“I have waited five years to have a diagnosis. No one should wait that long,” says Hélène from France.
It takes far too long for someone living with a rare disease to receive a proper diagnosis of their condition. This presents one of the greatest challenges affecting the health and well-being of the people concerned and their families. We need change!
Support our call for Europe's action plan on rare diseases now to ensure all people living with a rare disease obtain an accurate and timely diagnosis: action.eurordis.org #30millionreasons