improving survivorship for all kidney cancer patients is crucial.

The majority of patients are diagnosed with localized disease. But their fear and distress is often minimized. Improving survivorship for all kidney cancer patients is crucial.

There is very little incentive to fund trials or research to develop new surgical and imaging techniques for kidney canc...
07/18/2021

There is very little incentive to fund trials or research to develop new surgical and imaging techniques for kidney cancer. Help us change that!

There is very little incentive to fund trials or research to develop new surgical and imaging techniques for kidney cancer. Help us change that!

Patients with papillary RCC could be at higher risk of reduced kidney function due to increased rates of bilateral and m...
07/14/2021

Patients with papillary RCC could be at higher risk of reduced kidney function due to increased rates of bilateral and multifocal tumors. Help raise awareness and research funding for this rare subtype of kidney cancer!

Patients with papillary RCC could be at higher risk of reduced kidney function due to increased rates of bilateral and multifocal tumors. Help raise awareness and research funding for this rare subtype of kidney cancer!

Accuracy in diagnosis matters! Patients need to understand their pathology to be informed and empowered. This is especia...
07/13/2021

Accuracy in diagnosis matters! Patients need to understand their pathology to be informed and empowered. This is especially true for patients with rare subtypes of kidney cancer.

Accuracy in diagnosis matters! Patients need to understand their pathology to be informed and empowered. This is especially true for patients with rare subtypes of kidney cancer.

This week, we are highlighting papillary kidney cancer. Help us raise awareness and support research for this rare subty...
07/12/2021

This week, we are highlighting papillary kidney cancer. Help us raise awareness and support research for this rare subtype of RCC!

This week, we are highlighting papillary kidney cancer. Help us raise awareness and support research for this rare subtype of RCC!

Our No Tie July event is off to a great start! Thanks to everyone who has donated so far!
07/10/2021

Our No Tie July event is off to a great start! Thanks to everyone who has donated so far!

Our No Tie July event is off to a great start! Thanks to everyone who has donated so far!

Funding research for gap areas in kidney cancer isn't easy. But it is IMPORTANT! Thanks to all of our supporters who are...
07/09/2021

Funding research for gap areas in kidney cancer isn't easy. But it is IMPORTANT! Thanks to all of our supporters who are working so hard to make these grants a reality.

Funding research for gap areas in kidney cancer isn't easy. But it is IMPORTANT! Thanks to all of our supporters who are working so hard to make these grants a reality.

We asked members of our Chromophobe Kidney Cancer Community to share some of their frustrations about being diagnosed wi...
07/08/2021

We asked members of our Chromophobe Kidney Cancer Community to share some of their frustrations about being diagnosed with this rare subtype. Common responses? Being told: "You're lucky! You hit the jackpot of cancers." These kind of comments invalidate the grief of a cancer diagnosis and imply that chromophobe RCC is less worthy of research. Nothing could be further from the truth. Help us change that!

We asked members of our Chromophobe Kidney Cancer Community to share some of their frustrations about being diagnosed with this rare subtype. Common responses? Being told: "You're lucky! You hit the jackpot of cancers." These kind of comments invalidate the grief of a cancer diagnosis and imply that chromophobe RCC is less worthy of research. Nothing could be further from the truth. Help us change that!

Help us raise awareness and fund research for Chromophobe Renal Cell Carcinoma!
07/06/2021

Help us raise awareness and fund research for Chromophobe Renal Cell Carcinoma!

Help us raise awareness and fund research for Chromophobe Renal Cell Carcinoma!

You can make a difference for patients diagnosed with Chromophobe Renal Cell Carcinoma. Donate to the KCCure Chromophobe...
07/05/2021

You can make a difference for patients diagnosed with Chromophobe Renal Cell Carcinoma. Donate to the KCCure Chromophobe Research Grant and help drive needed funding to this rare cancer.

You can make a difference for patients diagnosed with Chromophobe Renal Cell Carcinoma. Donate to the KCCure Chromophobe Research Grant and help drive needed funding to this rare cancer.

Happy Fourth of July from KCCure!
07/04/2021

Happy Fourth of July from KCCure!

Happy Fourth of July from KCCure!

A great example of patient-led research grants through KCCure! Learn more about how you can support research for Chromop...
07/02/2021
Patient Driven Research - the KCCure Chromophobe Research Grant - KCCure

A great example of patient-led research grants through KCCure! Learn more about how you can support research for Chromophobe RCC.

“Has anyone done any fundraising or advocacy projects to help raise money or awareness for Chromophobe RCC? Every specialist I talk to mentions the limited research in chromophobe since we are not as common as clear cell.” – Catherine Yutmeyer, chromophobe kidney cancer patient At KCCure, we p...

No Tie July - our annual fundraising effort to raise one year of lifesaving research, in just one month, starts today! C...
07/01/2021
No Tie July 2021 - KCCure

No Tie July - our annual fundraising effort to raise one year of lifesaving research, in just one month, starts today! Check out how you can be involved and make a difference for kidney cancer patients!

What is No Tie July? No Tie July is our annual fundraising effort where we raise $50,000 – one year of research funding – in just one month! Since our launch in 2016, this fundraising effort has helped us to award $400,000 in direct research grants. How Can You Participate? 1.) Designate a Resea...

06/30/2021

Our annual fundraising effort to raise one year of life saving kidney cancer research starts now. Learn how you can participate!

06/28/2021

Learn more about how KCCure Evidence Based, Patient Driven Research Grants work!

New RCC activity provided by @PeerView! Sumanta Kumar Pal, MD, discusses new evidence from ASCO 2021 on the continuing i...
06/23/2021
New Data and Clinical Context: An Update on Renal Cell Carcinoma Care in Early Through Advanced Disease

New RCC activity provided by @PeerView! Sumanta Kumar Pal, MD, discusses new evidence from ASCO 2021 on the continuing integration of immunotherapy, targeted agents, and novel therapeutics across a wide range of kidney cancer treatment settings. https://bit.ly/3bKzeav

I participated in “New Data and Clinical Context: An Update on Renal Cell Carcinoma Care,” a CME/MOC activity from @PeerView

Honoring all the dad's - those who are living with or caring for someone with #kidneycancer and those who live on in our...
06/20/2021

Honoring all the dad's - those who are living with or caring for someone with #kidneycancer and those who live on in our hearts. Happy Father's Day from all of us at KCCure.

Honoring all the dad's - those who are living with or caring for someone with #kidneycancer and those who live on in our hearts. Happy Father's Day from all of us at KCCure.

Please forgive us as the day almost slipped by without mentioning this.  (We are blaming this summer heat!)Today is worl...
06/17/2021

Please forgive us as the day almost slipped by without mentioning this. (We are blaming this summer heat!)

Today is world kidney cancer day where we continue to bring awareness to this disease!

KCCure is making sure patients voices are heard, and we are thankful for everyone’s participation in our groups and surveys. The patients voice has never been stronger!

Please forgive us as the day almost slipped by without mentioning this. (We are blaming this summer heat!)

Today is world kidney cancer day where we continue to bring awareness to this disease!

KCCure is making sure patients voices are heard, and we are thankful for everyone’s participation in our groups and surveys. The patients voice has never been stronger!

Celebrating all the Moms! - to those who care for us, fight for us, inspire us, and to all those who live on in our hear...
05/09/2021

Celebrating all the Moms! - to those who care for us, fight for us, inspire us, and to all those who live on in our hearts - Happy Mother's Day.

Celebrating all the Moms! - to those who care for us, fight for us, inspire us, and to all those who live on in our hearts - Happy Mother's Day.

From all of us at KCCure - warmest wishes for a joyful Easter. For some extra fun - we've hidden Easter eggs throughout ...
04/04/2021

From all of us at KCCure - warmest wishes for a joyful Easter. For some extra fun - we've hidden Easter eggs throughout this picture - let us know how many you find!

From all of us at KCCure - warmest wishes for a joyful Easter. For some extra fun - we've hidden Easter eggs throughout this picture - let us know how many you find!

Debbie Gottsleben was diagnosed with kidney cancer - only to learn after surgery that she had familial oncocytoma. She h...
04/02/2021

Debbie Gottsleben was diagnosed with kidney cancer - only to learn after surgery that she had familial oncocytoma. She has used her experience to help raise awareness and improve care for thousands of others. Today is her birthday - take a minute to thank her for her advocacy!

Debbie Gottsleben was diagnosed with kidney cancer - only to learn after surgery that she had familial oncocytoma. She has used her experience to help raise awareness and improve care for thousands of others. Today is her birthday - take a minute to thank her for her advocacy!

This month, we have shared stories spanning the globe, from patients managing all stages of kidney cancer, with all diff...
03/31/2021
Kidney Cancer Awareness - Our Voice! - KCCure

This month, we have shared stories spanning the globe, from patients managing all stages of kidney cancer, with all different subtypes. Thank you to everyone who contributed to our #kidneycancerawareness campaign. March may be ending, but our work isn't done. We will continue to provide a platform for patients to be heard. Every Voice Matters!

Patient stories provide an honest and rich narrative of life with kidney cancer. Read RCC survivor stories from patients around the world.

Diagnosed with kidney cancer ten years ago, Eric shares his story of survivorship, including his experience enrolling in...
03/30/2021
Voice of Kidney Cancer - Eric Smith - KCCure

Diagnosed with kidney cancer ten years ago, Eric shares his story of survivorship, including his experience enrolling in a clinical trial, managing treatment side-effects and how his faith has given him guidance and peace. Every Voice Matters! #kidneycancerawareness

As a cancer patient, one area I would like to see advance is integration of diet and other aspects of wellness with traditional treatments.

Catherine is a stage 4 Chromophobe kidney cancer survivor. In addition to being an active member of the KCCure chromopho...
03/29/2021
Voice of Kidney Cancer - Catherine Yutmeyer - KCCure

Catherine is a stage 4 Chromophobe kidney cancer survivor. In addition to being an active member of the KCCure chromophobe community, she is leading efforts to fund research grants specifically for this rare type of kidney cancer. #kidneycancerawareness

My name is Catherine Yutmeyer. I am 39 years old and live in Central Illinois with my husband and 7 year old son. I have practiced family medicine as a PA for 14 years. I never expected to be a patient myself, and especially not to be the youngest cancer patient in my practice.  My cancer journey s...

Diagnosed with kidney cancer in 2018, Dez didn't feel confident with his first doctor. He sought out a second opinion an...
03/28/2021
Voice of Kidney Cancer - Dez Burton - KCCure

Diagnosed with kidney cancer in 2018, Dez didn't feel confident with his first doctor. He sought out a second opinion and following surgery is free of disease today. Finding the right doctor is important! #kidneycancerawareness

In December 2017 I got diverticulitis for the first time in my life. My gastro doc sent me for a CT scan to see extent of the problem. He called me a few days later to tell me that I had a 5.7cm tumor in my right kidney and told me to see my urologist as soon as possible.  I saw my urologist in ear...

Evelyn shares the difficulties they have faced since her husband was diagnosed with advanced RCC. "He has side effects f...
03/27/2021
Voice of Kidney Cancer - Evelyn Gebele-Baker - KCCure

Evelyn shares the difficulties they have faced since her husband was diagnosed with advanced RCC. "He has side effects from treatment and brain necrosis... We lost everything… our business, our savings and now have to sell our family home. But Rob is a fighter and his strength amazes me and he is not ready to give up." #kidneycancerawareness

In January 2017, my husband Rob went to our doctor thinking he had a hernia. She told him that he had indeed a hernia but also a huge growth on his kidney and did a blood test. She called us at 11.30 pm to tell him to go to the hospital right away. She could not understand how he was walking, his he...

Larry Garza was diagnosed with stage 4 RCC in 2016. As a Texas based standup comedian he used to use his experience for ...
03/26/2021
Voice of Kidney Cancer - Larry Garza - KCCure

Larry Garza was diagnosed with stage 4 RCC in 2016. As a Texas based standup comedian he used to use his experience for his act. But he has yet to find the humor in his most recent struggles. These stories need to be heard. #kidneycancerawareness

In May of 2016 I coughed up blood multiple times. My doctor recommended I go see him to avoid expensive emergency room costs since it sounded like a sinus infection. The next day I went it and alas, I had a sinus infection. For precautionary purposes he ordered a chest scan to rule out any other iss...

Diagnosed with stage 4 kidney cancer, Carie shares how she is "living her best life" by combining evidence based care wi...
03/25/2021
Voice of Kidney Cancer - Carie Gort - KCCure

Diagnosed with stage 4 kidney cancer, Carie shares how she is "living her best life" by combining evidence based care with healthy life-style changes. Read her inspiring story! #kidneycancerawareness

August 6, 2019: I was experiencing: A cough I couldn’t shake. Unexplained weight loss. Terrible night sweats. Fatigue. Exhaustion. (Slept from after dinner until morning on weekdays, and all weekend long). and Digestive discomfort. I KNEW something was not right. Everyone kept saying it was menopa...

Diagnosed with metastatic RCC in 2006, Bob wasn't given much hope. He has had ups and downs, included brain metastases i...
03/24/2021
Voice of Kidney Cancer - Robert Grizzell - KCCure

Diagnosed with metastatic RCC in 2006, Bob wasn't given much hope. He has had ups and downs, included brain metastases in 2018. But thanks to new treatments, he is still doing well. We're grateful to Bob for sharing his story and inspiring others! #kidneycancerawareness

I was diagnosed with kidney cancer 12/4/07. I had passed out at a Providence Medical Center fundraiser with a room full of doctors. An ultrasound was ordered which showed an enlarged right kidney. This was followed up with a CT Scan which showed an eight cm tumor in the right kidney and several smal...

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KCCure - curing kidney cancer together

Kidney Cancer Research Alliance (KCCure) is a grassroots organization of patients, caregivers, doctors and medical researchers dedicated to finding a cure for kidney cancer.

We seek to increase and accelerate research through a one-of-a-kind peer reviewed research grant program. In addition, we provide answers to patients and caregivers seeking information about their diagnosis and connect patients to one another so they can be part of a community of hope.

KCCure is not one story - but many stories. We are doctors and patients committed to ending kidney cancer.

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Join these four leading experts as they share the latest kidney cancer research in patient-friendly language and answer your questions. This even hosted by our friends at KidneyCan. You can register here: https://kidneycan.org/advocacy/asco-gu-town-hall/
Our first multi-speaker online symposium with partner Moffitt Cancer Center - Tampa. Register now at: bit.ly/JNF2021
Our first multi-speaker online symposium with partner Moffitt Cancer Center - Tampa. Register now at: bit.ly/JNF2021
Rare variations can often teach us about the more common conditions. Be sure to register for this talk at: https://www.jnfkidneycancer.org/new-events/2020/11/11/rare-kc-renal-medullary-carcinoma
You can learn from this talk whether your are impacted by a rare form or not. Register here: https://www.jnfkidneycancer.org/new-events/2020/11/11/rare-kc-renal-medullary-carcinoma