California Sibling Leadership Network

California Sibling Leadership Network To provide siblings of individuals with disabilities the information, support, and tools to advocate with their brothers and sisters. The California Sibling Leadership Network (CaliforniaSibs) is dedicated to the siblings of individuals with intellectual and developmental disabilities.

Our mission is to build a network of information, support, and advocacy resources to empower Sibs to thrive throughout all stages in life. We cultivate the space for Sibs to participate, share their voices, and validate their experiences.

Operating as usual

Who wants to help us get more SibShops out in the world? Sign up for this training and talk to us about launching a new ...
09/10/2021
Evening/Weekend October Online Sibshop Facilitator Certification Training and Sibling Workshop

Who wants to help us get more SibShops out in the world? Sign up for this training and talk to us about launching a new offering in your area.

Hosted by The Taylor Family Foundation. Scholarships for Northern California residents are available! Times are posted in Pacific Time. This training will take place over three days in one week in October: Tuesday 10/19/21 Session 1: Siblings Unique Concerns, Unique Opportunities 7:00-9:00 p.m. Paci...

Can’t wait to connect tomorrow evening (Thurs Sep 2). See meetup.com/CaliforniaSibs for all the details.
09/01/2021

Can’t wait to connect tomorrow evening (Thurs Sep 2). See meetup.com/CaliforniaSibs for all the details.

Can’t wait to connect tomorrow evening (Thurs Sep 2). See meetup.com/CaliforniaSibs for all the details.

Exciting opportunity!
08/12/2021

Exciting opportunity!

Join us Saturday Aug 7 at 10 am for our next virtual Sibs meetup. Register at meetup.com/CaliforniaSibs or email us at i...
07/29/2021

Join us Saturday Aug 7 at 10 am for our next virtual Sibs meetup. Register at meetup.com/CaliforniaSibs or email us at [email protected] to get the zoom link.

CaliforniaSibs meetups are exclusively for the siblings of persons with disabilities, as a safe space where the Sib voice is centered in the conversation.

Join us Saturday Aug 7 at 10 am for our next virtual Sibs meetup. Register at meetup.com/CaliforniaSibs or email us at [email protected] to get the zoom link.

CaliforniaSibs meetups are exclusively for the siblings of persons with disabilities, as a safe space where the Sib voice is centered in the conversation.

Our sister chapter in Tennessee is opening this event on decision making to Sibs across the country. Follow the link bel...
07/22/2021
TABS Chat: "Helping Our Siblings with Decisions - New Tennessee Center for Decision-Making Supports"

Our sister chapter in Tennessee is opening this event on decision making to Sibs across the country. Follow the link below to register for Thurs Aug 19 at 3-4:30 pm Pacific.

Research tells us people with disabilities have better lives when they feel a sense of control over their own lives. What role do siblings play in making that a reality for our brothers and sisters with disabilities? Join this free, informal virtual chat hosted by Tennessee Adult Brothers and Sister...

Join us tomorrow evening (Thurs July 8th) at 6:30 pm PT for “View from Sib Shoes” with Anne Dempsey. Just for siblings o...
07/07/2021

Join us tomorrow evening (Thurs July 8th) at 6:30 pm PT for “View from Sib Shoes” with Anne Dempsey. Just for siblings of people with disabilities. RSVP to receive zoom link in bio.
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#californiasibs #casibs #specialsibling #special_needs_siblings #disabilitysiblings #disabilitysiblingprograms #autismsiblings #downsydromesiblings #cerebalpalsysiblings #praderwillisiblings #siblingleadershipnetwork

Join us tomorrow evening (Thurs July 8th) at 6:30 pm PT for “View from Sib Shoes” with Anne Dempsey. Just for siblings of people with disabilities. RSVP to receive zoom link in bio.
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#californiasibs #casibs #specialsibling #special_needs_siblings #disabilitysiblings #disabilitysiblingprograms #autismsiblings #downsydromesiblings #cerebalpalsysiblings #praderwillisiblings #siblingleadershipnetwork

Join us for an evening of “I wish I had…” and “I’m glad I did…”. What’s it really like to be in a Sib’s shoes. Register ...
07/02/2021

Join us for an evening of “I wish I had…” and “I’m glad I did…”. What’s it really like to be in a Sib’s shoes.

Register to receive Zoom link. https://meetu.ps/e/JL7hb/tWDlG/a

Join us for an evening of “I wish I had…” and “I’m glad I did…”. What’s it really like to be in a Sib’s shoes.

Register to receive Zoom link. https://meetu.ps/e/JL7hb/tWDlG/a

06/18/2021

SLN Conference thread!

Check out the comments for links to more info, and feel free to chime in!

Time is running out to register for this weekend's The Sibling Leadership Network conference. Looking forward to seeing ...
06/14/2021
Sibling Leadership Network Conference

Time is running out to register for this weekend's The Sibling Leadership Network conference. Looking forward to seeing California represent at this virtual offering. Reach out to us if funding is a barrier.

Schedule:https://siblingleadership.org/wp-content/uploads/2021/06/2021-Sibling-Leadership-Network-Conference-Preliminary-Schedule.pdf

Registration: https://www.eventbrite.com/e/sibling-leadership-network-conference-registration-144686524289

The 8th national Sibling Leadership Network (SLN) Conference

We are looking forward to connecting with Sibs from across the country and around the globe at the upcoming national The...
06/02/2021
2021 Sibling Leadership Network National Conference Program - Sibling Leadership Network

We are looking forward to connecting with Sibs from across the country and around the globe at the upcoming national The Sibling Leadership Network
Conference. This year we have the unique opportunity to join virtually, which makes it so much easier for Sibs to participate that have busy lives and multiple commitments! Carve out time June 18 through 24 (session times vary by day, and are primarily on the weekend).

If you haven't registered for the Conference yet, there is still time: https://siblingleadership.org/2021-sibling-leadership-network-national-conference/

Then head over to join the discussion on the SLN Conference Page: https://www.facebook.com/groups/516713876151999 .

2021 NATIONAL SIBLING LEADERSHIP NETWORK CONFERENCE STRENGTH THROUGH CONNECTION June 18-20, 2021 A Virtual & In-Person Experience

What to do this holiday weekend? How about:✅ Sign up for our next meetup (next Saturday June 5) at https://meetup.com/Ca...
05/29/2021
CaliforniaSibs-Adult Sisters and Brothers of those with IDD (Pasadena, CA)

What to do this holiday weekend? How about:

✅ Sign up for our next meetup (next Saturday June 5) at https://meetup.com/CaliforniaSibs
✅ Register for the bi-annual National SLN conference at http://ow.ly/FyrY50EXa2q
✅ Subscribe to the new Sibling Leadership Network podcast on your favorite streaming service, or download the first episode here: http://ow.ly/gnqv50EXa2m

CaliforniaSibs is the official California state chapter of the nationwide Sibling Leadership Network (SLN). Our Mission is to partner with Sibs (sisters and brothers of those with special needs) here

05/11/2021

The BIPOC Sibling Roundtable 4 is happening next week! Are you attending?
The 4th of a series of roundtable discussions featuring the experiences, insights, stories and voices of Black, Indigenous and Other People of color who have siblings with special developmental, health and mental health concerns. Hosted by The Sibling Support Project, Special Needs Siblings, and the Sibling Leadership Network. Register for this free event here: https://kindering.zoom.us/meeting/register/tJAsde6tpzwuGd3YpTJPL27hJV7kUuLEcspI

Happy National Siblings Day to all of the Sibs out there! On April 10th we join the Sibling Leadership Network and all o...
04/10/2021

Happy National Siblings Day to all of the Sibs out there! On April 10th we join the Sibling Leadership Network and all of our sister state chapters to celebrate and support the important and unique role that siblings of individuals with disabilities have! National Siblings Day is also a day designated to celebrate the sibling relationship and reflect on the experience of having brothers and sisters in our lives.

Brothers and sisters of people with disabilities often have the longest relationships of their lives with each other. Siblings often become the next generation of caregivers (within a household) or care managers (across households) when parents are unable to provide care. Even though siblings have unique roles and will likely be deeply involved for life, the needs and perspectives of siblings are often overlooked. By addressing the needs of siblings, their brothers and sisters with disabilities will have better outcomes.

Join us in celebrating Sibs, and honor them by learning more about the unique role they play.

Happy National Siblings Day to all of the Sibs out there! On April 10th we join the Sibling Leadership Network and all of our sister state chapters to celebrate and support the important and unique role that siblings of individuals with disabilities have! National Siblings Day is also a day designated to celebrate the sibling relationship and reflect on the experience of having brothers and sisters in our lives.

Brothers and sisters of people with disabilities often have the longest relationships of their lives with each other. Siblings often become the next generation of caregivers (within a household) or care managers (across households) when parents are unable to provide care. Even though siblings have unique roles and will likely be deeply involved for life, the needs and perspectives of siblings are often overlooked. By addressing the needs of siblings, their brothers and sisters with disabilities will have better outcomes.

Join us in celebrating Sibs, and honor them by learning more about the unique role they play.

Next cohort now recruiting!
04/06/2021
Apply — Sibling Transformation Project

Next cohort now recruiting!

COHORT INFORMATIONThe application for our 2021 cohort is open! Click here to apply.Timeline The activities of the Sibling Transformation Project cohort include all-cohort retreats, all-cohort webinars, one-on-one peer check-ins, and one-on-one coaching sessions. Specific dates and information in th...

Another great virtual meetup this morning! We chatted about boundaries, where we struggle with them, what successful tec...
02/06/2021

Another great virtual meetup this morning! We chatted about boundaries, where we struggle with them, what successful techniques we can replicate, and how being a Sib influenced our sense of appropriate boundaries.

Do you struggle with boundaries? What works for you?

Boundaries Series: Part 5

This series on boundaries has been mainly aimed at these people ⬇️

🚧 Some people are naturally excellent at setting boundaries but if you fall into any of these categories, there’s a good chance you’re not.

🙏🏼 It’s not about making people selfish, or encouraging them to create walls. This is about empowering those who have spent their whole life people pleasing or appeasing toxic people at the expense of their own mental health.

🌻 If it’s encouraged even a couple of those people to protect themselves, I’ll be so happy.

Great opportunity for Sibs!
01/28/2021

Great opportunity for Sibs!

Did you miss our first two sessions in mindfulness? No problem! The self-paced courses are available until March and our recorded live sessions have been archived and posted to view!

Please join us in our 3-part course in mindfulness created just for people with intellectual, developmental and other disabilities and their siblings!

Our third self-paced course is scheduled to be available on February 2nd and our third live session is on February 16th, 2021 7-8pm CT

More information and registration here:
http://ow.ly/Pr6A50DaKH1

Tomorrow (Monday) at 5 pm Pacific!
01/17/2021

Tomorrow (Monday) at 5 pm Pacific!

Don't miss the BIPOC Sibling Roundtable Part 2 tomorrow!

Please join us for our second BIPOC Sibling Roundtable on MLK Jr. Day next Monday, January 18th at 5:00 p.m. Pacific/7:00 p.m. Central/8:00 p.m. Eastern Time. Offered in partnership by the Sibling Support Project, Special Needs Siblings and The Sibling Leadership Network. Click below to register for this free event!

http://ow.ly/9Ul350DaL6q

See below for information about how caregiving Sibs and other caregiving family members can get a COVID vaccine.
01/14/2021

See below for information about how caregiving Sibs and other caregiving family members can get a COVID vaccine.

EDITED POST 2/4/21
DDS issued this letter to help families served by Regional Centers to access the vaccine for their unpaid caregivers but Ventura and LA do not have enough supply. We will post when we hear they have opened it up to families.

You can view and print the letter here but once the county does allow this, you will still need proof from the regional center that your child is served. TCRC has a form on their site to request that be emailed to you.
DDS firm =https://www.dds.ca.gov/wp-content/uploads/2021/01/COVID-19VaccinePhase1ALetter_FamilyMembers_01132021.pdf
TCRC’s site = www.tri-counties.org

01/02/2021
www.dfeh.ca.gov

Did you know that the California Family Rights Act (CFRA) has been expanded in 2021? This California equivalent of the Family and Medical Leave Act (FMLA) now includes protections for Sibs that are caring for their sibling's serious health condition, and is also expanded to employers as small as 5 employees. The leave is only required to be unpaid and serves as job protection, but many employers also offer compensation.

Consider whether you should begin the process of qualifying for this leave status that can be taken intermittently.

https://www.dfeh.ca.gov/wp-content/uploads/sites/32/2020/12/Coming-Soon_Expanded-Family-And-Medical-Leave_ENG.pdf

As you prepare your final donations for the year, please consider a gift to CaliforniaSibs (https://www.californiasibs.o...
12/29/2020
Special $300 tax deduction helps most people give to charity this year – even if they don’t itemize | Internal Revenue Service

As you prepare your final donations for the year, please consider a gift to CaliforniaSibs (https://www.californiasibs.org/donate). A few of our projects for the upcoming year include:
* Virtual meetups for Sibs
* Guest speakers on topics important to Sibs (financial trusts and savings, disability housing, respite, family planning)
* Sib Future Planning Guide

IR-2020-264, November 25, 2020 — The Internal Revenue Service today reminded taxpayers of a special new provision that will allow more people to easily deduct up to $300 in donations to qualifying charities this year.

New opportunity to participate in research about Sibs.
12/09/2020

New opportunity to participate in research about Sibs.

New Sibs Research Call for Participants!

"Siblings of Individuals with Developmental Disabilities

Are you a siblings, at least 18 years old and living in North America?

We are in search of participants for a research study on the long-term effects of growing up with a sibling who has a developmental disability.

Take part in our study and contribute to a relatively new and important area of research!

Research conducted by Dr. Avidan Milevsky and MA student Orly Singer at Ariel University in Isreal.

20 minute interview over Zoom with the researcher

To set up an interview or for any questions, please contact Orly Singer at [email protected] or 773-780-7034"

Find more in our Sibling Research Corner:
http://ow.ly/1tgl50CC8Ib

This is a great tool for checking in with yourself about how you’re doing. One of the most courageous things you can do ...
11/25/2020

This is a great tool for checking in with yourself about how you’re doing. One of the most courageous things you can do is to ask for help when you are struggling or in crisis.

Are you thriving or just surviving? The COVID pandemic has created a concurrent crisis around mental health. We all need to be taking care of each other, but that includes ourselves. This is especially true for healthcare workers. This site from the Colorado Healthcare Ethics Resource Group offers information and resources to help address the anxiety and stress that can, if left unaddressed, deteriorate into crisis. https://cohcwcovidsupport.org/

If you’ve attended our Intro to Sibs workshop, you’ve seen some of Meghan Burke’s work featured. Here’s a great new info...
11/13/2020

If you’ve attended our Intro to Sibs workshop, you’ve seen some of Meghan Burke’s work featured. Here’s a great new infographic that summarizes the key need in each age group.

SLN member & previous Board member, Meghan Burke, tells Impact about the common experiences, roles, needs, and supports of siblings of individuals with IDD across the lifespan.
http://ow.ly/cmFc50CerLi

"The sibling relationship is typically the longest lasting familial relationship. When a disability is present, siblings may fill unique roles for their brothers/sisters with intellectual and developmental disabilities (IDD). Such roles may include advocates, supporters, and caregivers, to name a few. Sibling relationships and roles are shaped through a dynamic, lifelong, and reciprocal process, which includes the contributions of all family members (Cicirelli, 2013; McHale, Updegraff, & Whiteman, 2012). To have a holistic understanding of the lived experiences of siblings of individuals with IDD, it is important to examine the interaction between the life course and the experience of disability."

Also see Sibling Needs Across the Life Course http://ow.ly/mQGv50CerLk

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Concord, CA

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Hi all! Thank you Kalyn Farris for pointing me in this direction! LA Sib here wanting to get involved :D
Clovis FRC webinars are free and open to everyone. Please join us as Nikki Donnelly and Liza Stack from CA Sibs Network share important information and resources. Register at: www.tinyurl.com/FRCsibs
Check out this!
Happy CP awareness day!
Virtual Mindfulness class for Sibs for high school and college age!
"I’m able to be here today because I decided that I was not going to use my situation or my disabilities as an excuse. I’m not going to let my inability to see stop me. I’m not going to let my label as a foster youth stop me." As told to story about Ricardo Rodriguez, a 26-year-old San Diego resident and former foster youth with disabilities who balances a job in tech with volunteer work and entrepreneurial pursuits. Great video accompanying the story!
Here's a high-profile sibling story I thought you might be interested in.
Hi Sibs, I'm exploring the idea of inviting my sibling to stay with me for a month in Berkeley. What are some organizations in Berkeley we could get involved with volunteering? I'd like to find a community group or something for us to do together. Doesn't have to be disability-related.