Global Albinism Alliance - Pilot

27/09/2021

The results of a poll to select the logo for the Global Albinism Alliance are in!
The circular shape of the winning design demonstrates our global commitment. The shading invokes a light shining on the alliance representing a bright future for the global albinism community..

The results of a poll to select the logo for the Global Albinism Alliance are in!
The circular shape of the winning design demonstrates our global commitment. The shading invokes a light shining on the alliance representing a bright future for the global albinism community..

20/09/2021

Did you know that at the 埼玉で開催 Tokyo 2020 Paralympics competed at least 38 athletes with #albinism (24 females and 14 males) coming from 15 different countries: Australia, Botswana, Brazil, Canada, China, Croatia, France, Germany, Israel, Japan, Mali, Spain, UK, USA and Zambia?
These talented and inspiring Paralympians competed in the following sports: sprint races (100m, 400m and 1,500m), cycling, goalball, judo, long jump, swimming and triathlon.
All together they earned 17 medals: 3 gold, 9 silver and 5 bronze.
The Global Albinism Alliance is proud to acknowledge and celebrate all those athletes with albinism who, through strength, determination and perseverance, showed the international audience their #StrengthBeyondAllOdds.
Congratulations to:
Marta Arce Payno (judo - Spain),
Brieann Baldock (goalball - Canada)
Jennifer Blow (goalball - Australia)
Whitney Bogart (goalball - Canada)
Lucija Breskovic (judo - Croatia)
Ana Gabriely Brito (goalball - Brazil)
Amy Burk (goalball - Canada)
Iván Cano Blanco (long jump - Spain)
Liza Corso (1,500m - USA)
Youssouf Coulibaly (100m - Mali)
Kym Crosby Hightower (100m & 400m - USA)
Kakehata Eiko (goalball - Japan)
Sara Fernández Roldán (long jump - Spain)
Takaaki Hirai (judo - Japan)
Meica Horsburgh (goalball - Australia)
Mingyao Hu (goalball - China)
Marybai Huking (goalball - USA)
Iglesias Adiaratou Forneiro (100m and 400m - Spain)
Nantenin KEITA (400m - France)
Noa Malka (goalball - Israel)
Thiego Marques (judo - Brazil)
Edwin Masuge (400m - Botswana)
Aileen McGlynn Obe (cycling - UK)
Or Mizrahi (goalball - Israel)
Monique Munga (100m - Zambia)
Makayla Nietzel (swimming - USA)
Alison Peasgood (triathlon - UK)
Chad Perris (100m - Australia)
Alex Portal (swimming - France)
Susana Rodriguez Gacio (triathlon & 1,500m - Spain)
Felix Rogge (goalball - Germany)
Christopher Skelley Paralympic Judoka (judo - UK)
Zak Skinner (100m & long jump - UK)
Robert Tanaka (judo - USA)
Tyan Taylor (goalball - Australia)
Nicolas Guy Turbide (swimming - Canada)
Daryl Walker (goalball - USA)
Colleen Young (swimming - USA)
If you know of any other athlete with albinism who competed this summer in Japan, please, let us know in comments.

16/08/2021

The Global Albinism Alliance Pilot Team congratulates Ikponwosa Ero on the completion of her UN mandate on albinism. The GAA Pilot Team expresses its most heartfelt gratitude for Ms. I.K. Ero’s leadership in convening the exploratory meeting held in Paris in January 2020, and that led to the launch of the GAA. It is her vision, dedication and leadership that made the GAA Pilot project possible. We look forward to continued collaboration and wish Ms. Ero all the best in her future endeavors.

The Global Albinism Alliance Pilot Team congratulates Ikponwosa Ero on the completion of her UN mandate on albinism. The GAA Pilot Team expresses its most heartfelt gratitude for Ms. I.K. Ero’s leadership in convening the exploratory meeting held in Paris in January 2020, and that led to the launch of the GAA. It is her vision, dedication and leadership that made the GAA Pilot project possible. We look forward to continued collaboration and wish Ms. Ero all the best in her future endeavors.

26/07/2021

IAAD 2021 Additional contributions

Last month, the GAA Pilot Team had the pleasure to celebrate the International Albinism Awareness Day 2021 showcasing in an online video program the outstanding work done across the world by 25 different albinism organizations.
Today, we share a short additional video presenting the work of three organizations not included in the main program. Thanks to:
Source of the Nile Union of Persons with Albinism - SNUPA
Fundación Piel de Luna Albinos de México A.C.
The Albino Foundation (TAF)
Congratulations for your hard work serving the albinism community!
#IAAD2021
#StrengthBeyondAllOdds
#FortsFaceÀTout
#ForçaParaTudo
#FortalezaFrenteATodo
#albinism

Additional contributions from albinism organizations (SNUPA, Piel de Luna, and The Albino Foundation) to the IAAD 2021 Online Celebration organized by the Gl...

14/07/2021

Breaking news! Today, the Human Rights Council of the United Nations, during its 47th Session, appointed Muluka-Anne Miti-Drummond from Zambia as new Independent Expert in charge of the mandate addressing the enjoyment of human rights by persons with albinism. Congratulations and all the best to the new expert!
A big thank you as well to UN Albinism - Ikponwosa Ero, the outgoing Independent Expert for the outstanding work she has done these past 6 years and for her exceptional devotion to the albinism cause!
More information about the UN mandate on albinism: https://www.ohchr.org/en/issues/albinism/
Photo by Antoine Bonfils

Breaking news! Today, the Human Rights Council of the United Nations, during its 47th Session, appointed Muluka-Anne Miti-Drummond from Zambia as new Independent Expert in charge of the mandate addressing the enjoyment of human rights by persons with albinism. Congratulations and all the best to the new expert!
A big thank you as well to UN Albinism - Ikponwosa Ero, the outgoing Independent Expert for the outstanding work she has done these past 6 years and for her exceptional devotion to the albinism cause!
More information about the UN mandate on albinism: https://www.ohchr.org/en/issues/albinism/
Photo by Antoine Bonfils

14/07/2021

IAAD 2021 Online Celebration - English

A month ago the world was celebrating the International Albinism Awareness Day 2021. You missed the Online Celebration organized by the Global Albinism Alliance Pilot Team, or you just want to watch it once again? No problem, the recording is available online!
English version: https://youtu.be/jwiHM8BPJYo
French version: https://youtu.be/6nd2tLDWG1U
Portuguese version: https://youtu.be/HH-1PyB99YA
Spanish version: https://youtu.be/XWBvriPGRMg
#IAAD2021
#StrengthBeyondAllOdds
#FortsFaceÀTout
#ForçaParaTudo
#FortalezaFrenteATodo
#Albinism

Online Celebration of the International Albinism Awareness Day 2021 organized by the Global Albinism Alliance Pilot Team

25/06/2021

Choose your preferred logo for the Global Albinism Alliance (aka GAA)!
Go to the poll at the bottom of this page http://albinismday.com/celebration and vote for one of the three options!

Choose your preferred logo for the Global Albinism Alliance (aka GAA)!
Go to the poll at the bottom of this page http://albinismday.com/celebration and vote for one of the three options!

14/06/2021

Yesterday, the global albinism community was joined in solidarity to advocate for persons with albinism and to show the world that we are strong beyond all odds. Dozens of events both large and small took place in every corner of the globe to mark this important day.
Congratulations and heartfelt thanks to all those who organized and attended in-person and virtual events.
Thanks to the more than twenty albinism organizations that shared their stories, to UN Albinism - Ikponwosa Ero, to Ogik Peter, to Connie Chiu, to Voli K and to our MC, Nadine Nourney for inspiring and entertaining us in our Online Celebration.
Thanks also to Yasmina Sekkat, Andreza Aguida, and Camila Fortini for the English, French, Portuguese and Spanish voice-over.
A recording of the International Albinism Awareness Day 2021 - Online Celebration can be viewed at www.albinismday.com.

#IAAD2021
#StrengthBeyondAllOdds
#FortsFaceÀTout
#ForçaParaTudo
#fortalezafrenteatodo

Image below is a screenshot taken during the online celebration with the MC and two representatives of the GAA being interviewed.

Yesterday, the global albinism community was joined in solidarity to advocate for persons with albinism and to show the world that we are strong beyond all odds. Dozens of events both large and small took place in every corner of the globe to mark this important day.
Congratulations and heartfelt thanks to all those who organized and attended in-person and virtual events.
Thanks to the more than twenty albinism organizations that shared their stories, to UN Albinism - Ikponwosa Ero, to Ogik Peter, to Connie Chiu, to Voli K and to our MC, Nadine Nourney for inspiring and entertaining us in our Online Celebration.
Thanks also to Yasmina Sekkat, Andreza Aguida, and Camila Fortini for the English, French, Portuguese and Spanish voice-over.
A recording of the International Albinism Awareness Day 2021 - Online Celebration can be viewed at www.albinismday.com.

#IAAD2021
#StrengthBeyondAllOdds
#FortsFaceÀTout
#ForçaParaTudo
#fortalezafrenteatodo

Image below is a screenshot taken during the online celebration with the MC and two representatives of the GAA being interviewed.

13/06/2021

Welcome to International Albinism Awareness Day 2021!
Today we join together to promote, advocate for, and recognize our similarities and differences as people with #albinism. As we reflect on the worldwide situation, we show you how others are working to observe IAAD here: www.albinismday.com
Don't forget to join our Online International Celebration today at:
10:00am - New York City | Santiago
4:00pm - Paris | Pretoria
10:00pm - Beijing | Kuala Lumpur
#StrengthBeyondAllOdds
#FortsFaceÀTout
#ForçaParaTudo
#FortalezaFrenteATodo
#IAAD2021

Picture below shows the IAAD and the Global Albinism Alliance Pilot logos, along with the IAAD website address - www.albinismday.com.

Welcome to International Albinism Awareness Day 2021!
Today we join together to promote, advocate for, and recognize our similarities and differences as people with #albinism. As we reflect on the worldwide situation, we show you how others are working to observe IAAD here: www.albinismday.com
Don't forget to join our Online International Celebration today at:
10:00am - New York City | Santiago
4:00pm - Paris | Pretoria
10:00pm - Beijing | Kuala Lumpur
#StrengthBeyondAllOdds
#FortsFaceÀTout
#ForçaParaTudo
#FortalezaFrenteATodo
#IAAD2021

Picture below shows the IAAD and the Global Albinism Alliance Pilot logos, along with the IAAD website address - www.albinismday.com.

12/06/2021

International Albinism Awareness Day is tomorrow! It is not too late to register to our Online Celebration! Join the worldwide albinism community for an Online IAAD Celebration 2021 tomorrow at 10:00am New York City time.
Register for Free TODAY at www.albinismday.com
#StrengthBeyondAllOdds
#IAAD2021

11/06/2021

Discover how the world plans to acknowledge and celebrate International Albinism Awareness Day.2021!
Follow this link https://www.albinismday.com/aroundtheworld to visit the page “AROUND THE WORLD” of the IAAD 2021 website, and find out how the albinism community in Panama, Australia, Tanzania, France, Turkey, Liberia, USA and many other countries will be taking their turn to recognize albinism, and raise awareness on our condition.
#StrengthBeyondAllOdds
#IAAD2021

Discover how the world plans to acknowledge and celebrate International Albinism Awareness Day.2021!
Follow this link https://www.albinismday.com/aroundtheworld to visit the page “AROUND THE WORLD” of the IAAD 2021 website, and find out how the albinism community in Panama, Australia, Tanzania, France, Turkey, Liberia, USA and many other countries will be taking their turn to recognize albinism, and raise awareness on our condition.
#StrengthBeyondAllOdds
#IAAD2021

09/06/2021

IAAD 2021 Online Celebration to feature Voli K , Fijian singer and songwriter with albinism.
This Sunday, June 13, celebrate with the worldwide albinism community and Voli K, a man who says that he can’t write a sad song!
Registration to this online event is free! Register today! www.albinismday.org
#StrengthBeyondAllOdds
#IAAD2021

IAAD 2021 Online Celebration to feature Voli K , Fijian singer and songwriter with albinism.
This Sunday, June 13, celebrate with the worldwide albinism community and Voli K, a man who says that he can’t write a sad song!
Registration to this online event is free! Register today! www.albinismday.org
#StrengthBeyondAllOdds
#IAAD2021

07/06/2021

Avis aux francophones ! L’équipe pilote de l’Alliance Mondiale de l’Albinisme a le plaisir de vous annoncer que la Célébration en ligne de la JISA 2021 vous sera proposée avec une voix-off en français. Vous pourrez ainsi suivre cet événement de chez vous, dans votre propre langue et sans sous-titres à lire.
Inscrivez-vous gratuitement dès maintenant sur www.albinismday.com et joignez-vous à la communauté mondiale de l’albinisme dimanche 13 juin à 16h00 (heure de Paris) pour une célébration mondiale de l’albinisme !
#FortsFaceÀTout
#IAAD2021
Ci-dessous, le e-flyer de l’événement. L’ensemble des informations qui s’y trouvent son consultables sur le site de l’événement.

Avis aux francophones ! L’équipe pilote de l’Alliance Mondiale de l’Albinisme a le plaisir de vous annoncer que la Célébration en ligne de la JISA 2021 vous sera proposée avec une voix-off en français. Vous pourrez ainsi suivre cet événement de chez vous, dans votre propre langue et sans sous-titres à lire.
Inscrivez-vous gratuitement dès maintenant sur www.albinismday.com et joignez-vous à la communauté mondiale de l’albinisme dimanche 13 juin à 16h00 (heure de Paris) pour une célébration mondiale de l’albinisme !
#FortsFaceÀTout
#IAAD2021
Ci-dessous, le e-flyer de l’événement. L’ensemble des informations qui s’y trouvent son consultables sur le site de l’événement.

04/06/2021

International Albinism Awareness Day 2021 Online Celebration
What a pleasure and honor to feature Connie Chiu, model and singer with albinism. Connie will perform a song that reminds us that we all have a place in this world.
Registration to this online event is free! Register today! www.albinismday.com
#StrengthBeyondAllOdds
#IAAD2021

International Albinism Awareness Day 2021 Online Celebration
What a pleasure and honor to feature Connie Chiu, model and singer with albinism. Connie will perform a song that reminds us that we all have a place in this world.
Registration to this online event is free! Register today! www.albinismday.com
#StrengthBeyondAllOdds
#IAAD2021

02/06/2021

O Piloto da Aliança Global de Albinismo têm o prazer de apresentar que 𝗮 𝗖𝗲𝗹𝗲𝗯𝗿𝗮𝗰̧𝗮̃𝗼 𝗢𝗻𝗹𝗶𝗻𝗲 𝗜𝗔𝗔𝗗 𝟮𝟬𝟮𝟭 𝘀𝗲𝗿𝗮́ 𝗼𝗳𝗲𝗿𝗲𝗰𝗶𝗱𝗮 𝗰𝗼𝗺 𝗱𝘂𝗯𝗹𝗮𝗴𝗲𝗻𝘀 𝗲𝗺 𝗽𝗼𝗿𝘁𝘂𝗴𝘂𝗲̂𝘀. Aproveite a celebração em uma língua familiar, sem legendas para ler!
Junte-se à comunidade mundial de pessoas com albinismo para uma revisão do ano mais desafiador e para ouvir o que vem por aí. Registre-se gratuitamente HOJE em www.albinismday.com.
#IAAD2021
#ForçaParaTudo

O Piloto da Aliança Global de Albinismo têm o prazer de apresentar que 𝗮 𝗖𝗲𝗹𝗲𝗯𝗿𝗮𝗰̧𝗮̃𝗼 𝗢𝗻𝗹𝗶𝗻𝗲 𝗜𝗔𝗔𝗗 𝟮𝟬𝟮𝟭 𝘀𝗲𝗿𝗮́ 𝗼𝗳𝗲𝗿𝗲𝗰𝗶𝗱𝗮 𝗰𝗼𝗺 𝗱𝘂𝗯𝗹𝗮𝗴𝗲𝗻𝘀 𝗲𝗺 𝗽𝗼𝗿𝘁𝘂𝗴𝘂𝗲̂𝘀. Aproveite a celebração em uma língua familiar, sem legendas para ler!
Junte-se à comunidade mundial de pessoas com albinismo para uma revisão do ano mais desafiador e para ouvir o que vem por aí. Registre-se gratuitamente HOJE em www.albinismday.com.
#IAAD2021
#ForçaParaTudo

01/06/2021

International Albinism Awareness Day 2021 - Online Celebration to feature Peter Ogik.
Peter Ogik is not only an albinism advocate in Uganda but he is a talented singer songwriter who composed an original song to celebrate #IAAD2021 on June 13th.
Registration to this online event is free! Register today! www.albinismday.com
#StrengthBeyondAllOdds

International Albinism Awareness Day 2021 - Online Celebration to feature Peter Ogik.
Peter Ogik is not only an albinism advocate in Uganda but he is a talented singer songwriter who composed an original song to celebrate #IAAD2021 on June 13th.
Registration to this online event is free! Register today! www.albinismday.com
#StrengthBeyondAllOdds

31/05/2021

La Alianza Global de Albinismo se complace en anunciar que la celebración en línea del DICA 2021 se ofrecerá 𝗰𝗼𝗻 𝗱𝗼𝗯𝗹𝗮𝗷𝗲 𝗮𝗹 𝗲𝘀𝗽𝗮𝗻̃𝗼𝗹. Disfrute de la celebración en su idioma sin necesidad de subtítulos para leer.
www.albinismday.com Únase a la comunidad mundial de albinismo para ver los hechos más saliente de este desafiante año y entérese de los planes futuros. Inscríbase gratis HOY
#fortalezafrenteatodo
#IAAD2021
con Nadine Nourney

La Alianza Global de Albinismo se complace en anunciar que la celebración en línea del DICA 2021 se ofrecerá 𝗰𝗼𝗻 𝗱𝗼𝗯𝗹𝗮𝗷𝗲 𝗮𝗹 𝗲𝘀𝗽𝗮𝗻̃𝗼𝗹. Disfrute de la celebración en su idioma sin necesidad de subtítulos para leer.
www.albinismday.com Únase a la comunidad mundial de albinismo para ver los hechos más saliente de este desafiante año y entérese de los planes futuros. Inscríbase gratis HOY
#fortalezafrenteatodo
#IAAD2021
con Nadine Nourney

28/05/2021

International Albinism Awareness Day 2021 is just about two weeks away. Don’t miss your chance to join the worldwide albinism community in celebration on June 13th.
Register for Free TODAY at www.albinismday.com to hear inspiring music from performers with albinism, see a review of accomplishments during a challenging year and to hear what’s next for the global albinism community.
#StrengthBeyondAllOdds
#FortsFaceÀTout
#ForçaParaTudo
#FortalezaFrenteATodo
#IAAD2021
with Nadine Nourney