Journey 4 A Cure

Journey 4 A Cure Preview us at www.Journey4ACure.org.
Our journey began in March 2010 when Declan Carmical, was diagnosed with AT/RT, a rare form of brain, spine and kidney cancer. For 5 months he bravely endured a series of procedures and treatment strategies as part of a protocol which offered the best possible option for his survival. It offered us hope but no promise of a cure for Declan; sadly he lost his battle just 8 days shy of his 1st birthday. Our family fought tirelessly on behalf of Declan; however, our ability to help was compromised......there were no answers, there was no known cure and there was little hope. Our lives are forever changed and our purpose is clear. As a family, we are committed to voicing the raw truth about pediatric cancer. In this world of medical breakthroughs and new therapies, there has been little advancement in the world of pediatric cancer. Research for a cure is limited by lack of funding and without research, our children are left to fight cancer with few resources and little hope. No parent should have to hear the words “your child has cancer”, followed by the words “and there is no known or proven cure”. A cure is possible and it’s our responsibility to make it available. Throughout our journey, our resolve was strengthened by the many wonderful people who walked with us. People from all over the world connected to share the story of sweet Declan. It is with this same spirit that we hope to unite people once again to work towards a cure for Pediatric Cancer! How Can You Help? Start the conversation.... Did you know...... - Pediatric Cancer is the #2 overall killer of children in the U.S. The #1 killer is vehicle related accidents. Consider how much we as a society spend on vehicle related research (i.e. seatbelts, crash tests, car seats, booster seats, etc.). Every time we buy a vehicle we invest in this research. There is no comparable revenue stream in place for Pediatric Cancer. - The American Cancer Society’s Annual Report shows $1 BILLION in total public support and it’s Extramural/Intramural Funding in Priority Areas shows only $4 MILLION is directed to childhood cancers. Less than half a penny of each of these dollars is directed to the #1 killing disease for kids under the age of 20. - For children between 1-19 years, cancer is the fourth leading cause of death overall, and the leading cause of disease related death. It remains responsible for more deaths from ages 1-19 than asthma, diabetes, cystic fibrosis and AIDS COMBINED. - Approximately 36 U.S. children and adolescents are diagnosed with cancer every single day - 1 in every 300 children will develop cancer before the age of 20, 1 in every 5 of those children will not survive. - National Cancer Institute’s (NCI) has a $5 billion budget, funded from taxpayer dollars, from this total ALL twelve major pediatric cancers received LESS THAN 3% of this budget. - For every six research dollars per patient with AIDS and every one research dollar per patient with breast cancer, a child with cancer receives only 30 cents. - It would only take $35 per American to develop a new drug/cure for each of the 12 most common pediatric subtypes and save 250,000 children/families. We welcome any suggestions, ideas, and comments at [email protected]. Join us as we journey to end childhood cancer!
(15)

Operating as usual

Journey 4 A Cure's cover photo
09/04/2020

Journey 4 A Cure's cover photo

Journey 4 A Cure
09/04/2020

Journey 4 A Cure

CureFest for Childhood Cancer
09/04/2020

CureFest for Childhood Cancer

Childhood cancer doesn’t stop during a pandemic so neither can we!

With that in mind, CureFest 2020 will take place this September 26 but in a new interactive virtual format that will allow many more families from across the world to participate in their own communities.

While we will not be hosting an in-person event in our Nation’s Capital, 2020 promises to be our widest-reaching CureFest in its 8-year history.

To register, www.curefestusa.org

Due to the many health, travel and permitting issues related to COVID-19, we made the decision to put energy into bringing you a first-class, inter-connected experience through the use of social media, smart phone technology and exercise.

Despite the new format, our mission has not changed. CureFest will continue to unite the childhood cancer community, increase awareness of childhood cancer and advocate for more funding for research.

Here are some of the new features of CureFest:

Neighborhood and Community CureFest Walks

Rather than one large walk in Washington, DC, this year will feature hundreds of small, informal CureFest walks around the country. Some walks may involve one person and others might involve many families.

Custom CureFest App

Participants will be interconnected virtually through an interactive, custom app that will count the group’s steps for the day. Based on the number of participants, we will have a group goal for steps taken on September 26. There will also be unique ways for families to share updates and words of encouragement with other families.

Personalized Video Tribute for fighters, survivors and angels

This year, families will have the opportunity to honor their child by submitting a short, personalized video. Each video submitted will be edited into a tribute video that will be shared on social media on September 26 and beyond. Additional details will be provided later this month.

30-minute CureFest Webcast

CureFest program with speakers and performers which will be streamed on September 26, 2020 prior to the community walks.

Honor Beads and Medals

Families will have the opportunity to purchase honor beads and medals for survivors, fighters and siblings. We will also have a special tribute for children who have passed away from childhood cancer.

Candlelight Vigils

Families will be encouraged to hold small candlelight vigils in their own yards or neighborhoods the evening of September 26.

In addition, the CureFest Team is working on other enhancements to this year's event. We will post details throughout the summer.

​To register, www.curefestusa.org

10 years ago today we lost our beautiful Declan.  God bless you all for donations in his memory xo
08/18/2020

10 years ago today we lost our beautiful Declan. God bless you all for donations in his memory xo

AUGUST FUNDRAISER - Donate $10 in memory of Declan

AUGUST CHALLENGE:  Donate $10 and challenge 3 friends to do the same, every donation brings us closer to a cure.  Your d...
08/15/2020
T-Cell Immunotherapy for Leukemia and Lymphoma (PLAT)

AUGUST CHALLENGE: Donate $10 and challenge 3 friends to do the same, every donation brings us closer to a cure. Your donations to J4AC help support this groundbreaking research at Seattle Children's. These kind of treatments give kids treatments and cures they deserve. Please join our August challenge so we can continue to support Dr. Michael Jensen's research at Seattle Children's. Thank you!
https://www.seattlechildrens.org/clinics/cancer/research-and-clinical-trials/t-cell-therapy-leukemia/

Trials at Seattle Children’s are currently testing CAR T-cell therapy in infants, children and young adults with relapsed or refractory acute lymphoblastic leukemia (ALL) or lymphoma who are not likely to survive with current treatments. These trials are known as Pediatric Leukemia Adoptive Therap...

Scientists Focus on Fusion Proteins in Childhood Cancers
08/15/2020
Scientists Focus on Fusion Proteins in Childhood Cancers

Scientists Focus on Fusion Proteins in Childhood Cancers

Fusion proteins drive the development of many cancers in children, yet little is known about their biology. NCI’s Fusion Oncoproteins in Childhood Cancers (FusOnC2) Consortium brings together experts from varied disciplines to investigate these cancers. Their work could lead to new treatments for ...

DIPG is a terminal diagnosis for children.  Your donations to childhood cancer help support groundbreaking research that...
08/15/2020
Study suggests new potential approach against fatal childhood brain cancer

DIPG is a terminal diagnosis for children. Your donations to childhood cancer help support groundbreaking research that will give kids the cures they deserve.

Progress against DIPG, a fatal childhood brain tumor, is usually a game of inches. Studies that hint at even small gains are cause for celebration.

08/14/2020

Won't you join our August challenge donate $10 and challenge 3 friends to do the same! $620 helps us buy 2 iPads - help us get there tonight!

J4AC is all volunteer, no paid salaries so every dollar supports kids.  We desperately need your support to keep J4AC go...
08/12/2020

J4AC is all volunteer, no paid salaries so every dollar supports kids. We desperately need your support to keep J4AC going. Any donation helps. Please help and share.

AUGUST FUNDRAISER - Donate $10 in memory of Declan

Think about kids battling cancer in hospitals, in isolation, waiting for treatments- iPad boxes are a blessing to these ...
08/09/2020

Think about kids battling cancer in hospitals, in isolation, waiting for treatments- iPad boxes are a blessing to these kids. Wont you join our August challenge? Donate $10 and invite 3 friends to do the same. A few bucks from everyone can help J4AC continue this program! Happy Sunday, stay safe.

AUGUST FUNDRAISER - Donate $10 in memory of Declan

Donate $10 to our August challenge and ask 3 friends to do the same.  Help us bring smiles like this to kids battling ca...
08/07/2020

Donate $10 to our August challenge and ask 3 friends to do the same. Help us bring smiles like this to kids battling cancer with our iPad program. Please donate today1

We hope this sweet face brings as much joy to you as it does to us! Three year old Lucas just received his iPad and goodie box from Journey 4 A Cure! ❤️ J4AC sends these boxes to children in treatment for cancer and it's "chill bump" amazing to see what a HUGE impact this program has had on the lives of these children.

We are going to commit to sending one iPad a month out to a child battling cancer. We will also have a donation jar in our store, so please consider making a donation when you visit. You can drop a coin or you can drop a bill.....every single penny counts. 🥰

Full disclosure, my mother, Donna, and sweet friend, Diana, run this program. They work tirelessly to send a box to every child on the list; however, the list is long and funds are short. With all the negativity in this crazy world, I can think of nothing more fulfilling than positively impacting the lives of these brave children. ❤️❤️❤️

#maketheworldbetter
#dogoodeveryday
#j4ac
#yourcbdva

AUGUST FUNDRAISER - Donate $10 in memory of Declan
08/03/2020

AUGUST FUNDRAISER - Donate $10 in memory of Declan

07/18/2020

We are excited to announce that "Your CBD Store" in Gainesville, VA will be partnering with J4AC to support our iPad program. This couldn't come at a better time. The COVID virus has impacted all of our lives but one thing hasn't changed, the number of kids diagnosed with cancer continues to climb. These kids desperately need our help and support. We are so happy to have this new partner to help us help kids!

Our hearts are full! The photos we’ve been receiving of happy children with their iPads fills us with joy!  Vanessa just...
07/17/2020

Our hearts are full! The photos we’ve been receiving of happy children with their iPads fills us with joy! Vanessa just received her special package from our J4AC team and her mother shared that she was overjoyed and told her mommy how pretty everything was! Nothing is prettier than that smile! ❤️
Vanessa loves music, dancing, Peppa Pig, the color pink, and pizza!!
Vanessa is celebrating her 3rd birthday in mid August! We wish you an early happy birthday, sweet girl. Enjoy your iPad!

We are in love with this photo! Meet 3 year old Lukas!  He just received his iPad and a box of goodies from J4AC and we ...
07/16/2020

We are in love with this photo! Meet 3 year old Lukas! He just received his iPad and a box of goodies from J4AC and we think this amazing smile says it all! Lukas has a love of countless things! Trains, planes and automobiles to start! Music, dancing, soccer, swimming, dinosaurs! The list is long. What a kid! Enjoy your iPad, Lukas! ❤️

2nd quarter iPads went out earlier this week and we are thrilled to know one package already reached its destination... ...
07/15/2020

2nd quarter iPads went out earlier this week and we are thrilled to know one package already reached its destination... into the hands of beautiful 4 year old Gelila! She is so happy with all the goodies and her new iPad! Gelila loves to sing and dance and we bet she’s amazing at both! Enjoy your iPad, sweet girl!

We have one happy little man here! Say hello to Anthony! He just received his iPad from our Journey team today.  We are ...
04/20/2020

We have one happy little man here! Say hello to Anthony! He just received his iPad from our Journey team today. We are so pleased that he loves it! Anthony loves Pokemon, dinosaurs and Spiderman! Sounds good to us! Enjoy your iPad, Anthony!

If you would like to help us with a donation for the iPad program, we are always in great need of funds and we are always so grateful. Your support is why we are able to make kids like Anthony smile!

Please help if you can.  If you are able to donate even a few dollars it will help us get ipads to sick kids!! We know p...
04/16/2020

Please help if you can. If you are able to donate even a few dollars it will help us get ipads to sick kids!! We know people are having tough times during this pandemic. We will keep you in our prayers.

Please share.

Stimulus challenge for childhood cancer! Please help and share to help kids! #stimuluschallenge4kids

Quarantine and fundraising so tough -- but childhood cancer hasn't stopped! Would you donate a few $s to help us continue to provide iPads to kids with cancer. Please donate $5 and challenge 5 friends to donate $5 today! God bless!

Looking for an activity for your kids?  Making cards for hospitalized kids is a great way to cheer up kids.  Please see ...
03/19/2020
Make General Cards

Looking for an activity for your kids? Making cards for hospitalized kids is a great way to cheer up kids. Please see address below.
http://www.cardsforhospitalizedkids.com/make-general-cards.html

General cards are cards that have a general uplifting message, rather than one specific to a hospital or season. These are cards that we distribute year-round each month, rather than during...

Another sweet child lost to deadly pediatric cancer.  So not fair, when will we make childhood cancer research a #nation...
03/09/2020
John Varney Obituary - Washington, DC

Another sweet child lost to deadly pediatric cancer. So not fair, when will we make childhood cancer research a #nationalpriority to give kids cures they deserve. RIP John. Please keep John and his family in your prayers.

Celebrate the life of John Varney, leave a kind word or memory and get funeral service information care of Joseph Gawler's Sons, LLC.

Say happy birthday to this absolutely precious little man!  Carter turned 3 years old yesterday!  He received one of our...
03/09/2020

Say happy birthday to this absolutely precious little man! Carter turned 3 years old yesterday! He received one of our awesome iPad program sponsor's (Joyce Koons Honda) special packages- filled with personalized goodies and a brand new iPad. His mom shared with us that he is so happy to be able to watch his favorite shows during clinic visits. Carter loves basketball, Mickey, Puppy Pals, race cars, trucks and MUCH more. Enjoy your iPad, Carter! And thank you, Koons!

03/09/2020
www.journey4acure.org

We are in the processing of finalizing iPad applications for the first quarter of 2020. If you have a child or know of a child in need of an iPad, that is in active treatment for pediatric cancer, please go to our website to see the criteria, instructions and download an application. Thank you.

visit our website at https://www.journey4acure.org

03/01/2020
Radioactive feat Sydney Sherwood & Nicole Ricken (Imagine Dragons cover).

Kids deserve the best we can give them ... this will not happen until childhood cancer research becomes a #nationalpriority ! #kidshelpingkids

Radioactive, It's a Revolution....Very few members of the general public know that childhood cancer research is dramatically underfunded. Please watch and sh...

02/09/2020

As we were analyzing our 2019 Year, we decided a year in review was in order. Below is a quick summary of what we did and another thank you to our amazing donors. A big picture look at how much your donations mean!

With the help of our supporters we were able to donate $25,000 to Dr. Jensen's immunotherapy childhood cancer research at Seattle Children's (this work has entered the clinical trial phase - to date J4AC has donated $315,000 to this amazing work).

With the help of our wonderful partners at Joyce Koons Honda GMC of Manassas we sent iPad boxes to 88 kids battling cancer! Those boxes bring big smiles to kids battling cancer. We continued our advocacy work by supporting the 8th Annual CureFest that was held on the Mall in Washington, DC in September 2019.

The South County girls volleyball team and their coach Dan Clarke raised over $4,000 to support the iPad program; Equinix had a fundraiser that donated over $10,000 to J4AC; and our amazing donors supported us by having facebook birthday and other fundraisers that provided $7,000; finally our contributions through pay pay generated $8,000, we have a few amazing donors that contribute on a monthly basis. The Amazon Smile program gave us a few bucks - keep selecting J4AC.

We are all volunteer and we held no major fundraiser in 2019 but our amazing donors allowed us to continue the support above. Thank you and God Bless!!

Part 1: Grief – What It Isn’t
02/07/2020
Part 1: Grief – What It Isn’t

Part 1: Grief – What It Isn’t

“I’m so sorry for your loss.” These are the words we automatically turn to when someone tells us they’ve lost someone. These words are a good start, but we often find ourselves grasping for more…

Love, love, love this idea!!  Buying childhood cancer merchandise goes back to support childhood cancer families.  Pleas...
01/31/2020

Love, love, love this idea!! Buying childhood cancer merchandise goes back to support childhood cancer families. Please visit the love my merch page and their website that will be open for business soon. https://lovemymerch.com/?fbclid=IwAR1wl5ZVEQS3BUiNWVRvLs-j0OoPwicR-ZdofSf5FNQmtWbY8qQqNfDdPKk

We first came up with the idea for Love My Merch last year after seeing tons of Facebook ads for Childhood Cancer Awareness shoes.

Posted by a large overseas manufacturing company, the ads generated thousands of likes hundreds of comments from childhood cancer families and advocates.

About half of the comments were from people who were excited about buying the shoes. Many tagged their friends and made comments like "I need these shoes!" or "We should buy these!" The other half of the comments were from people wondering where the funds went. They were considering buying the shoes but wanted to know if any of the proceeds would be donated to the cause.

It turns out that even though the company has a name that sounds like a cancer charity, they donate $0 to the cause. It is their right to keep their profits but we wanted to do something that would help raise awareness AND help others at the same time.

We figured that we could design our own shoes, t-shirts, hoodies and other custom items and then donate all of the profits to childhood cancer families that have fallen through the cracks. (The examples in this post are products we had designed and will we be selling on our site.) We are using the Print on Demand model so we don't have to carry any inventory and the items are sent directly from the printer to the customer.

Our primary goals are to help families of children who have passed away, children who have been stuck in treatment for years and for survivors who have ongoing medical bills due to late effects of treatment.

Sadly, many of these families only get help from their communities when their child is first diagnosed. After a while, the support dries up even though they still have needs. Their GoFundMe's go dormant while the bills continue to come in.

We see these families suffer in silence as they face financial ruin through no fault of their own. Many take out second and third mortgages and rack up credit card debt just to get by.

Love My Merch is different than a typical fundraiser because supporters get something of value in return. They are basically buying custom apparel at normal prices and the profits are used to help others.

Our website is www.lovemymerch.com. You can check it out now but we won't officially be launching it for a few more days.

Our goal is to keep overhead very low so we have hired an art student to manage the campaign for us. We also would love to build a team of volunteers who can help her come up with design ideas and manage the family support component. If you are interested please send us a DM or e-mail Kenzie at [email protected].

Also, if you now of a family that could benefit from Love My Merch, please contact us. We are starting small but will expand to more families once we are sure that we have everything in order.

Lastly, if you have any design ideas, please send them our way! We found several freelance designers who will turn any saying or concept into a professional design for only $5 - $10 each.

Thanks again for following this page!

Address

43300-116 Southern Walk Plaza #649
Ashburn, VA
20148

General information

Direct Contact - [email protected]

Alerts

Be the first to know and let us send you an email when Journey 4 A Cure posts news and promotions. Your email address will not be used for any other purpose, and you can unsubscribe at any time.

Contact The Business

Send a message to Journey 4 A Cure:

Videos

Why we Journey

Childhood cancer is the #1 disease related killer of kids in the United States, and the incidence of childhood cancer continues to rise. Each day 43 kids are diagnosed and 7 of those kids are terminal on diagnosis. Our leaders believe that childhood cancer is rare and not worthy of being a priority when it comes to how BILLIONS of research dollars will be spent each year. They believe that the 2,000 kids a year that lose their battle with cancer and the half a billion survivors of childhood cancer don’t rise to the level of a national priority. So kids continue to suffer and die due to the fact that childhood cancer research is not a priority and that means there are insufficient pediatric drugs, treatments and protocols to cure childhood cancer. Help us change this picture for kids, help us demand that our kids and childhood cancer research become a #nationalpriority!

Nearby non profit organizations


Other Nonprofit Organizations in Ashburn

Show All

Comments

Elizabeth Weidner, 14 and a Stage IV Neuroblastoma Warrior who survives each day with that cancer! She is our daughter working on a project to EDUCATE the public about CHILDHOOD CANCER that she hopes to take with her when she speaks that will HONOR all those who participate! She is currently, the Effingham County Fair Queen Jr. Miss and the Beauty of Hope Benefit Pageant Illinois/Indiana for the American Cancer Society Jr. Miss who has something to say with her platform Crowns Against Cancer! If ANYONE has a cancer t-shirt (any size new, outgrown, or faded will work) that you would to donate to this educational project, please IM for our address. She's especially interested in t-shirts that are specific to the CHILDHOOD CANCER fight since she herself is in that fight trying to educate, motivate, and take action! However, she will accept any shirts though that are caregiver, warrior, or motivational (fundraiser/foundation/meaningful quotes) cancer shirts. Please feel free to share this post with others! THANK YOU in advance. Please delete if it doesn't meet your mission!