Cystic Fibrosis Foundation - North Texas Chapter, Dallas

Cystic Fibrosis Foundation - North Texas Chapter, Dallas Welcome to the official page of the Northeast Texas Chapter! The Cystic Fibrosis Foundation is committed to finding new therapies and ultimately a cure for CF.
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Cystic Fibrosis Foundation - Northeast Texas Chapter
4040 N Central Expy
Suite 730
Dallas, TX, 75204

Cystic Fibrosis Foundation - Northeast Texas Chapter
4040 N Central Expy
Suite 730
Dallas, TX, 75204

Operating as usual

Are you a college student or recent graduate interested in improving your professional skills? Apply for the Tomorrow’s ...
06/24/2021

Are you a college student or recent graduate interested in improving your professional skills? Apply for the Tomorrow’s Leaders College Program! During this four-week, virtual program from July 8 to 29, you will build leadership, advocacy, and fundraising skills so you can make a difference on campus and beyond while learning about the cystic fibrosis community.
Learn more and apply by July 6 at http://on.cff.org/CollegeProgram

Are you a college student or recent graduate interested in improving your professional skills? Apply for the Tomorrow’s Leaders College Program! During this four-week, virtual program from July 8 to 29, you will build leadership, advocacy, and fundraising skills so you can make a difference on campus and beyond while learning about the cystic fibrosis community.
Learn more and apply by July 6 at http://on.cff.org/CollegeProgram

We’re so proud of Oliver Gamel who is representing the Texas community virtually at the Cystic Fibrosis Foundation’s 13t...
06/23/2021

We’re so proud of Oliver Gamel who is representing the Texas community virtually at the Cystic Fibrosis Foundation’s 13th annual Teen Advocacy Day. #CFAdvocacy

We’re so proud of Oliver Gamel who is representing the Texas community virtually at the Cystic Fibrosis Foundation’s 13th annual Teen Advocacy Day. #CFAdvocacy

Nearly 150 teens – almost half living with cystic fibrosis -- from across the country are gathering virtually this year ...
06/23/2021

Nearly 150 teens – almost half living with cystic fibrosis -- from across the country are gathering virtually this year for the Foundation’s 13th Annual Teen Advocacy Day! Maci Drewry (pictured above) and Sydney Powell are advocating for the Texas CF community urging their members of Congress to help create solutions to address the lack of effective antibiotics, and encourage the development of new antibiotics. #CFAdvocacy

Nearly 150 teens – almost half living with cystic fibrosis -- from across the country are gathering virtually this year for the Foundation’s 13th Annual Teen Advocacy Day! Maci Drewry (pictured above) and Sydney Powell are advocating for the Texas CF community urging their members of Congress to help create solutions to address the lack of effective antibiotics, and encourage the development of new antibiotics. #CFAdvocacy

We’re so proud of Azer Russell who is representing the Texas community virtually at the Cystic Fibrosis Foundation’s 13t...
06/23/2021

We’re so proud of Azer Russell who is representing the Texas community virtually at the Cystic Fibrosis Foundation’s 13th annual Teen Advocacy Day. #CFAdvocacy

We’re so proud of Azer Russell who is representing the Texas community virtually at the Cystic Fibrosis Foundation’s 13th annual Teen Advocacy Day. #CFAdvocacy

We’re so proud of Azer Russell, Maci Drewry, Sydney Powell and Oliver Gamel who are representing the Texas community vir...
06/23/2021

We’re so proud of Azer Russell, Maci Drewry, Sydney Powell and Oliver Gamel who are representing the Texas community virtually at the Cystic Fibrosis Foundation’s 13th annual Teen Advocacy Day. They are learning just how important it is to share their story to help create change, especially in promoting solutions to support the development of effective antibiotics. We can’t wait for them to share their CF story with Louie Gohmert (R-1-TX), Pete Sessions (R-17-TX), Mike Burgess (R-26-TX), John Cornyn (R-TX) and Ted Cruz (R-TX). #CFAdvocacy

We’re so proud of Azer Russell, Maci Drewry, Sydney Powell and Oliver Gamel who are representing the Texas community virtually at the Cystic Fibrosis Foundation’s 13th annual Teen Advocacy Day. They are learning just how important it is to share their story to help create change, especially in promoting solutions to support the development of effective antibiotics. We can’t wait for them to share their CF story with Louie Gohmert (R-1-TX), Pete Sessions (R-17-TX), Mike Burgess (R-26-TX), John Cornyn (R-TX) and Ted Cruz (R-TX). #CFAdvocacy

Registration is open for DFW Climb and CF Cycle for Life! Join us October 2, IN PERSON, at Texas Motor Speedway as we cl...
06/22/2021

Registration is open for DFW Climb and CF Cycle for Life! Join us October 2, IN PERSON, at Texas Motor Speedway as we climb and ride for a cure! Registration is FREE this year and you won't want to miss out!

Register for DFW Climb: https://fightcf.cff.org/site/TR?fr_id=8777&pg=entry​​​​​​​

Register for CF Cycle for Life: https://fightcf.cff.org/site/TR/Cycle/90_Northeast_Texas_Dallas?fr_id=8774&pg=entry&_ga=2.75499477.1786179728.1621535415-334853887.1566232302

Registration is open for DFW Climb and CF Cycle for Life! Join us October 2, IN PERSON, at Texas Motor Speedway as we climb and ride for a cure! Registration is FREE this year and you won't want to miss out!

Register for DFW Climb: https://fightcf.cff.org/site/TR?fr_id=8777&pg=entry​​​​​​​

Register for CF Cycle for Life: https://fightcf.cff.org/site/TR/Cycle/90_Northeast_Texas_Dallas?fr_id=8774&pg=entry&_ga=2.75499477.1786179728.1621535415-334853887.1566232302

❗ Calling All CF Athletes ❗ Join us on July 15th for an interactive call to hear from two CF adult athletes as they shar...
06/21/2021

❗ Calling All CF Athletes ❗ Join us on July 15th for an interactive call to hear from two CF adult athletes as they share their stories and how staying active has affected their lives with CF. To register ➡️ https://cff.zoom.us/webinar/register/WN_4HbSmDJAQ-SNo1grQTfcPQ
To submit your questions beforehand, email [email protected]

❗ Calling All CF Athletes ❗ Join us on July 15th for an interactive call to hear from two CF adult athletes as they share their stories and how staying active has affected their lives with CF. To register ➡️ https://cff.zoom.us/webinar/register/WN_4HbSmDJAQ-SNo1grQTfcPQ
To submit your questions beforehand, email [email protected]

U.S. Supreme Court Rules on the Affordable Care Act
06/17/2021
U.S. Supreme Court Rules on the Affordable Care Act

U.S. Supreme Court Rules on the Affordable Care Act

The Cystic Fibrosis Foundation celebrates the decision issued by the United States Supreme Court in California v. Texas, ultimately protecting the Affordable Care Act.

Compass is a personalized service to help you with the insurance, financial, legal, and other issues you are facing. A d...
06/17/2021

Compass is a personalized service to help you with the insurance, financial, legal, and other issues you are facing. A dedicated, knowledgeable CF Foundation case manager is ready to work with you, one-on-one. This expert guidance is available to anyone with CF, their family, and their care team, regardless of income or insurance status, and is free and confidential. To get started, visit: https://www.cff.org/Assistance-Services/Compass-Service-Request/

Compass is a personalized service to help you with the insurance, financial, legal, and other issues you are facing. A dedicated, knowledgeable CF Foundation case manager is ready to work with you, one-on-one. This expert guidance is available to anyone with CF, their family, and their care team, regardless of income or insurance status, and is free and confidential. To get started, visit: https://www.cff.org/Assistance-Services/Compass-Service-Request/

Have you registered for our Grampions CF Foundation Cares event tomorrow? Dr. Jamie Becker and Dr. Juliana Alba-Suarez w...
06/16/2021

Have you registered for our Grampions CF Foundation Cares event tomorrow? Dr. Jamie Becker and Dr. Juliana Alba-Suarez will be joining us! If you have a connection to CF join us for conversation and community on June 17th at 6:00pm. Our speakers will be leading a discussion regarding the affects of having a sibling with a chronic illness. To submit your questions ahead of time email [email protected]. To register, visit: https://cff.zoom.us/.../tJctdOuhqz4tE9ShjqwHeD2LkqZpEgPwXJJs

Have you registered for our Grampions CF Foundation Cares event tomorrow? Dr. Jamie Becker and Dr. Juliana Alba-Suarez will be joining us! If you have a connection to CF join us for conversation and community on June 17th at 6:00pm. Our speakers will be leading a discussion regarding the affects of having a sibling with a chronic illness. To submit your questions ahead of time email [email protected]. To register, visit: https://cff.zoom.us/.../tJctdOuhqz4tE9ShjqwHeD2LkqZpEgPwXJJs

Attention young professionals and Tomorrow's Leaders! Join us for Texas Trivia Night Thursday, June 17 at 6:30 p.m. CT f...
06/15/2021

Attention young professionals and Tomorrow's Leaders! Join us for Texas Trivia Night Thursday, June 17 at 6:30 p.m. CT for a fun night of trivia, friendly competition and PRIZES! To register: https://afasignup.formstack.com/forms/texas_tl_trivia_registration

Attention young professionals and Tomorrow's Leaders! Join us for Texas Trivia Night Thursday, June 17 at 6:30 p.m. CT for a fun night of trivia, friendly competition and PRIZES! To register: https://afasignup.formstack.com/forms/texas_tl_trivia_registration

We are excited to share Dr. Jamie Becker and Dr. Juliana Alba-Suarez will be joining us on our CF Cares Grampions call! ...
06/10/2021

We are excited to share Dr. Jamie Becker and Dr. Juliana Alba-Suarez will be joining us on our CF Cares Grampions call! If you have a connection to CF join us for conversation and community on June 17th, at 6:00pm. Our speakers will be leading a discussion regarding the affects of having a sibling with a chronic illness. To submit your questions ahead of time email [email protected]. To register visit: https://cff.zoom.us/meeting/register/tJctdOuhqz4tE9ShjqwHeD2LkqZpEgPwXJJs

We are excited to share Dr. Jamie Becker and Dr. Juliana Alba-Suarez will be joining us on our CF Cares Grampions call! If you have a connection to CF join us for conversation and community on June 17th, at 6:00pm. Our speakers will be leading a discussion regarding the affects of having a sibling with a chronic illness. To submit your questions ahead of time email [email protected]. To register visit: https://cff.zoom.us/meeting/register/tJctdOuhqz4tE9ShjqwHeD2LkqZpEgPwXJJs

Thank you Peak Events LLC for your continued support! We appreciate all you do!
06/10/2021

Thank you Peak Events LLC for your continued support! We appreciate all you do!

Since 2017 we have been proud supporters of the Cystic Fibrosis Foundation - North Texas Chapter, Dallas to help raise donations for cystic fibrosis, as well as build awareness as to what cystic fibrosis is.
This year, through our events we were able to raise & donate over $20,000, making our total over the past 5 years nearly $100,000! 𝐓𝐡𝐚𝐧𝐤 𝐲𝐨𝐮 to all our fans who have helped contribute to this cause! 🙏

We’re answering your top questions about the recent approval of Trikafta for children with CF ages 6-11 with certain mut...
06/10/2021

We’re answering your top questions about the recent approval of Trikafta for children with CF ages 6-11 with certain mutations at a community webinar today at 7 p.m. ET. Watch live, or register to receive the recording following the event. http://on.cff.org/TrikaftaWebinar

We’re answering your top questions about the recent approval of Trikafta for children with CF ages 6-11 with certain mutations at a community webinar today at 7 p.m. ET. Watch live, or register to receive the recording following the event. http://on.cff.org/TrikaftaWebinar

Do you want to connect with someone in the CF community, but aren’t sure if CF Peer Connect is right for you? You can ge...
06/10/2021

Do you want to connect with someone in the CF community, but aren’t sure if CF Peer Connect is right for you? You can get matched with a person who shares similar experiences through CF Peer Connect. But once you’re matched, the relationship is up to you. https://on.cff.org/CFPeerConnect

Do you want to connect with someone in the CF community, but aren’t sure if CF Peer Connect is right for you? You can get matched with a person who shares similar experiences through CF Peer Connect. But once you’re matched, the relationship is up to you. https://on.cff.org/CFPeerConnect

We are thrilled to share that the U.S. Food and Drug Administration has approved the use of Trikafta® (elexacaftor/tezac...
06/10/2021

We are thrilled to share that the U.S. Food and Drug Administration has approved the use of Trikafta® (elexacaftor/tezacaftor/ivacaftor) for children with cystic fibrosis ages 6 to 11 who have at least one copy of the F508del mutation or one copy of certain rare mutations.

If you’re a parent or caregiver to a child with CF, join us for a community webinar from 6-7 p.m. CT tomorrow, June 10, to have your top questions answered by experts from the Cystic Fibrosis Foundation. To register: https://cff.zoom.us/webinar/register/WN_7zJwrDRsRJqusnF9zeO7CA

All those who register will receive a recording of the event.

We are thrilled to share that the U.S. Food and Drug Administration has approved the use of Trikafta® (elexacaftor/tezacaftor/ivacaftor) for children with cystic fibrosis ages 6 to 11 who have at least one copy of the F508del mutation or one copy of certain rare mutations.

If you’re a parent or caregiver to a child with CF, join us for a community webinar from 6-7 p.m. CT tomorrow, June 10, to have your top questions answered by experts from the Cystic Fibrosis Foundation. To register: https://cff.zoom.us/webinar/register/WN_7zJwrDRsRJqusnF9zeO7CA

All those who register will receive a recording of the event.

When you’re always on the go, how do you make time to focus on yourself? The Tomorrow’s Leaders track, “Self-Improvement...
06/09/2021

When you’re always on the go, how do you make time to focus on yourself?

The Tomorrow’s Leaders track, “Self-Improvement; Creating A Well Rounded Life,” launches Tuesday, at 1 p.m. CT. By registering for this free session, you can join industry leaders as they share their experiences and tips, and arm yourself with the knowledge you need to improve your life. The three sessions in this track will offer support no matter where you are in your journey.

Sign up today: https://tomorrowsleaders.cff.org/track3

When you’re always on the go, how do you make time to focus on yourself?

The Tomorrow’s Leaders track, “Self-Improvement; Creating A Well Rounded Life,” launches Tuesday, at 1 p.m. CT. By registering for this free session, you can join industry leaders as they share their experiences and tips, and arm yourself with the knowledge you need to improve your life. The three sessions in this track will offer support no matter where you are in your journey.

Sign up today: https://tomorrowsleaders.cff.org/track3

FDA Approves Trikafta for Children Ages 6 Through 11 With Certain Mutations
06/09/2021
FDA Approves Trikafta for Children Ages 6 Through 11 With Certain Mutations

FDA Approves Trikafta for Children Ages 6 Through 11 With Certain Mutations

The U.S. Food and Drug Administration has approved the use of Trikafta® (elexacaftor/tezacaftor/ivacaftor) for children ages 6 through 11 who have at least one copy of the F508del mutation or certain mutations in the CFTR gene that are responsive based on lab data.

Are you a college student or recent graduate interested in improving your professional skills? Apply for the Tomorrow’s ...
06/08/2021

Are you a college student or recent graduate interested in improving your professional skills? Apply for the Tomorrow’s Leaders College Program! During this four-week, virtual program from July 8 to 29, you will build leadership, advocacy, and fundraising skills so you can make a difference on campus and beyond while learning about the cystic fibrosis community.
Learn more and apply by June 27: http://on.cff.org/CollegeProgram

Are you a college student or recent graduate interested in improving your professional skills? Apply for the Tomorrow’s Leaders College Program! During this four-week, virtual program from July 8 to 29, you will build leadership, advocacy, and fundraising skills so you can make a difference on campus and beyond while learning about the cystic fibrosis community.
Learn more and apply by June 27: http://on.cff.org/CollegeProgram

Thank you to all our new monthly donors and members of our 65 Roses Club. Together, we will make CF stand for Cure Found...
06/07/2021
I’ve joined the 65 Roses Club by making a monthly gift to the Cystic Fibrosis Foundation. Join me, and make a gift to help us move closer to a cure for cystic fibrosis.

Thank you to all our new monthly donors and members of our 65 Roses Club. Together, we will make CF stand for Cure Found 💜

Interested in being a monthly donor? Visit: https://give.cff.org/65rosesclub/Donate?rbref=social&fbclid=IwAR2HCsDGb6zmWXVN63FD6stpVTXAbgbvF9Xg95-x2gUcQrIbpLI2pTYKMLY

Help support Cystic Fibrosis Foundation today!

Happy 65 Roses Day! “65Roses” is a term children have used for decades to describe their disease and inspire hope. We ce...
06/05/2021

Happy 65 Roses Day!

“65Roses” is a term children have used for decades to describe their disease and inspire hope. We celebrate 65 Roses Day each year on June 5 to honor and celebrate those who have helped pave the way for better treatments and care for cystic fibrosis.

You can help us make dreams a reality by becoming a monthly donor today. We’re almost to our goal of 165 new members!

Give today: https://give.cff.org/65rosesclub1/Donate?rbref=email2&unitid=Texas%20-%20North%20-%20Dallas

Happy 65 Roses Day!

“65Roses” is a term children have used for decades to describe their disease and inspire hope. We celebrate 65 Roses Day each year on June 5 to honor and celebrate those who have helped pave the way for better treatments and care for cystic fibrosis.

You can help us make dreams a reality by becoming a monthly donor today. We’re almost to our goal of 165 new members!

Give today: https://give.cff.org/65rosesclub1/Donate?rbref=email2&unitid=Texas%20-%20North%20-%20Dallas

We are entering a new era in cystic fibrosis, with life-changing therapies and promising treatments on the horizon. Yet,...
06/04/2021

We are entering a new era in cystic fibrosis, with life-changing therapies and promising treatments on the horizon. Yet, not every person with CF can benefit from available therapies, and for children like Evan, the impacts of CF over a lifetime can lead to serious challenges.

You can help us achieve our mission by joining our 65 Roses Club and becoming a monthly donor. Together we can make CF stand for Cure Found, and help children like Evan reach their dreams: https://give.cff.org/65rosesclub1/Donate?rbref=email2&unitid=Texas%20-%20North%20-%20Dallas

We are entering a new era in cystic fibrosis, with life-changing therapies and promising treatments on the horizon. Yet, not every person with CF can benefit from available therapies, and for children like Evan, the impacts of CF over a lifetime can lead to serious challenges.

You can help us achieve our mission by joining our 65 Roses Club and becoming a monthly donor. Together we can make CF stand for Cure Found, and help children like Evan reach their dreams: https://give.cff.org/65rosesclub1/Donate?rbref=email2&unitid=Texas%20-%20North%20-%20Dallas

Address

4040 N Central Expy, Ste 810
Dallas, TX
75204

General information

Posting Policy for the Cystic Fibrosis Foundation The Cystic Fibrosis Foundation – Northeast Texas Chapter welcomes participation on our page and we encourage you to interact with us often. It is our goal to provide those in the CF community an opportunity to learn more about the local events and activities of our chapter. Individual medical questions are best answered by your CF doctor. Please use caution when searching for health information online, and always consult your doctor before making changes to your or your child’s treatment regimen. You should not rely on information posted on Facebook to suggest a course of treatment for any medical condition nor should you disregard medical advice from your doctor or deviate from any prescribed treatment program because of what you read on Facebook. Please note: giving away, sharing or selling medication or medical equipment that requires a prescription is against the law. To protect your own privacy and the privacy of others, please do not include phone numbers, mailing addresses or e-mail addresses in your posting. You participate at your own risk, taking personal responsibility for your comments, your username and any information provided. This is a public site and visitors do not have to be a member of Facebook to view comments posted to this page. In accordance with Facebook’s rules, users must be 13 years of age or older to participate on this page. Posts made by those identifying themselves as younger than 13 will be deleted. Please note that posts containing personal attacks, profanity, or illegal material are prohibited. In addition, multiple postings of the same content may be construed as spam and will be deleted. We reserve the right, at our discretion, to remove any post that is deemed unintelligible or irrelevant, or to block a user's privilege to post to our page. The appearance of external links on this page does not constitute official endorsement on behalf of the Cystic Fibrosis Foundation. All content posted by the Cystic Fibrosis Foundation is the property of the Cystic Fibrosis Foundation and is subject to copyright laws. For more information, please visit http://www.cff.org/legal_terms_and_conditions/#Policy_on_Intellectual_Property. The Cystic Fibrosis Foundation is a 501(c)(3) tax-exempt organization and therefore prohibited from directly or indirectly participating in any political campaign. In accordance with the Internal Revenue Service regulations, any posts determined to be political activity will be removed.

Opening Hours

Monday 09:00 - 17:00
Tuesday 09:00 - 17:00
Wednesday 09:00 - 17:00
Thursday 09:00 - 17:00
Friday 09:00 - 17:00

Telephone

(214) 871-2222

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Comments

Go Evas ALLIANCE!
Are you a parent raising a kiddo with CF? Please consider participating in my doctoral dissertation research! This survey aims to understand why caregivers in the CF community have anxiety and depression rates 2-3 times higher than the general population. Take the survey and share your thoughts:
Question...has anyone tried to see if parents of CF kids could entet stores that are opening early for the elderly and/disabled? We, as parents, need supplies and the last thing we need is bring home something to our kid!
𝐈𝐭'𝐬 𝐡𝐞𝐫𝐞!!! Get started 𝐓𝐎𝐃𝐀𝐘. Reaching your Great Strides goal is easier than ever! 💜 Did you know that even though your walk may be over, you can continue fundraising all the way to Dec. 31st?! Follow the steps below: 1) Log In to your Great Strides Page 2) Click “Fundraise on Facebook” 3) Fundraise and Invite Friends to help! Reach your goal faster with the power of Facebook Fundraising – invite friends and family on Facebook to read your story, follow your progress and donate directly to your fundraising efforts without ever leaving Facebook.
𝐈𝐭'𝐬 𝐡𝐞𝐫𝐞!!! Get started 𝐓𝐎𝐃𝐀𝐘. Reaching your Great Strides goal is easier than ever! 💜 Did you know that even though your walk may be over, you can continue fundraising all the way to Dec. 31st?! Follow the steps below: 1) Log In to your Great Strides Page 2) Click “Fundraise on Facebook” 3) Fundraise and Invite Friends to help! Reach your goal faster with the power of Facebook Fundraising – invite friends and family on Facebook to read your story, follow your progress and donate directly to your fundraising efforts without ever leaving Facebook.
Throwback Thursday!! 2007...This was our first Great Strides Walk. Our walk was a costume walk and this year we all wore tie-dye and Tanner Roeseler had a blonde afro wig (which he refused to wear longer than 5 seconds)! It was fabulous! Wish we had better pictures from that day! #greatstrides
#GreatStridesThrowbackThursday to our first Great Strides
For Great Strides Throwback Thursday,” this is why I stride. In these photos , Eric was 8 months old and approximately 3 years old - both taken in a hospital bed. He is now 38 and standing strong, not giving up and still fighting. Our family has been “great striding for over 34 years. #cfhasgot2go
Jordan Sullivan and I at my first Great Strides walk 11 years ago
Never say “never” to fighting for your dreams and passions in life. Please join and/or make a donation to be a part of a team “ standing strong to find a cure for cystic fibrosis.” Even if you cannot be present at this event - we NEED and WANT you to be a part of our efforts. Just click on the link below to help. Eric J Jenkin, Billy Jenkin, Chris Jenkin, Melonie Kastman, Benton Kastman, Mei Kastman Usana, Linda Leslie Sanders, #cfhasgot2go
As an adult living with Cystic Fibrosis, I am happy to share the story of how my husband and I are choosing to grow our family through adoption! Please check out our story and share it with others! We appreciate your support!
I just wanted to share what amazing things that phage therapy is doing for my sweet niece! It's still in the experimental stages but I'm so THANKFUL for what it's doing to help her!! #PaigesPhages