Living with a rare disease can be an isolating experience.
RareConnect was created to provide a safe space where individuals and families affected by rare diseases can connect with each other, share vital experiences, and find helpful information and resources.
RareConnect welcomes your thoughts, comments, suggestions and questions, but make sure your posts are of general interest to most readers. We will not allow comments that contain vulgar or abusive language; personal attacks of any kind; or offensive terms that target specific ethnic or racial groups. In addition, RareConnect will not allow comments that are spam, are clearly “off topic” or that promote services or products. All links posted as comments will be reviewed and may be deleted if deemed inappropriate. Comments that make unsupported accusations will also be subject to review. RareConnect wants to engage in conversation with all constituents, but we cannot promise that every message or post will receive a response. We reserve the right to remove any inappropriate comments. Repeated violations of this Facebook policy may cause the author to be blocked permanently from the this page.