Journey 4 A Cure

Journey 4 A Cure Preview us at www.Journey4ACure.org. Our journey began in March 2010 when Declan Carmical, was diagnosed with AT/RT, a rare form of brain, spine and kidney cancer.
(33)

For 5 months he bravely endured a series of procedures and treatment strategies as part of a protocol which offered the best possible option for his survival. It offered us hope but no promise of a cure for Declan; sadly he lost his battle just 8 days shy of his 1st birthday. Our family fought tirelessly on behalf of Declan; however, our ability to help was compromised......there were no answers,

For 5 months he bravely endured a series of procedures and treatment strategies as part of a protocol which offered the best possible option for his survival. It offered us hope but no promise of a cure for Declan; sadly he lost his battle just 8 days shy of his 1st birthday. Our family fought tirelessly on behalf of Declan; however, our ability to help was compromised......there were no answers,

Operating as usual

06/06/2021

Today is #NationalCancerSurvivorsDay. We can't imagine celebrating our survivors without recognizing the children who have passed away from cancer. Because of these innocent children, their families, and their willingness to participate in clinical trials, many children are surviving today. Unfortunately, many are also still dying. So today, on National Cancer Survivors Day, we ask you to not only celebrate the children who are fortunate to have the precious opportunity to grow up, but also remember the children who have contributed to that opportunity, while their "cures" have come too late. Our thoughts and thanks are with their families today and every day.

As more children are growing up as survivors of childhood cancer, we look to support the ongoing needs of survivors and their caregivers who often manage a lifetime of late-effects and quality of life challenges. No matter the phase of treatment, peer support and community are important tools to navigating life after a pediatric cancer diagnosis. Our mission remains important in survivorship support and care. We are grateful for the families who contribute their experience and knowledge to the ongoing benefit of others traveling a similar path. Together, we are community.

FUND RESEARCH, SUPPORT FAMILIES, ADVOCATE & END CHILDHOOD CANCER.

#ChildhoodCancerAwareness #ChildrenAreMorePreciousThanGold #Momcology #ncsd #CommunityMatters #ChildhoodCancerSupport #MoreTogether

Immunotherapy drug delays recurrence in kidney cancer patients
06/06/2021
Immunotherapy drug delays recurrence in kidney cancer patients

Immunotherapy drug delays recurrence in kidney cancer patients

Treatment with an immunotherapy drug following kidney cancer surgery, prolonged disease-free survival rates in patients at high risk for recurrence, according to an interim report of a phase 3 clinical trial of adjuvant immunotherapy in this patient population.

06/06/2021

Lets be very clear: Children do not lose their battle to cancer, they are stolen by it. Cancer steals nearly 300 kids around the world every single day. We need to make childhood cancer a National and a Global Priority.

06/06/2021
06/04/2021

Peace out 6th grade! Congratulations to cancer survivor Kacey! She will start middle school in the fall!

Check out a short excerpt from an interview we filmed back when Kacey was just 7 years old! The link is in the comments!

Wed love to give a big grateful shout out to Kimberly and Luke Of Old Virginia Smoke for raising almost $3500 for our iP...
06/03/2021

Wed love to give a big grateful shout out to Kimberly and Luke Of Old Virginia Smoke for raising almost $3500 for our iPads4Cancer program! COVID definitely hurt our fundraising so it’s support like this that enables us to keep sending iPad boxes to kids in treatment! Thank you from the bottom of our hearts! ❤️ You guys are awesome... and so is your BBQ!! 😉
- with Donna Carroll Carmical and
Beth Collingwood

Wed love to give a big grateful shout out to Kimberly and Luke Of Old Virginia Smoke for raising almost $3500 for our iPads4Cancer program! COVID definitely hurt our fundraising so it’s support like this that enables us to keep sending iPad boxes to kids in treatment! Thank you from the bottom of our hearts! ❤️ You guys are awesome... and so is your BBQ!! 😉
- with Donna Carroll Carmical and
Beth Collingwood

Photos from TheTruth365's post
06/03/2021

Photos from TheTruth365's post

Photos from Strong like Nora- A fight against Neuroblastoma's post
06/01/2021

Photos from Strong like Nora- A fight against Neuroblastoma's post

Photos from Jace Ward - #Tough2Gether's post
06/01/2021

Photos from Jace Ward - #Tough2Gether's post

Happy Birthday Reed!
06/01/2021

Happy Birthday Reed!

Happy 14th Birthday to childhood cancer survivor and advocate Reed Morgan!

Please join us in wishing Reed a very happy birthday!

05/26/2021

Tune in this afternoon at 2:00 ET for a Children's Brain Tumor Network FaceBook Live with our friend Ellyn Miller as she joins top childhood brain cancer doctors Adam Resnick, Cassie Kline, Michael Prados, and Krutika Gaonkar; along with CNN reporter, Andrew Kaczynski as they discuss how science of brain cancer has changed over the past 50 years and the possibilities of the coming years.
#WeWontStop #CrackTheCure

05/25/2021

One of the new features of CureFest 2021 will be a large display of over 2,000 pairs of children's shoes at the base of the Washington Monument.

This powerful memorial will visually represent the number of U.S. children who pass away each year from cancer.

We will post information about the shoe display in the coming weeks. Parents of children who have passed away from cancer will be able to send us shoes that will be included in the memorial. Also, there will be many volunteer opportunities for individuals and groups in the Washington, DC-area since we will need help collecting and organizing the shoes.

For more details, send us a DM or send us a message through the Contact Us form on our website at www.curefestusa.org.

Smashing Walnuts is breaking down barriers ....
05/25/2021

Smashing Walnuts is breaking down barriers ....

Highlights from this past week:

I had the opportunity to meet with staffers from the offices of Representative Kelly (IL) @reprobinkelly , Representative Tonko (NY) @reppaultonko , Senator Johnson (WI) @senronjohnson , and Senator Tuberville (AL) @sentuberville to continue advocating for the Gabriella Miller Kid’s First Research Act 2.0.. I also attended the CAC2 study policy meeting.

In addition, I was invited to be apart of the CCDI steering committee (look out for more information about this!), and I virtually attended the CCDI ALL HANDS ON DECK meeting.

Lastly, but surely not least, on Thursday and Friday, CBTN @childrensbraintumornetwork held their annual investigator meeting. I spoke on how the community can rally to support our legislation.

It’s been a busy week! 🙌🏼

05/25/2021

The 10th annual CureFest for Childhood Cancer will take place in-person in Washington, DC this September 25 & 26. For those who are unable to come to DC, there will also be virtual component with CureFest-related activities and events in 50 states and 50 countries.

www.curefestusa.org

The DC-event will be a modified version of CureFest designed to meet COVID-related health and safety regulations.
Saturday's events will be on Freedom Plaza and Sunday's events will take place at the Sylvan Theater, an amphitheater near the Washington Monument.

Planning is also underway for additional events in DC prior to and
after CureFest Weekend. These events include The Golden Toast (Thursday), the Childhood Cancer Summit (Friday) and Climb the Hill youth lobby days (Friday and Monday) and a Rally to the Capitol or White House (Saturday). These events are tentative and final decisions will be made at a later date.

Since not everyone will be able to come to DC, we will also be encouraging families from around the world to host CureFest activities in 50 US states & 50 countries.

This was very successful in 2020 and allowed us to reach more people than ever! These grassroots events include walks, marches, community festivals and candlelight vigils.

If you have any questions in the meantime, please send us a message through Facebook or [email protected].

05/20/2021

Happy 21st Birthday to childhood cancer survivor Alexa Blair! Alexa was diagnosed with stage 4 kidney cancer when she was 4 years old.

We first met Alexa through Velocity Dance Convention several years ago when she was touring the country with their MVA+ program.

Please join us in wishing Alexa a very happy birthday!

Photo by Jennifer Robertson Photography. Hair and makeup by Rosa Bella Artistry.

Jennifer Robertson Photography

Rosa Bella Artistry

Photos from TheTruth365's post
05/17/2021

Photos from TheTruth365's post

05/17/2021

#braincancerawarenessmonth #teambeans

Still time to register.  Still time to donate!   Fun race for all, May1st!  Register and donate to Journey4ACure
04/23/2021

Still time to register. Still time to donate! Fun race for all, May1st! Register and donate to Journey4ACure

SATURDAY May 1st! Still time to register to run or donate!

Spring is in the air and we desperately need your support! Please sign up for Run the greenway today! Lots of options for supporting childhood cancer, for having fun too! Please sign up today and ask your friends to sign up too!

https://runsignup.com/Race/VA/Dulles/RunTheGreenway

This year is hard, maybe it's seeing babies like Francesca (Andrew Kaczynski) waging war against AT/RT with treatments n...
04/23/2021
Tiniest Cancer Immunotherapy Trial Participant Thrives Six Years Later | On the Pulse

This year is hard, maybe it's seeing babies like Francesca (Andrew Kaczynski) waging war against AT/RT with treatments no better than the ones for Declan over a decade ago. Then so many other heartbreaking stories, kids are still dying everyday from cancer, kids are suffering everyday with the same cut, burn and poison options because there are not big dollars for childhood cancer research.
We need to make more noise and Congress to make childhood cancer research a #NationalPriority --

Ten years ago Journey4ACure started funding Dr. Michael Jensen's immunotherapy research at Seattle Children's hospital. Research that would give kids options, less invasive treatments ... his research is beginning to pay off. Thank you for helping us raise awareness and support important research.

https://pulse.seattlechildrens.org/tiniest-cancer-immunotherapy-trial-participant/

Greta Oberhofer, now 7 years old, was the first patient under age 2 included in Seattle Children’s cancer immunotherapy clinical trials.

Photos from Jace Ward - #Tough2Gether's post
04/17/2021

Photos from Jace Ward - #Tough2Gether's post

Photos from Elijah's Big Journey's post
04/16/2021

Photos from Elijah's Big Journey's post

SATURDAY May 1st!  Still time to register to run or donate!  Spring is in the air and we desperately need your support! ...
04/12/2021

SATURDAY May 1st! Still time to register to run or donate!

Spring is in the air and we desperately need your support! Please sign up for Run the greenway today! Lots of options for supporting childhood cancer, for having fun too! Please sign up today and ask your friends to sign up too!

https://runsignup.com/Race/VA/Dulles/RunTheGreenway

SATURDAY May 1st! Still time to register to run or donate!

Spring is in the air and we desperately need your support! Please sign up for Run the greenway today! Lots of options for supporting childhood cancer, for having fun too! Please sign up today and ask your friends to sign up too!

https://runsignup.com/Race/VA/Dulles/RunTheGreenway

04/11/2021

Best news yet. Finally, Jace is turning the corner after a rough 18 days. In our childhood cancer world, what Jace is doing is as big as Neil Armstrong's trip to the Moon and back. This is Jace's third trip to the "moon" and back. Hopefully he will be able to return to Kansas soon. Godspeed Jace Ward! Here's the latest from Lisa Ward, " Want to know the secret sauce to this guy bouncing back?? CHIEFFFS cookies!! A gift from Mark and Kristin Gardner Uhlrich and Handmade Sugars!! These are THE best cookies we have ever tried!! He has waited THREE days to feel well enough to eat them!!! Celebrating the first pain free day and appetite in 18 days!! (Thanks team for the perfect migraine mix and thank you all for the prayers!!). Maybe we forgot to report Thursday’s MRI showed the tumor was less dense in many places and the labs watched for Car T action were highest today!! 💪🏼#Comeback Season starts today!#tough2gether #icantdieimbusy"

04/11/2021

Today we honor and remember Kyle Addington on his 22nd birthday in heaven. Here is an update post from his family.

Happy Birthday in Heaven, Kyle.

On this day 22 years ago, we were blessed by the birth of our son Kyle, who came into this world at a whopping 9 lbs 11 oz and 22 inches long. All parents have hopes and dreams for their children and most importantly, we want our children to be healthy and happy.

Kyle was a happy kid. He was funny, smart, handsome, sweet, tough, interesting, curious, creative. I could go on and on. He was always making us laugh with his antics. He loved animals, cars, computer gaming, and wrestling with his high school team. Most of all he loved his family and his close friends. He was the kind of kid who always put others’ needs before his own and was fiercely loyal.

Many people who knew Kyle didn’t realize that this happy kid grew up with food allergies (egg, wheat, peanuts) and Crohn’s Disease. He never let either get in his way. So, in December 2014 when he was diagnosed with Acute Myeloid Leukemia (AML) he wanted to get his treatment over with so he could get back to his life. He had a positive attitude, never complained, was in one of the best medical facilities in the world, and had the love and support of more people than he even knew.

All of this was no match for his treatment-related AML which resisted three rounds of chemotherapy, an investigational drug, radiation, and a bone marrow transplant. Kyle passed away on July 15, 2015 at the age of 16—one week after he returned from his Make-a-Wish trip to Disney World.

At the outset of Kyle’s diagnosis when I asked his oncologist what his chances were for a cure, he told me 50/50. Those odds kept getting worse as his cancer proved too much for the treatment. Kyle was not eligible for many clinical AML trials because he was a pediatric patient and adults had to go through trials first. We ran out of options.

No child should ever run out of options to live their life because treatment for their type of cancer hasn’t been improved upon in 20-30 years.

We are heartbroken at the loss of our precious son. Our hearts feel like they have been ripped out of our bodies. But, we are fighting and will continue to fight in Kyle’s memory for all the children who are battling cancer, who will battle cancer, who are survivors, and who had their lives cut short because of cancer. We fight because of Kyle and because that’s what he would have wanted us to do. He wanted there to be a cure for cancer so other kids wouldn’t have to go through what he did.

We are Crusaders conquering childhood cancer. Join our fight at:

Kyle's Crusaders

Wendy, Mike & Ryan Addington

Happy Birthday to awesome cancer fighter and childhood cancer advocate Kyle Stepp!
04/11/2021

Happy Birthday to awesome cancer fighter and childhood cancer advocate Kyle Stepp!

Happy Birthday to childhood cancer survivor, amputee and advocate, Kyle Stepp from New Mexico!

A CureFest host, Kyle is an all around great guy and one of the most inspirational persons we have ever met!

Please join us in wishing Kyle a very happy birthday!

#StepByStepp #OneSteppAtATime #NewBeginnings #AmputeeLife #OptOutside

Photos from Nathan the Super Hero's post
04/10/2021

Photos from Nathan the Super Hero's post

Photos from TheTruth365's post
04/09/2021

Photos from TheTruth365's post

04/08/2021

Coming this Sat., Apr. 10 at 11 a.m. ET on Facebook Live!

The Gabriella Miller Kids First Research Act 2.0 Youth Advocate Roundtable is this Saturday morning on Facebook Live. Hosted by US Congresswoman Jennifer Wexton from VA, this online panel features childhood cancer fighters and survivors from across the country.

One of several roundtables planned for this year, the advocates will share their stories and discuss the importance of this new legislation.

Stay tuned for the link to the Facebook Live Roundtable! You can also visit Congresswoman Jennifer Wexton’s page on or after April 10 at 11 a.m. ET to watch the live or recorded discussion.

++++++++++++++++++

The Gabriella Miller Kids First Research Act was signed into law in 2014, establishing the Ten-Year Pediatric Research Initiative Fund and authorizing $12.6 million in annual funds for childhood disease research through Fiscal Year 2023. Since the original law was enacted, Kids First has made progress towards understanding childhood cancer and disease, such as initiating the Gabriella Miller Kids First Data Resource Center—a comprehensive data resource for research and patient communities meant to advance discoveries. Wexton’s legislation provides a new source of funding for the program which is expected to be exponentially larger and without an end date.

The 2.0 version of the bill would redirect penalties levied against pharmaceutical, cosmetic, supplement, and medical device companies by the U.S. Securities and Exchange Commission (SEC) for violating the Foreign Corrupt Practice Act (FCPA) towards the Kids First program. In recent years, hundreds of millions of dollars in penalties have been levied against these companies, and the Gabriella Miller Kids First Research Act 2.0 will help channel those funds directly to critical medical research focused on children.

Smashing Walnuts Arms Wide Open Childhood Cancer Foundation

Address

43300-116 Southern Walk Plaza #649
Ashburn, VA
20148

General information

Direct Contact - [email protected]

Alerts

Be the first to know and let us send you an email when Journey 4 A Cure posts news and promotions. Your email address will not be used for any other purpose, and you can unsubscribe at any time.

Contact The Business

Send a message to Journey 4 A Cure:

Videos

Why we Journey

Childhood cancer is the #1 disease related killer of kids in the United States, and the incidence of childhood cancer continues to rise. Each day 43 kids are diagnosed and 7 of those kids are terminal on diagnosis. Our leaders believe that childhood cancer is rare and not worthy of being a priority when it comes to how BILLIONS of research dollars will be spent each year. They believe that the 2,000 kids a year that lose their battle with cancer and the half a billion survivors of childhood cancer don’t rise to the level of a national priority. So kids continue to suffer and die due to the fact that childhood cancer research is not a priority and that means there are insufficient pediatric drugs, treatments and protocols to cure childhood cancer. Help us change this picture for kids, help us demand that our kids and childhood cancer research become a #nationalpriority!

Nearby non profit organizations


Other Nonprofit Organizations in Ashburn

Show All

Comments

Elizabeth Weidner, 14 and a Stage IV Neuroblastoma Warrior who survives each day with that cancer! She is our daughter working on a project to EDUCATE the public about CHILDHOOD CANCER that she hopes to take with her when she speaks that will HONOR all those who participate! She is currently, the Effingham County Fair Queen Jr. Miss and the Beauty of Hope Benefit Pageant Illinois/Indiana for the American Cancer Society Jr. Miss who has something to say with her platform Crowns Against Cancer! If ANYONE has a cancer t-shirt (any size new, outgrown, or faded will work) that you would to donate to this educational project, please IM for our address. She's especially interested in t-shirts that are specific to the CHILDHOOD CANCER fight since she herself is in that fight trying to educate, motivate, and take action! However, she will accept any shirts though that are caregiver, warrior, or motivational (fundraiser/foundation/meaningful quotes) cancer shirts. Please feel free to share this post with others! THANK YOU in advance. Please delete if it doesn't meet your mission!