Mended Little Hearts National Organization

Mended Little Hearts National Organization Empowering families affected by CHD! Hope, Help, Healing Mended Little Hearts is a program of the Mended Hearts Inc., a non-profit, volunteer-based organization providing hope, help and healing to heart patients and their families since 1951.
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The Mended Little Hearts program works nationally and in communities to support children with congenital heart defects and their families.

The Mended Little Hearts program works nationally and in communities to support children with congenital heart defects and their families.

Operating as usual

If you are looking for some beautiful children's clothing, as well as support Mended Little Hearts, Wishes ByKy is donat...
05/12/2021

If you are looking for some beautiful children's clothing, as well as support Mended Little Hearts, Wishes ByKy is donating 10 percent of their profits in May back to MHI. Visit their site at www.wishesbyky.com and help support patients and families.
#MLH #RememberOurHearts #1in110 #CHDAware

If you are looking for some beautiful children's clothing, as well as support Mended Little Hearts, Wishes ByKy is donating 10 percent of their profits in May back to MHI. Visit their site at www.wishesbyky.com and help support patients and families.
#MLH #RememberOurHearts #1in110 #CHDAware

We’re having an anniversary celebration, and you’re invited! Join us June 25 for the webinar, 70 Years of Sharing Our He...
05/12/2021

We’re having an anniversary celebration, and you’re invited! Join us June 25 for the webinar, 70 Years of Sharing Our Hearts — Making a Difference. You’ll learn more about our history, our amazing volunteers and the people we’ve worked with through the years. You don’t want to miss it!

Register now!
https://zoom.us/webinar/register/WN_8WL24LL1R5CTgfuVgBpdrA

We’re having an anniversary celebration, and you’re invited! Join us June 25 for the webinar, 70 Years of Sharing Our Hearts — Making a Difference. You’ll learn more about our history, our amazing volunteers and the people we’ve worked with through the years. You don’t want to miss it!

Register now!
https://zoom.us/webinar/register/WN_8WL24LL1R5CTgfuVgBpdrA

Be sure to join us tomorrow at 12:30 ET for our "Conversation With Mark Roeder of the Adult Congenital Heart Association...
05/12/2021

Be sure to join us tomorrow at 12:30 ET for our "Conversation With Mark Roeder of the Adult Congenital Heart Association" to learn more about resources for CHD patients and families. #MLH #CHDAware #1in110 https://zoom.us/webinar/register/WN_8N92kxKmTKOk9qlOjcRokA

Be sure to join us tomorrow at 12:30 ET for our "Conversation With Mark Roeder of the Adult Congenital Heart Association" to learn more about resources for CHD patients and families. #MLH #CHDAware #1in110 https://zoom.us/webinar/register/WN_8N92kxKmTKOk9qlOjcRokA

Do you know a teen with CHD? Teens for Hearts provides teens with #CHD with an online forum for support and interaction....
05/12/2021
Home | Mysite

Do you know a teen with CHD? Teens for Hearts provides teens with #CHD with an online forum for support and interaction. Visit the site to learn more, sign up for its newsletter and join discussions. #WeAreOne #MLH #1in110 www.teensforhearts.org

As a part of this community, one may be able to rely on the support and relationships they have built with others for whom they relate to both physically and emotionally. In turn, teens are able to create an environment for themselves that is not only nourishing, but that is also safe and secure.

Do you have a child with congenital heart disease (CHD) and wonder what resources will be available as your child grows ...
05/12/2021

Do you have a child with congenital heart disease (CHD) and wonder what resources will be available as your child grows into adulthood? In this session of our “Conversation with” series, we will interview Mark Roeder, President and CEO of the ACHA, to learn more about the many things ACHA offers CHD patients and families. We will also explore more about how Mended Little Hearts partners with ACHA to support, educate and advocate.

WHEN: May 13th at 12:30pmEST.

Register : http://ow.ly/3f1I30rHo9X

#1in110 #CHDAware #ACHA #MLH #CHDandAdulthood

Do you have a child with congenital heart disease (CHD) and wonder what resources will be available as your child grows into adulthood? In this session of our “Conversation with” series, we will interview Mark Roeder, President and CEO of the ACHA, to learn more about the many things ACHA offers CHD patients and families. We will also explore more about how Mended Little Hearts partners with ACHA to support, educate and advocate.

WHEN: May 13th at 12:30pmEST.

Register : http://ow.ly/3f1I30rHo9X

#1in110 #CHDAware #ACHA #MLH #CHDandAdulthood

Have you met this year's #RockYourScar contest winners? Read their stories here! #mendedhearts #MLH #CHDAware http://ow....
05/11/2021
Every Scar Tells a Story - Mended Hearts

Have you met this year's #RockYourScar contest winners? Read their stories here! #mendedhearts #MLH #CHDAware http://ow.ly/tVrs50EBRoB

Mended Hearts Stories - Every Scar Tells a Story Every year, Mended Little Hearts® holds a photo contest to raise awareness about congenital heart defects (CHD) and to show the power of heart warriors of all ages. Now in its seventh year, the #RockYourScar™ contest has become an international cam...

Do you sometimes feel alone on your journey? With Heartline, a caring volunteer is only a phone call away. #MLH #CHDAwar...
05/11/2021

Do you sometimes feel alone on your journey? With Heartline, a caring volunteer is only a phone call away. #MLH #CHDAware #support #heartline

Do you sometimes feel alone on your journey? With Heartline, a caring volunteer is only a phone call away. #MLH #CHDAware #support #heartline

Do you know what resources are available for CHD patients and families as their children grow into adulthood? Join us Ma...
05/10/2021

Do you know what resources are available for CHD patients and families as their children grow into adulthood? Join us May 13 at 12:30 ET for our "Conversation With Mark Roeder of the Adult Congenital Heart Association" to find out! #MLH #CHDAware #1in110 http://ow.ly/K7iZ50EBRgK

Do you know what resources are available for CHD patients and families as their children grow into adulthood? Join us May 13 at 12:30 ET for our "Conversation With Mark Roeder of the Adult Congenital Heart Association" to find out! #MLH #CHDAware #1in110 http://ow.ly/K7iZ50EBRgK

It could not be any simpler: Buy wine and support Mended Little Hearts® and Mended Hearts® ! #MLH #CHDAware #OneHopeWine...
05/10/2021

It could not be any simpler: Buy wine and support Mended Little Hearts® and Mended Hearts® ! #MLH #CHDAware #OneHopeWine http://ow.ly/wEhH50EBRaP

It could not be any simpler: Buy wine and support Mended Little Hearts® and Mended Hearts® ! #MLH #CHDAware #OneHopeWine http://ow.ly/wEhH50EBRaP

If you want to spend an afternoon outside with your family, why not try geocaching? This outdoor treasure hunt is fun fo...
05/09/2021
Get the free Official Geocaching app and join the world's largest treasure hunt.

If you want to spend an afternoon outside with your family, why not try geocaching? This outdoor treasure hunt is fun for all ages and can be great exercise too. Here's a guide to get you started. #MLH #CHDAware #1in110 http://ow.ly/1rbL50EBQU9

There are millions of geocaches worldwide, just waiting for you to find them. There are probably even some within walking distance of where you are right now. Visit Geocaching.com to see just how many geocaches are nearby and to learn how to start finding them.

05/09/2021

To all the moms out there, Mended Little Hearts® and Mended Hearts® would like to wish you a very happy Mother's Day!

It's important to know what resources are available to CHD patients and families as children reach adulthood. Join us Ma...
05/08/2021

It's important to know what resources are available to CHD patients and families as children reach adulthood. Join us May 13 at 12:30 ET for our "Conversation With Mark Roeder of the Adult Congenital Heart Association" to learn more. #MLH #CHDAware #1in110 https://zoom.us/webinar/register/WN_8N92kxKmTKOk9qlOjcRokA

It's important to know what resources are available to CHD patients and families as children reach adulthood. Join us May 13 at 12:30 ET for our "Conversation With Mark Roeder of the Adult Congenital Heart Association" to learn more. #MLH #CHDAware #1in110 https://zoom.us/webinar/register/WN_8N92kxKmTKOk9qlOjcRokA

There is still time to get your mom something special for Mother's Day.  Shop Amazon Smile and money from every purchase...
05/08/2021

There is still time to get your mom something special for Mother's Day. Shop Amazon Smile and money from every purchase is donated back to Mended Little Hearts! #MLH #1in110 #CHDAware
http://ow.ly/R3eB50EGIJ3

There is still time to get your mom something special for Mother's Day. Shop Amazon Smile and money from every purchase is donated back to Mended Little Hearts! #MLH #1in110 #CHDAware
http://ow.ly/R3eB50EGIJ3

Have you made your summer plans yet? If you're still not sure what to do with your kids this summer, here's a list of 10...
05/08/2021
100 Things to do Outside with Your Kids This Summer - Learning Mama

Have you made your summer plans yet? If you're still not sure what to do with your kids this summer, here's a list of 100 ideas to get you started. #MLH #CHDAware #1in110 http://ow.ly/XkHo50EBQHZ

Facebook Twitter Pinterest Summer is a great time of year for both spending time with your family AND spending time outside. But what to do? Here’s a list of 100 things you can do outside with your kids this summer, most of which are free or very inexpensive. Summer plans don’t have to be compli...

Connection is even more important when it's hard to get together face to face. With My Heart Visit™, you can enjoy all t...
05/07/2021
My Heart Visit

Connection is even more important when it's hard to get together face to face. With My Heart Visit™, you can enjoy all the benefits of an in-person visit without any risks. Connect with us today by phone, text or email. #MLH #1in110 #CHDAware https://www.myheartvisit.org/

Bringing people together when they need it the most It began as a question, “How can we provide support for patients and families when we can’t actually be together?” After all, people need hope, support, information and resources now more than ever.The answer is My Heart Visit—a way of conn...

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Shop Amazon Smile and money from every purchase is donated back to Mended Little Hearts!  Shop for Mother's Day AND supp...
05/06/2021

Shop Amazon Smile and money from every purchase is donated back to Mended Little Hearts! Shop for Mother's Day AND support heart patients & families #MLH #1in110 #CHDAware
http://ow.ly/WUGJ50EGIvZ

Shop Amazon Smile and money from every purchase is donated back to Mended Little Hearts! Shop for Mother's Day AND support heart patients & families #MLH #1in110 #CHDAware
http://ow.ly/WUGJ50EGIvZ

Join us tonight for #PeerToPeerSupportChat  - right here on our Facebook wall at 8pm EST. #MLH  #1in110  #WeAreInThisTog...
05/06/2021

Join us tonight for #PeerToPeerSupportChat - right here on our Facebook wall at 8pm EST.

#MLH #1in110 #WeAreInThisTogether #LetsChat

Join us tonight for #PeerToPeerSupportChat - right here on our Facebook wall at 8pm EST.

#MLH #1in110 #WeAreInThisTogether #LetsChat

05/06/2021

It’s National Nurses Day! We all have our favorite nurses, and this is a great day to let them know how much you appreciate them. Why not drop them a thank-you note or give them a shout-out on social media? #MLH #1in110 #CHDAware

Be sure to register for our "Conversation With Mark Roeder of the Adult Congenital Heart Association" to learn more abou...
05/05/2021

Be sure to register for our "Conversation With Mark Roeder of the Adult Congenital Heart Association" to learn more about resources for CHD patients and families. #MLH #CHDAware #1in110 http://ow.ly/liuj50EBQfn

Be sure to register for our "Conversation With Mark Roeder of the Adult Congenital Heart Association" to learn more about resources for CHD patients and families. #MLH #CHDAware #1in110 http://ow.ly/liuj50EBQfn

Celebrate Cinco de Mayo today with some festive (and heart-smart) guacamole! Avocados are good for your heart and tasty ...
05/05/2021
Easy Guacamole Recipe for Kids - Cupcakes & Kale Chips

Celebrate Cinco de Mayo today with some festive (and heart-smart) guacamole! Avocados are good for your heart and tasty too. Here's a kid-friendly guacamole recipe the whole family can enjoy! #MLH #1in110 #CHDAware http://ow.ly/DaUz50EBQbQ

This Easy Guacamole recipe for kids has only 6 ingredients and no chunks of raw onions and peppers, but still tastes yummy! Kid-friendly to make and eat!

⭐️ ⭐️⭐️ Educational Opportunity ⭐️⭐️⭐️ “Conversation with Mark Roeder, President and CEO of ACHA” - Thursday, May 13 fro...
05/05/2021
Welcome! You are invited to join a webinar: Conversation with Mark Roeder of The Adult Congenital Heart Association (ACHA). After registering, you will receive a confirmation email about joining the webinar.

⭐️ ⭐️⭐️ Educational Opportunity ⭐️⭐️⭐️

“Conversation with Mark Roeder, President and CEO of ACHA” - Thursday, May 13 from 12:30 to 1:30 p.m. Eastern.

Do you have a child with congenital heart disease (CHD) and wonder what resources will be available as your child grows into adulthood? In this session of our “Conversation with” series, we will interview Mark Roeder, President and CEO of the ACHA, to learn more about the many things ACHA offers CHD patients and families. We will also explore more about how Mended Little Hearts partners with ACHA to support, educate and advocate.

Register in advance for this webinar:
https://zoom.us/webinar/register/WN_8N92kxKmTKOk9qlOjcRokA


After registering, you will receive a confirmation email containing information about joining the webinar.

#MLH #ACHA #1in110 #CHDandAdulthood #Advocacy

Do you have a child with congenital heart disease (CHD) and wonder what resources will be available as your child grows into adulthood? In this session of our “Conversation with” series, we will interview Mark Roeder, President and CEO of the ACHA, to learn more about the many things ACHA offers...

Getting support is an important part of your journey as a heart patient or caregiver, and it just got easier. Our My Hea...
05/04/2021
My Heart Visit

Getting support is an important part of your journey as a heart patient or caregiver, and it just got easier. Our My Heart Visit™ program allows you virtually connect with a trained and caring volunteer by phone, email, text or video. #myheartvisit #MLH https://www.myheartvisit.org/

Bringing people together when they need it the most It began as a question, “How can we provide support for patients and families when we can’t actually be together?” After all, people need hope, support, information and resources now more than ever.The answer is My Heart Visit—a way of conn...

05/04/2021

May the Fourth Be With You! It’s Star Wars Day, so it’s a great day to watch your favorite Star Wars movie while wearing your favorite Star Wars T-shirt. Which movie does your family like most, and why? #MLH #1in110 #CHDAware

We couldn’t let today go past without shouting it out loud... 📢 🤩 THANK YOU, TEACHERS! 📢🤩#TeacherAppreciationWeek #WeLov...
05/03/2021

We couldn’t let today go past without shouting it out loud...

📢 🤩 THANK YOU, TEACHERS! 📢🤩

#TeacherAppreciationWeek #WeLoveTeachers #CHDAware #MLH

We couldn’t let today go past without shouting it out loud...

📢 🤩 THANK YOU, TEACHERS! 📢🤩

#TeacherAppreciationWeek #WeLoveTeachers #CHDAware #MLH

Some of those seemingly healthy processed foods could be putting your family's health at risk. Breakfast cereals, protei...
05/03/2021
Even 'Healthy' Ultraprocessed Foods Tied to Heart Risk

Some of those seemingly healthy processed foods could be putting your family's health at risk. Breakfast cereals, protein bars and breads are just a few of the so-called healthy foods that could be harmful. Here's what to look for. #MLH #CHDAware #1in110 http://ow.ly/hseS50EBQ4H

Each regular, daily serving of ultraprocessed food was linked with significant increases in rates of "hard" heart disease events and death

Mended Little Hearts® was created to provide support for patients and families with a child who have heart disease, but ...
05/03/2021
Support FOR A LIFETIME - Mended Hearts

Mended Little Hearts® was created to provide support for patients and families with a child who have heart disease, but it also has a long-term effect on families. Learn more about its lasting impact in this story from the new issue of #Heartbeat magazine. http://ow.ly/BWSo50EBQ2F

Mended Hearts Stories - Support FOR A LIFETIME A congenital heart defect (CHD) or heart disease diagnosis is devastating. It creates a jumble of emotions — fear, confusion, anger — for both the person diagnosed and their loved ones. For some, a glimmer of hope during this overwhelming time comes...

Our popular "Conversation With" series continues May 13 when Mark Roeder of the Adult Congenital Heart Association talks...
05/02/2021
Welcome! You are invited to join a webinar: Conversation with Mark Roeder of The Adult Congenital Heart Association (ACHA). After registering, you will receive a confirmation email about joining the webinar.

Our popular "Conversation With" series continues May 13 when Mark Roeder of the Adult Congenital Heart Association talks about what the ACHA offers CHD patients and families. Register now to attend! #MLH #CHDAware #1in110 https://zoom.us/webinar/register/WN_8N92kxKmTKOk9qlOjcRokA

Do you have a child with congenital heart disease (CHD) and wonder what resources will be available as your child grows into adulthood? In this session of our “Conversation with” series, we will interview Mark Roeder, President and CEO of the ACHA, to learn more about the many things ACHA offers...

Today is International Bereaved Mother’s Day ❤️💙 International Bereaved Mother’s Day was started by Carly Marie Dudly, i...
05/02/2021

Today is International Bereaved Mother’s Day ❤️💙 International Bereaved Mother’s Day was started by Carly Marie Dudly, in Australia, and has been embraced by people around the world. This remembrance day takes place one week before traditional Mother’s Day.

Although at times you felt like falling, you kept walking. We honor each of you strong mamas today!!

#MLH #1in110 #CHDAware #RememberOurHearts #BereavedMothersDay

Address


General information

Since 2004, Mended Little Hearts has provided families and caregivers of children with heart defects and heart disease, patients an outlet through which they can find answers, education, resources and access to local-based peer-to-peer support – building hope for the future. With Mended Little Hearts, children with congenital heart defects (CHD) and their families find strength and understanding from those who share the same experience.

Telephone

(888) 432-7899

Products

Directly touching the lives of more than 5,000 CHD families in 2010, and indirectly touching thousands more, Mended Little Hearts currently offers several programs and services to help families including:

Group Meetings
Nothing can replace in-person connections with others facing a similar journey. Mended Little Hearts group meetings provide invaluable peer-to-peer interaction and a forum for families to make personal connections with each other and the medical community. Children with heart defects can meet others like them, with similar scars, and know that they are not alone. Parents can meet other parents and caregivers who have similar joys, fears, concerns and hopes.

Accredited Visiting
Mended Little Hearts trained and accredited visitors visit with families who have children with congenital heart defects in hospitals, by phone and online. The volunteers are family members who have experienced congenital heart defects firsthand. Visits provide support, information and outreach uniquely delivered by a parent who has experienced open-heart surgery or other heart procedures with their own child.

CHD Awareness Initiatives
Most people are unaware that congenital heart defects are the most common birth defect in the United States. Mended Little Hearts works to promote education and awareness to those who may be impacted by congenital heart defects so they are prepared if their child is diagnosed. The instruction includes signs and symptoms, which has the potential to save lives when parents are able to recognize symptoms in time to help their child. Mended Little Hearts also creates awareness of the need to support congenital heart defect research so more children can live healthy lives and become healthy adults.

Health Education to Communities
Mended Little Hearts groups help to educate people in the communties. Cardiovascular professionals and other professionals in the community provide helpful information at Mended Little Hearts group meetings, through workshops, seminars and at health fairs. Families receive essential information about treatment options, research innovations, social support resources, and other topics that make navigating the diagsnosis of heart defects less frightening.

Ongoing Communication
Mended Little Hearts members interact with families through Internet and phone outreach as well as by providing Web resources. Hospital stays and seclusion in the home can leave families who have children with congenital heart defects feeling helpless and alone. Through Mended Little Hearts, caregivers have access to ongoing personal support from people who understand.

Advocacy
Mended Little Hearts advocates on issues that help families with CHD, such as newborn screening and advances in research and improved surveillance of those impacted. Read more about Mended Little Hearts Advocacy, Congenital Heart Futures Act. and Pulse Oximetry Advocacy.

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Comments

Thank you for featuring my girl!
Is there a Mended Little Hearts in or near the Charleston SC area? Thank you 😊
gf.me/u/zck7pb
this is a great place to ask other family
Heart Warrior Gael wanted to share something with his fellow warriors during these hard times. So, he did so by reading his book Exclamation Point for all of you. Please enjoy: https://m.facebook.com/story.php?story_fbid=2804224259700463&id=1171693086286930
gf.me/u/y3bp4d
Hello fellow heart warrior parents! Our daughter has HLHS, and is the inspiration for a new CHD-focused podcast that I'm hosting called One Rare Heart. It explores the personal stories of families, physicians, and researchers affected by CHD. My first episode is now up, so please stop by and take a listen if you get a chance, and share with others who might want to learn more about CHD. www.onerareheart.com
Just wanted to share. My TGAer is missing her college team (covid is takinging away practice). So, she’s working hard at keeping fit. I’m just amazed at how far she has come from that little baby with a million wires keeping her alive, to this very talented 21 year old.
A father's perspective on his son's heart condition. From the New York Times Parenting section:
Good morning! Can anyone steer me in the direction of support groups/connect me with teenagers/adult survivors with HLHS? Need some help navigating COVID and returning to work/normalcy for my 20 year old. Thank you in advance.
My son, Heart Warrior, Gael wanted to share something with his fellow warriors during these hard times. So, he did so by reading his book Exclamation Point for all of you. Please enjoy. https://m.facebook.com/story.php?story_fbid=232627791322552&id=1171693086286930